Hello 👋 members ,
I just wanted to pop back and say thank you all for commenting on my posts regarding my John who has primary hyperparathyroidism .
My goodness we didn’t have a very good experience today at local doctors 🙈
He wasn’t concerned with blood pressure and wasn’t going to do a referral to Endocrinologist he said the levels were not high 🙈 both PTH and Calcium - I did speak up then waiting patiently in the wings .
I said this is negligence how can you leave a patient like this who also has classic symptoms of hyperparathyroidism and his health is deteriorating rapidly .
He said he’s had many patients with Johns levels who's led a good quality of life .
Honestly , I was furious inside . Anyway he did do an NHS referral in the end which could take up 4-5 months 🙈
He tried scaremongering us saying if John had surgery he could die on the operating table or damage his voice box - all this from a GP who thinks he’s levels are fine .
Of course there are risks to any surgery and John would need to weigh everything up carefully .
He said John could have vitamin d 400 IU and he hadn’t even heard of K2 - he said it was a commercial gimmick .
Will keep you all posted how it goes privately - we have lots of helpful links from you all , thank you 🙏