hello all
I posted previously about my suspected TED - symptoms still present but seeing an ophthalmologist soon. I asked for copies of my blood results and got the following -
TSH - 1.1 (range 0.23-5.6)
Free T4 - 16 (range (9-28)
TRAB negative - <1.2 (range 0-2.1)
So, I still have all the hallmarks of TED but the GP assures me that there is no problem with my bloods at all. At a bit of a loss now and wondered what people think, given the results above? Thanks
I realise that many with thyroid eye disease - or who think it possible - find wading through heavy papers is tough going. Can be pretty difficult as many seem full of photos or worst-case patients.
Having said that, if you want to know more, you could do worse than read this review paper from 2009:
ncbi.nlm.nih.gov/pmc/articl...
And if you still want more, this is a link to papers which cite that paper:
ncbi.nlm.nih.gov/pmc/articl...
These are meant to help - but I'll truly understand if you don't. And don't feel you have to let me know!
Thank you, I did read the article and found it very useful. Still don’t know how I could have TED with normal bloods but will see what the ophthalmologist says
GP hasn’t done full thyroid testing
You can have TED with Hashimoto’s/Ord’s thyroiditis
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.
Very important to test vitamin D, folate, ferritin and B12 at least once
About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high thyroid antibodies
Autoimmune thyroid disease with goitre is Hashimoto’s
Autoimmune thyroid disease without goitre is Ord’s thyroiditis.
Both are autoimmune and generally called Hashimoto’s.
Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)
20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis
In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)
Recommended on here that all thyroid blood tests early morning, ideally before 9am
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
List of private testing options and money off codes
thyroiduk.org/getting-a-dia...
Medichecks Thyroid plus antibodies and vitamins
medichecks.com/products/adv...
Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins
bluehorizonbloodtests.co.uk...
Link about thyroid blood tests
thyroiduk.org/getting-a-dia...
Link about Hashimoto’s
thyroiduk.org/hypothyroid-b...
Symptoms of hypothyroidism
thyroiduk.org/wp-content/up...
Only do private testing early Monday or Tuesday morning and not in a heatwave
Come back with new post once you get results
Thanks!
Hey there again ;
Well these results are pretty limited and all they say is that your TSH and T4 are in range, but without the associated T3 result and range there is nothing much one can say.
The TR ab reading is showing as " in range " but this again isn't conclusive of there not being a thyroid health issue.
TED can also found in people who are dealing with Hashimoto's auto immune thyroid disease and this would have needed TPO and or Tg AB antibodies run :
TED is an auto immune disease in it's own right, and can run independently of a thyroid health issue.
Yes, that’s what I was wondering about, thank you!
Bronchiectasis Shown to be linked to autoimmune disease
Also low vitamin D and (possibly) zinc
Get vitamins tested
frontiersin.org/articles/10...
bronchiectasis (n = 402) found that 50% were deficient, 43% insufficient and only 7% had sufficient status
Low vitamin D linked to autoimmune disease
Vitamin D may prevent Autoimmune disease
Thyroid Blood Test Results
Graves’ disease - latest blood results
Thyroid Eye Disease query
private testing for thyroid issues 
