What is my thyroid doing?? Updated test results

[weedee41]

Hello everyone!

Finally got full testing including vitamins done. Results below. I think everything is ok with vitamins etc?

Whats confusing me is the thyroid results. Higher TSH this time, but better results for my T4/T3. What is going on with this thyroid of mine??

I have an appointment booked at the Thyroid Clinic in 6 weeks, would it be worth doing any further thyroid testing nearer the time to get a better picture?

[weedee41]

Results above actually - oops!

[pennyannie]

Hello Weedee :

Just reading your first post - how did your Graves resolve itself -

this is an multi organ Auto Immune Disease for which there is no cure -

were you on Anti Thyroid drugs - Carbimazole or Propylthiouracil - PTU - and you found remission ?

[weedee41 in reply to pennyannie]

Hi pennyannie,

I was on a low dose of carbimazole for around 18 months, then I was fine but was told thats common with post partum thyroid issues.

On my previous post it was mentioned it could have actually been Hashi's as that tends to be overactive then swing the other way. Many of my symptoms now are the same. Except this time I am shattered and its weight gain instead of weight loss. I'm just getting confused with these results as it tends to be high TSH and low T4/T3. The thyroid is a strange wee thing!

[pennyannie in reply to weedee41]

Ok then - so it appears you may not have had Graves in the first place and the Graves antibody blood test never confirmed as a positive.

So yes, with Hashimoto's you will be experiencing ' swings in symptoms ' but these do not rise higher and higher as in Graves and your T3 and T4 fall back down into range by themselves after the immune system attack on your thyroid is over.

However - with this AI disease your thyroid - over time - is systematically destroyed and you will find your thyroid further disabled with you needing more thyroid hormone replacement support.

How are you feeling - as blood tests are just a snapshot in time and tend to run a couple of weeks behind symptoms being tolerated ?

Your CRP - inflammation is high - suggesting your body struggling :

Both sets of antibodies are over range indicative of a recent attack from your immune system -

and likely why your TSH + T3 and T4 ' look ' as they do - as it would seem you have or are just getting over another AI attack and a ' swing ' in symptoms and blood tests levels -

I read that some people sense these swings coming on - and drop their thyroid medication for a few days so to try and offset the worst of the symptoms being tolerated ?

Many forum members follow the research and suggestions of Dr Izabella Wentz useful as she too has this thyroid AI disease and writes as thyroidpharmacist.com

P.S. your vitamins and minerals look ok - vitamin D could be better over 100 :

Have your thyroid medications been changed recently- might be a contributing factor ?

[weedee41 in reply to pennyannie]

Yeah I've been reading lots the last few weeks, I'm already low gluten/dairy, lots of antiflammatory foods (my inflammation is down from 12 just over a year ago). Read that book but I absolutely cannot give up my coffee or odd sweet treat, gave up my wine so got to have some joy in life 😂

On my last post it was mentioned my low TSH didn't really go with low lower T4, so thats why I'm now confised again. I was expecting a low TSH /higher T4 or high TSH/low T4.

Does it look like i need to supplement anything? I bought a B complex including folate, would this still be beneficial?

And just to add to the utter madness, went for my GP tests this morning (wanted full iron Panel on top of these and for them to be on record). No thyroid test request!! Not even a mention about thyroid on my record even after three telephone appointments and me specifically asking.