Thyroid-S : Hi,I've been taking Thyroid- S for... - Thyroid UK

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Thyroid-S

Booblet profile image
42 Replies

Hi,I've been taking Thyroid- S for several years b4 most NDT went up 300% in the last few years.

Today I have found our through Paul Robinson book (Stop the Thyroid madness) latest edition, that Thyroid-S contains several E numbers one being Tatrazine which I am allergic to.

I have been taking 3 x tabs a day. My last blood tests showed my T3 was just out of the ratio level. (Low side).

I know many t3/t4 ndt(natural designated thyroid) Thyroid supplier's have changed their ingredients and levels - with astorshinate price rises. But apparently Thyroid-S was one of the cheapest?

I am in a desperate situation as to where I go next.

I am struggling with finances atm

Can anybody please help?

X

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Booblet
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Sunflower64 profile image
Sunflower64

If your FT3 levels are on the low side 8-12 hours after latest dose, you are most likely undermedicated. Have your T3 levels always looked like this on Thyroid-S? I am asking as some feel it has changed in recent years and is no longer working as well.

All brands of NDT are very expensive nowadays, most likely due to the swine fever pandemic and shortage of raw material.

I am not sure the list on the STTM is correct. It has been there for years but, to my knowledge, does not come from the manufacturer.

Have you considered synthetic T3 and T4 instead of NDT?

Booblet profile image
Booblet in reply toSunflower64

Hi,Thks for your reply.

When I read the information regarding total ingredients of Thyroid-S I can now resonate with the fact that I have had quite a few hypothyroidism return symptons.

And definitely noted since the 300% rise in price.( 2/3 yrs ago).

Stupidly I just presumed that what Thyroid-S displayed as ingredients were that!!

I purchased t3 a year ago but have been terrified to use it: I have severe allergies and medication ingredients are the worst ( mainly nhs ones!).

Q

Good question; No my t3 levels have been good, but not the last year and this year.

STTM book (apparently the latest?) certainly make sense to me, especially when you compare all the other ndt medication from several states and Countries.

Regards X

Paquita profile image
Paquita in reply toBooblet

The less optimal T3 levels may be due to the change in formula by Sriprasit. If you didn't already, you may try to chew the tablets for better absorption. It seems they have put more cellulose and less dextrose in them, making them harder to absorb.

Booblet profile image
Booblet in reply toPaquita

Thankyou for your reply. I agree with you totally regarding Thyroid-S ingredients. It's such a good idea to chew tabs first - going to do that. I'm pretty sure that I don't convert T4 to T3 (is that the right order?!). I must do the test.

I'm quite scared of just taking T3 on its own - I put on weight drastically last time .

How are you? Do you take Thyroid-S?

X

Paquita profile image
Paquita in reply toBooblet

I put on weight from T4. From the first NDT tablet, I started losing weight. I did not know that T3 alone can also make you gain weight.

I use Thyroid S as well. This latest batch (22054) does not work so well for me, I get hyper symptoms on my regular dose, but hypo symptoms on a lower dose. I am making do. It's much better than T4 alone.

Booblet profile image
Booblet in reply toPaquita

Hi,T3 alone can not cause weight gain. It helps to loose weight.

Paquita profile image
Paquita in reply toBooblet

OK. Which batch nr are you on?

Booblet profile image
Booblet in reply toPaquita

Hi,Can you sell them cheaper?

Paquita profile image
Paquita in reply toBooblet

What do you mean? I asked for the batch nr because we are collating experiences here with each batch. It is printed on the bottle.

helvella profile image
helvellaAdministrator in reply toPaquita

As here:

Thyroid S Batches

A summary of known and suspected potency of Thyroid S batches.

Regularly updated so please check the blog directly.

helvella.blogspot.com/p/thy...

Sunflower64 profile image
Sunflower64 in reply tohelvella

This does not make for encouraging reading. But excellent info! After studying this summary, I decided to forget about NDT and stay on a synthetic combo. Thanks, Helvella, for taking the time to compile this info!

helvella profile image
helvellaAdministrator in reply toSunflower64

Always open to adding more information if anyone has anything to pass on. :-)

ttslaw profile image
ttslaw in reply toPaquita

When you went down, did you go down by 1 grain, a half a grain, or a different amount? I order 4 bottles at a time and I just opened a bottle with this batch number about a week ago. Last night I was really struggling because I felt really off. I'm trying to determine how much to go down. Thank you.

Paquita profile image
Paquita in reply tottslaw

22054? I usually go up or down with a quarter grain.

ttslaw profile image
ttslaw in reply toPaquita

Yes, that's the batch. Thank you. That definitely makes it difficult to get the dose right. I started feeling a but dizzy a few days ago and then last night I felt really weird. A horrible adrenaline rush where my mind was spinning and I got a weird pain in the back of my neck.

Paquita profile image
Paquita in reply tottslaw

I also felt weird after starting this batch. Not sure if I'm now used to it or if chewing the tablets has resolved this. How many grains are you on? I needed to go down 1 grain from 3.25 to 2.25 on this batch.

ttslaw profile image
ttslaw in reply toPaquita

I usually take 3.75.

ttslaw profile image
ttslaw in reply toPaquita

As far as chewing goes, I used to chew them years ago and then I read that these should be swallowed, so I started swallowing them maybe 2 years ago and they were definitely stronger that way. But maybe the changes in fillers has changed that.

Paquita profile image
Paquita in reply tottslaw

I used to swallow, but I find with this batch it makes a difference chewing them. When I used an uncoated brand, I had to coat them to be able to take them all at once and not have to split doses. But now, I can chew them all at once. However, I am only taking the 2.25 grains, which is too little for optimal effects, but I feel too weird on more.

Let us know how you get on.

ttslaw profile image
ttslaw in reply toPaquita

Thank you. I'll try going down and chewing them and see how that works. I really appreciate your feedback.

MindfulMoments profile image
MindfulMoments in reply toPaquita

Hi Paquita. I think we may have messaged before re Thyroid-S. Your experience with the later batches is exactly the same as mine. If I go above 2.5 I have awful symptoms and any less I feel very fatigued. I am certainly not optimally medicated as I feel my weight creeping up and I don't feel like I have bounds of energy. I am on 23T01003 batch and 3/4 the way through. I've tried all other ndts bar Armor as it is extortionate. Although the others have better ingredients, they are very costly in the long run, and I didn't feel better, although, I didn't stick with them for too long due to the cost. Even though you don't feel 100% on Thyroid-S, are you sticking with it? I am really hoping my next batch will be better.

Paquita profile image
Paquita in reply toMindfulMoments

This is the first time I heard of anyone else having that problem, thanks for sharing. Awful that you have to go through that as well, though. Have you notified the manufacturer? I have and got a generic BS answer.

For now I am sticking with it, too. It is still much better than T4 only, and T3 seems to be complicated to use.

MindfulMoments profile image
MindfulMoments in reply toPaquita

Yes, Thyroid-S has certainly changed. I did notify [edited by admin] a while back as I thought they may have added gluten due to getting gluten intolerant like symptoms on another previous batch. I asked them to confirm this and give me a list of ingredients. All I got back was that it didn't contain gluten, and they refused to provide me with any other information. I did try T3 only once, when I was desperate, but I could only tolerate minute amounts, certainly not the dose levels I should have been at. My doctor was very anxious about me doing that as well.

Sunflower64 profile image
Sunflower64 in reply toMindfulMoments

I sometimes think it is a shame the manufactured, Sriprasit, will not disclose the list of ingredients.

There have been so many rumours about Thyroid-S in the past few years. One was that mannitol had been added to it. Someone wrote to Sriprasit and they denied it (their reply was posted on a thyroid blog).

Then, there is the persistent rumour that cellulose has been increased. It might be true, we simply cannot know for sure.

For years, it has been claimed that the -S stands for slow release. But that has never been confirmed by Sriprasit.

It would be easier if they would simply make the list of ingredients public.

MindfulMoments profile image
MindfulMoments in reply toSunflower64

Yes Sunflower64, I totally agree. With that many unknowns I would generally avoid such medications, but unfortunately, Thyroid S is affordable and more tolerated than other thyroid medications. You just have to be careful when discussing it with medics, it's not surprising they're very sceptical about it.

Booblet profile image
Booblet in reply toPaquita

Hi Paquita,I'm sorry for my last reply to you. It was meant for somebody else!.

I will check the batch number for Thyroid-S - I received this product 2 days ago.

However, I gave been taking x 3 grains for the last few years.

My recent blood test show TSH - good level (in the middle of range) but, My T4 was quite a way out of the range (not got results to hand atm) it was very low.

It's just annoying that some suppliers of Thyroid ndt seem to be addressing the importance of profit rather than addressing the ingredients that support the recovery of Thyroid issues.

I will be on touch with you soon.

Sunflower64 profile image
Sunflower64 in reply toBooblet

What do you mean by ”addressing the ingredients that support the recovery of thyroid issues”? NDT is supposed to replace missing thyroid hormone, not support recovery.

Paquita profile image
Paquita in reply toBooblet

On NDT, TSH should be below range and FT4 middle of range. A healthy TSH without medication should be around 1. So middle of range means you are hypo. Plus the too low FT3 and FT4, it seems you would either need to take more, or the batch you had been taking is not working well for you.

Sunflower64 profile image
Sunflower64 in reply toBooblet

Also, the TSH is not a good indicator when on thyroid meds, especially when taking NDT/T3. Most people on adequate replacement doses of NDT have a low/suppressed TSH. The free T3 is more important on NDT, followed by FT4. But dosing by the TSH is not a good idea on NDT.

Sunflower64 profile image
Sunflower64 in reply toPaquita

Has that been confirmed? I thought Thai drug companies did not have to provide that kind of information. It seems the list of ingredients on the STTM website has never been officially confirmed by Sriprasit.

The price increase is incredible. Thyroid-S is now as expensive as Armour.

helvella profile image
helvellaAdministrator in reply toSunflower64

Last time I looked, STTM had TWO different versions of the ingredient list.

Even if one or the other had once been accurate, we simply would not be sure there had been no changes as, again last time I looked, both lists were many years old.

I repeatedly say companies don't just change ingredients at the drop of a hat. But there have been numerous discussions about how colour and other characteristics appear to have changed over time and even between batches.

Sunflower64 profile image
Sunflower64 in reply tohelvella

But would an increase in cellulose make the pills greenish? I remember the STTM saying back in 2009 that the added cellulose made Armour pills look more uneven in colour, more yellowish or greyish…so not at all clear to me. Plus, it seems cellulose is one of the most common fillers in all drugs, so is only absorption of thyroid hormone affected…? Also, some forums claim there is a ‘cut-off point’ where cellulose starts to interfere with thyroid hormone uptake, which is allegedly what happened when Armour was reformulated in 2009. But how much cellulose is too much…? i have never found an answer to that question.

helvella profile image
helvellaAdministrator in reply toSunflower64

It looks to me as if people have taken speculation/guesses, possibly fragments of real information, and misunderstandings and come up with some very questionable “answers”.

A cut-off point seems unlikely to me.

in reply toSunflower64

Absolutely no way that Thyroid S is more expensive than Armour. I buy it regularly in quantities of 500 x 1 grain and my order is significantly less than the price of 100 x 1 grain of Armour

I’ve copied and pasted below from an advert for Armour so that I don’t name the supplier

Armour Thyroid 60MG (1 Grain) Tablets

£286.00

100 Tablets

Booblet profile image
Booblet in reply to

Hi,Just seen your reply again from 6 months ago regarding prices of Thyroid-S and Thyroid Armour.

Can you please send me a link to were you buy your Armour Thyroid from?

Regards

in reply toBooblet

I will send you by PM my supplier of Thyroid S (not Armour) which is used by many on this forum.

Scammers exist and it’s good that admin remind us of that but the supplier I’ll send to you via PM is definitely not a scammer - and neither am I 😉

helvella profile image
helvellaAdministrator in reply toBooblet

As this thread now includes asking for where to buy information, it will be closed to replying.

This is my standard note when members post asking for suppliers of hormones/medicines. Some parts will not apply to this specific post.

If you have not already done so, adding some information to your profile might help and encourage replies. Members are very much more likely to make recommendations if they are convinced you understand what you are asking for, and will use it sensibly.

In particular, if you are not within the UK, please make this clear. Some potential suppliers will only supply specific countries. If it is not already included, please add it to your profile.

Asking for possible sources of supply is allowed.

Always write your own brand new post.

Do NOT go round adding replies to existing posts asking for sources. When this happens, either your reply will be deleted or the whole thread will be closed to replying. Neither of which is desirable.

(You can ask other members by Private Message but be considerate. Unexpected Private Messages can feel intrusive and demanding to the recipient especially if they have never seen you post or reply. Some members may not wish to reveal their sources, or possibly do not notice your Private Message, or do not wish to engage at all. That is entirely their choice and we should make no assumptions if we do not get replies.)

As we can't name suppliers on the forum, any replies must be by Private Messages (also called Chat). Your post will be closed to replies to prevent any information being posted here. You might already have requested Private Messages.

Once the post is closed, there can be no further replies on forum. That is why it is best to ask for sources in a separate post. And to make sure to give sufficient details as they cannot be added once the post is closed.

We hope that you get some helpful responses but, if you do not, feel free to post again.

To avoid being scammed by unscrupulous suppliers who we know contact members when requesting suppliers of thyroid meds, you are encouraged to contact a member of the Admin team to see if we have any feedback on any recommendations that you are sent. Please read the post linked to below and don't part with any money until you have checked any supplier information with an admin.

However, admins cannot make any recommendations themselves. This is expressly prohibited so do not ask us to do so.

You will find few, if any, of the potential suppliers accept the best known and most trustworthy forms of payment such as PayPal and credit cards. The major payment companies are very wary of medicine suppliers.

📢 ⚠️ Purchasing thyroid medication without prescription - Please Be Wary! ⚠️ 📢 (Repost)

healthunlocked.com/thyroidu...

Jaydee1507 profile image
Jaydee1507Administrator

Just in case you get a personal message from one of the scammers that lurk here I will post this warning notice that you would be wise to read.

⚠️ IMPORTANT! When you receive a message with a recommendation, please do not assume it is genuine!

Scammers are joining the forum on a very regular basis and messaging members with their assertions that they have successfully purchased xyz medication from zyx source.

First, do check the profile of the member that sent you the message. (You can find their profile by searching for their name in the member list here healthunlocked.com/thyroidu...

Are they a long term member with an active forum posting history? (Just be cautious and check with admin)

Or are they a recently joined member with little or no posting history? (Do be very suspicious and check with admin)

**** Scammers even join our forum and post a 'fake' story about their thyroid journey, that includes mention of self sourcing their thyroid meds. This is to encourage members to ask them where they purchase their medication without prescription.****

-------

Once you have what you think may be a genuine recommendation, you are strongly encouraged to message an Admin to ask whether the admin team have any feedback on the source you've been given.

Please also tell admin the member name/s that messaged you so that we can check them out if necessary.

Admins are not allowed to recommend sources, but we can tell you what, if any, feedback we've received about the source you've been given.

⚠️ Don't part with your much needed money until you are as sure as you can be that the source is genuine.

Read the full post: healthunlocked.com/thyroidu...

Jaydee1507 profile image
Jaydee1507Administrator

What were your latest results and what timing for last dose of NDT did you allow?

How are your vitamins looking - ferritin, folate, B12 & D3?

What supplements are you taking?

It sounds like you need an increase but are you saying you want to change from Thyroid S?

Levo + T3 dont need to be expensive.

Booblet profile image
Booblet in reply toJaydee1507

HiI need to discuss a scam website - selling Thyroid-S?

Who do I contact?

Jaydee1507 profile image
Jaydee1507Administrator in reply toBooblet

You can send me a private message.

Blissful profile image
Blissful

Today I have found our through Paul Robinson book (Stop the Thyroid madness) latest edition,

There might be a small confusion above - Paul Robinson has published books on the CT3M method

paulrobinsonthyroid.com/pau...

whereas Stop the Thyroid madness is a site run by Janie Bowthorp in the US. The last time I looked at anything on STTM there was a very strong recommendation against taking certain natural dessicated thyroid products. There was apparently a great deal of evidence that they were no longer working for too many people - likely as a result of the declared and undeclared fillers/binders.

JB had been really well/recovered on NDT but had to change to a combo of T4/T3 (I believe).

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