Help finding a doctor please

[Williamsmum]

hi everyone

i have been taking levo for about 12 years now.

Basically i had post partum thyroiditis that didn’t resolve and wasn’t diagnosed. When i went hypo I had all ‘the tired all the time’ tests which said i was fine. Had late miscarriage and early miscarriage. Eventually when my son was 3 years old i saw a private miscarriage specialist who did loads of blood tests and found my tsh was fine but i was low in range. Put me on levo. Symptoms i didn’t realise i had (eg bone chill) went away.

I found a doctor to keep prescribing. He has now retired. I have done all the usual testing with him over the last decade to check i am always in range and my results are consistently tsh between 1 and 2; T4 and T3 bottom half of range (sometimes slightly below mid range, sometimes bottom quartile). I have never had antibodies at a conerning level, even unmedicated. Ferritin always low, never been anaemic and have been trying to get ferritin up all this time. Recently I have swapped to a heme iron supplement and my gp will check blood in 3 months.

Saw a doc on the health insurance who has said he will only prescribe if i have a result showing t4 out of range.

I am doing an intensive course to retrain and will then not be in a secure job for quite some time, so trialling coming off levo is really not feasible for me at the moment and i don’t know if my levels would be bad enough to get the prescription anyway.

I like the idea that my thyroid will adjust but i don’t believe it! I suspect I am one of the people whose levels never go back to normal because i was still suffering after 3 years and if it resolves it happens in 18m-2years. So this trial will be months of ill health and not being able to work, think, engage with other people in a normal way etc.

so i have had to resort to internet levo. I don’t like buying it online.

Anyone able to recommend a doctor VIA PRIVATE MESSAGE PLEASE (in line with group rules, don’t post names of doctors publicly). I need someone who would prescribe based on my history to avoid trying to prove i need levo by not taking it. I have the Thyroid UK list but don’t know who I should see who will treat me rather than taking my money, having me in tears reliving the miscarriages, and then sending me away with nothing.

I hope this is compliant with group rules, apologies if not.

Thanks for reading!