Annual TF test: It's been a while since had to... - Thyroid UK

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Annual TF test

Tiller-girl profile image
14 Replies

It's been a while since had to battle with GP after they reduced Thyroxine to 75 resulting in a return to many of the old symptoms over 6 month period. Your help and advice at that time was invaluable. Resolved after full blood screen confirmed no other issues and speaking with senior GP who was happy to put me back to 100, sensibly acknowledging that 'normal' is a wide band and that if I was feeling well on 100 then that was what I needed. Every year following the results have prompted attempts to reduce the dose again to which my stock reply became " It's not going to happen - speak to Dr Firth" (who seems to be the only one there to have an understanding of Hypothyroidism and maintains the status quo).

Just had a call from the surgery to arrange a further blood test in 6 weeks after current annual results again showed a low TSH (0.17) - Free T4 was (13.6). I've successfully managed the condition since 2007 and last time I had need to visit the GP (other than for above thyroid issue and bloods) was in November 2018. I feel great both physically and mentally despite what the test results might indicate. - but should I be concerned?

Many thanks

Susan

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Tiller-girl
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14 Replies
Forestgarden profile image
Forestgarden

No, your tsh is not completely suppressed so that is not a concern. Its still being picked up on the blood test ok. Your ft4 is pretty low though! You definitely don't need a dose reduction (more like an increase) but as long as you feel ok on that dose, keep on fighting!

tattybogle profile image
tattybogle in reply toForestgarden

just a heads-up Forestgarden... Some fT4 ranges are [7.9-14] so we can't assume 13 is low until the range has been seen

Forestgarden profile image
Forestgarden in reply totattybogle

Very true x

SlowDragon profile image
SlowDragonAdministrator

Was testing done early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Please add most recent thyroid and vitamin results and ranges

ESSENTIAL to also test vitamin D, folate, ferritin and B12 at least once year minimum

Is your hypothyroidism autoimmune?

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high TPO and/or high TG thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

Significant minority of Hashimoto’s patients only have high TG antibodies (thyroglobulin)

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease

Comprehensive list of references for needing LOW TSH on levothyroxine

healthunlocked.com/thyroidu....

onlinelibrary.wiley.com/doi...

If symptoms of hypothyroidism persist despite normalisation of TSH, the dose of levothyroxine can be titrated further to place the TSH in the lower part of the reference range or even slightly below (i.e., TSH: 0.1–2.0 mU/L), but avoiding TSH < 0.1 mU/L. Use of alternate day dosing of different levothyroxine strengths may be needed to achieve this (e.g., 100 mcg for 4 days; 125 mcg for 3 days weekly).

Tiller-girl profile image
Tiller-girl in reply toSlowDragon

Good morning

The test was done at 11am, it was 24 hrs after last dose of Levothyroxine . I also avoid drinking tea or coffee for at least an hour after taking Levo. Question of Hashimotos has never ever been raised in 17 years. I will ask in 6 weeks if they can do the vitamin D, folate, ferritin and B12 as well as it's not done automatically.

I do wonder if taking multivitamins etc effects how Levo works. I am not a meat eater so supplement my diet. I try to keep soy products to a minimum but include a lot of eggs, fruit, nuts and fibre in my diet.

SlowDragon profile image
SlowDragonAdministrator in reply toTiller-girl

Multivitamins unlikely to correct any deficiency

stop any supplements that contain biotin 5-7 days before all blood tests

Any supplements that contain iron should be at least 4 hours away from Levothyroxine

Tiller-girl profile image
Tiller-girl in reply toSlowDragon

It's worth knowing about the Biotin, thank you. I always take anything other than thyroxine in the evening. I asked about the supplements in case they might interfere with absorption. Egg yolks, nuts and mushrooms are all sources of Biotin too (and all key to my diet) should I cut or reduce them a week before the test?

SlowDragon profile image
SlowDragonAdministrator in reply toTiller-girl

No …..biotin in diet should be fine

Tiller-girl profile image
Tiller-girl in reply toSlowDragon

Hi

Just a 'thank you' for the advice offered re knocking off my dietary supplements a week before blood test. It has made a difference and the re-test results have come back satisfactory. Next year I will be prepared!

SlowDragon profile image
SlowDragonAdministrator in reply toTiller-girl

What were TSH, Ft4 and Ft3 results

How do you feel

Tiller-girl profile image
Tiller-girl in reply toSlowDragon

Thyroid function test

Serum TSH level 0.47 mu/L [0.35 - 4.94]

Serum free T4 level 12.1 pmol/L [9.0 - 19.0]

Thyroid Therapy Levothyroxine (T4)

I feel really good - as I always do when medics don't interfere so asked them to look at my history which confirms that the last time I actively sought attention from them was in November 2018 and for a non-thyroid related issue. One thing I didn't realise until very recently was the potential of Amitriptyline to suppress absorption. I've been on it since 2011 for the relief of joint pain, only20mg which I managed to reduce down to 10mg myself in 2019 with doctor's approval to increase up to 30mg should circumstances dictate (which it never has - so far). 10mg is not a high dose but is it likely to make a difference and if so why didn't GP cotton on?

tattybogle profile image
tattybogle

TSH between 0.04 and 0.4 is not really a big problem/ risk,.. and if fT4 is well within range then i personally wouldn't worry about TSH of 0.1 at all as long as you feel well .

~ what's the lab range for the fT4 result you gave ? just asking because ... 13.6 could be quite low if it's [12-22] or quite high if it's [7-14]

here are links to research clarifying that TSH 0.04 or above is not actually a big risk ... you can put under GP's noses if they give you grief about your TSH of 0.1 : healthunlocked.com/thyroidu... useful-evidence-that-tsh-between-0.04-0.4-has-no-increased-risk-to-patients-on-levothyroxine-updated-new-study-does-show-small-risk

Tiller-girl profile image
Tiller-girl in reply totattybogle

The lab range for T4 was 9.0 - 19.0

Angel_of_the_North profile image
Angel_of_the_North in reply toTiller-girl

So just under 50% of range - too low for many people, but might be OK for you.

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