Hello, I have been diagnosed with primary hyper parathyroid disease, and am waiting for surgery to remove a 9mm right side adenoma lying dorsal to the mid/lower pole of the right thyroid.
During my ultrasound, the consultant asked if I knew what my thyroid autoantibody results were.
He didn't discuss any further, as he was concentrating on the parathyroid glands.
I've checked the autoantibody results (June this year), 68.7U/mL
Does this indicate Hashimoto's?
My thyroid function results since October 23 are:
serum TSH (mU/L) serum free T4 (pmol/L)
Oct 23 1.28 / 8.8
Nov 23 2.53 / 9.2
Jun 24 2.25 / 11.1
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TheTeapot
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I imagine those antibodies were oveer-range, weren't they? If so, then yes, it does indicate Hashi's.
For the FT4, I'm afraid we need the range because they vary from lab to lab, and a result without a range is meaningless. But for the last two TSH results, they suggest your thyroid is struggling. Were the blood draws for these test all done at the same time, early morning?
Your FT4 is very low, and the weird thing is, as it gets lower, so does you TSH. It shouldn't do that. So, your FT4 is saying hypo, and your TSH is saying euthyroid (normal). I think you probably have a sluggish pituitary as well as Hashi's.
Thank you, I wondered about the figures, as well! The endocrine consultant only discussed the TPO with me, after I asked if my levels were unusually high-he said they indicate an increased likelihood for hypothyroidism in the future. No other follow up so far, the only endocrine specific extra test is nor and met adrenaline, due to pain and palpitations he thought may not be caused by by parathyroid tumour and hypercalcaemia. I wasn't contacted re. the results, so assumed there was nothing significant. I'm due for a review in November.
Yes, well, that's what he might think. But you are already hypo with that low FT4 but he doesn't know enough about thyroid to recognise that. Problem is, your TSH does not correspond to your FT4 level and that's more than likely all he's looking at.
Fellow parathyroid suffer here....palpitations and pain are both linked to this disease...its blatantly obvious your consultant knows very little about the effects of PHPT🤦♀️ but that's not unusual as many don't even know the symptoms of hyperthyroidism and hypothyroidism you may have to teach him👍
Thank you for such a detailed reply, I had very low Vit D3 in 2016 (about 15?) and again this year (27) and have just finished 7 weeks loading dose treatment. My endocrinologist said that all the TPO shows is an increased likelihood for hypothyroidism in the future. He did nor and met adrenaline tests as well as he thought palpitations were not explained by my hypercalcaemia, but I haven't been contacted following these tests, not due to speak too him until November now (unless repeat bone profiles show my calcium is continuing to rise).
Parathyroid tumors cause low Vitamin D, not the other way around, and low Vitamin D cannot cause a high calcium. You cannot treat a parathyroid tumor with high doses of Vitamin D.
Was calcium level high BEFORE starting on vitamin D supplements
Vitamin D supplements will cause increasing calcium levels
Yes, calcium (serum and adjusted) was high before starting the Vit d3 treatment, I suspect I had high calcium and the tumour back in 2016 as the vit d3 then was really low, and I have never felt well since then. I definitely have primary hyper parathyroid disease confirmed by blood tests and scans. Will be interesting to see my calcium levels retested yesterday and if the vit d3 levels have improved at all.
As slowDragon said if your calcium is high end or over range you should not be taking high loading doses of vit D,But here's why endos give you it....they see the low vit D and assume its low because the of the high parathyroid , so they give you large loading doses in the hope getting your vit D in to a better range will fix the high parathyroid , not realising large doses of vit D will also raise your calcium 🤦♀️I've been through this very thing I felt awful 🤮 to cure your PHPT you need the parathyroidectomy which I believe you are having 👍
As anyone mentioned 4 gland exploration to you?
As more than one gland can be effected in this disease, many sufferers find only one gland lights up, but when under the surgeon should check all 4 glands to make sure it's not hyperplasia, unfortunately many don't do this procedure ☹️ and find out later they are still not cured because another gland was missed.
There's a lot about this disease and thyroid disease the specialists won't tell you...do some digging be informed and the best of luck for your parathyroidectomy 🥰
I was diagnosed with primary hyperparathyroidism in 2014 with the removal of two parathyroid glands due to adenomas. When I was first diagnosed with Hashimoto's in 2006, my TPO antibodies were extremely elevated. Occasionally I get them checked now and they are still present but not like they were before. I was told that once you have those antibodies, they are always present. When they are really elevated you have more inflammation going on. When I had my surgery to remove the adenomas, I also had 2 thyroid nodules removed. The biopsy of the nodules confirmed the Hashimoto's. I am assuming that they will do biopsies on any nodules that they find on you too. But if you do have antibodies, you do have hashimoto's. Good luck with your surgery.
Thank you for taking the time to share all your stories and suggestions, my knowledge of the thyroid isn't up to scratch, so I will be looking at all the sources you have provided.-I have been referred for surgery (I think!) only because i challenged the original plan to treat with Vit D3, then go back, then see if the Vit 3 had reached optimal levels. I pushed and pushed and argued that making me wait was wasting 10 weeks of my life, and that I was adamant that I needed surgery as nothing else is curative for PHPT. I also had to correct the Endo every time he commented i was "mildly" symptomatic! It's exhausting and frustrating and quite intimidating. As you say, there seems to be such a superficial, one size fits all approach. i feel extremely fortunate to have been referred to a surgeon, as my high calcium was picked up in October. But I also wonder how long I have been brushed off over the years. In my area the wait for the op is reportedly 18 months. Once I have met the local surgeon I will have a better idea of the unanswered questions and will pay for a private consultation with a high volume parathyroid surgeon, as I want to speak to a a surgeon who is experienced in 4 gland exploration, ectopic glands and thyroid surgery.
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