Almost 40years of complexity and no end in sight? - Thyroid UK

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Almost 40years of complexity and no end in sight?

Benos123 profile image
8 Replies

In Feb 1987, I returned to the UK after a 3 year posting in Cyprus and we were accommodated in married quarters on a nearby former USAF base. About 6 months later, and without any warning my symptoms of tiredness and general malaise started. I was prescribed an iron tonic, which eventually I was drinking from the bottle, but the only effect it had on me was constipation. Then in 1988, we moved home to the base where I was stationed & worked, and by the autumn time all my symptoms had disappeared just as suddenly as they had come.

There has never been a definitive diagnosis and the best the medics at that time could do was to label it as Post Viral Effects and suggest that it was akin to a sub-clinical attack of hepatitis sometime in the previous year of 1986. They cautioned that it was likely to recur in the future and it did roughly every four or five years with the first being in 1993.

Note: I was a fit as a fiddle in those Cyprus days and I never had any prior symptoms of any sort.

Then in the 2000 and after re-settling to Ireland four years earlier, it all started and the following is a list of the more serious illnesses I've had: Bell’s Palsy, Chronic Fatigue Syndrome, Hypothyroidism (diagnosed by Dr Peatfield), Small Cell Vasculitis, COPD, Liver Function Test Hep C false negative concerns, Hypertension, A Fib, BPH (and a very vascular prostate), Tremor, Genital Vitiligo, GERD, Polymyalgia, Dermatitis, Eczema, Sleep Apnoea, Asthma, Eyesight issues, CKD, Secondary PTH, Template Biopsies of Prostate.

Note: I have seen doctors and consultants for nearly all of the above and whilst they all agreed that I have a complex medical history, they nearly all said that as I have so much going on with me, that they would all just concentrate on their own specialities and look where that has gotten me!

For many years I had suspected that my over exposure to toxic chemical & solvents was a contributory factor and then in 2011, it was disclosed in the UK press that a number of USAF bases in the UK had suffered with contaminated ground water and one of those was the base where I first got sick in 1987. The main culprit is a solvent called Trichloroethylene (aka TCE) and recently there was an appeal on BBC1 breakfast television for similarly effected UK servicemen & women and who served at Camp Leguine in the USA to come forward.

Earlier this year, and as I waited for and faced into yet another annual iron infusion, the benefits of which were always short lived, my GP prescribed a daily dose of iron tablets as an interim measure on 13 April 2024 and whilst my ferritin level and which at times has been as low as single figures, has already increased from 50 to 85, I haven't felt as good in years! I have since seen a Consultant Haematologist and as she reviewed my historical blood test results data I had prepared, she said, "My God you should have been on Iron tablets for years"!

My diet has been developed over the years, it is very stable with plenty of red meat, chicken & pork most days along with mostly wholemeal breads, loads of standard vegetables and the odd glass of red.

I would welcome any constructive comments and advice.

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Benos123
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8 Replies
TiggerMe profile image
TiggerMeAmbassador

Cripes that's quite a list!! But like you say none can be resolved in isolation

Do you have any thyroid results to share, these being TSH, fT3 and fT4 with lab ranges also any thyroid antibody results

Certainly many of the conditions are likely linked to endocrine issues especially with the possible contamination

Best I can suggest with the ongoing iron issue is heme iron which is much easier to absorb and doesn't cause any digestive issues.... Warning!! pretty awful website but great product threearrowsnutra.com/en-uk/...

FRANKLIN = 10% discount

Jazzw profile image
Jazzw

The thought I had when I read your list of co-existing conditions was, “Ehlers–Danlos.”

I’m not saying you aren’t on to something with the idea it’s exposure to toxins. But I did want to put it out there that it might not be the only explanation.

ehlers-danlos.com/what-is-eds/

SlowDragon profile image
SlowDragonAdministrator

Many/most of this list attributable to hypothyroidism

chronic fatigue obviously

sleep apnea - linked to autoimmune thyroid disease and/or weight gain

thyroidpharmacist.com/artic....

Vitiligo - autoimmune and frequently responds to gluten free diet

myvitiligoteam.com/resource...

About 80% of autoimmune thyroid patients find gluten free diet helps or is essential

GERD - poor gut function as result of hypothyroidism leads to low stomach acid, leads to poor nutrient absorption

Low vitamin levels, especially vitamin D, folate and B12, iron and ferritin

Vitamin D level would have dropped significantly returning from Cyprus

Enlarged prostate and low vitamin D

avogel.co.uk/health/enlarge....

Reversible CKD and being hypothyroid

sciencedirect.com/science/a...

A Fib - common with incorrectly managed hypothyroid

arTistapple profile image
arTistapple

Highlighting your post to jimh111 as he has a lot of knowledge about contamination.

helvella profile image
helvellaAdministrator

This member is having account problems - I have contacted HU - but they cannot reply at this moment. And there is more to post!

TiggerMe Jazzw SlowDragon arTistapple

mstp profile image
mstp

²Ever thought of the Zoe Nutrition Programne? Although your diet seems healthy on the face of it, doing their tests might tell you how well your body copes with carbs (ie bread and potatoes as well as sweet things, pasta and rice) and fats (meat and dairy contain fats that can be detrimental to health); and what proportion of good v bad bugs are populating your microbiome. Personally my body metabolises fat very badly so I have to include lots of good fats, such as extra virgin olive oil, avocados, and oily fish. Low fat foods are not considered a good option because the body needs fat and substances are included in low fat products to enhance the flavour and mouth feel which are detrimental to good health. I started in January 2023 and have a lot more energy since eating the Zoe way. I am on t3 only and access mine from Roseway Pharmacy . I agree with others here that your symptoms may be due to thyroid problems.

nightingale-56 profile image
nightingale-56 in reply tomstp

Roseway Labs are in Hackney. Are you thinking of Springfield Pharmacy in Richmond?

mstp profile image
mstp in reply tonightingale-56

Yes. You are correct. I do mean Roseway Labs and they are not in Richmond. Not sure where that came from. Must be my addled brain!

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