Just had bloods redone as feel so tired and achey. All look ok bar folate - could this cause such fatigue?TSH - suppressed
FT4 - 18.2 (9-22)
FT3 (upper limit I think 6.6)
Folate 5
Ferritin 115
B12 1546 - on weekly injections
I am also peri menopausal and also have PoTs so hard to know what is causing me to feel so tired. Any advice welcome. TIA x
Was there an FT3 result?
Also missing a D3 result.
What are you taking and how much?
Free T4 (fT4) 18.2 pmol/L (9 - 22) 70.8%
Your FT4 would be OK if on a combination dose.
If on B12 injections its recommended to take a good methyl B complex to help keep all the B's in balance.
Slightly cheaper options with inactive B6:
amazon.co.uk/Liposomal-Soft...
Contains B6 as P5P an active form:
bigvits.co.uk/thorne-resear...
healf.com/products/basic-b-...
Explanation about the different forms of B6:
helvella.blogspot.com/p/hel...
B complex comparison spreadsheet:
healthunlocked.com/thyroidu...
Do you know if you had positive thyroid antibodies? Many with autoimmune thyroid disease aka Hashimoto's benefit from a gluten free diet. A smaller percentage of those also need to remove dairy from their diet to feel well. These are intolerances and will not show up on any blood test.
Thanks for reply sorry I omitted the FT3 😳 it was 5.3. I am currently on 125mcg of levo and 40mcg T3 split into 2 doses.Vit D wasnt checked.
Will look into the b complex thank you!
Yeah my antibodies were checked years back and on the high side if I remember correctly.
So we would need to know the range to see where your result falls for FT3.
Are you supplementing with vit D3 and K2, if so how much?
NHS easy postal kit vitamin D test £31 via
I am sure the top end range for T3 is 6.6 but I cant remember exactly sorry 😳. I have some D3 and K2 drops and just D3 from seeking health on a recommendation and have just started taking a couple drops of each a day.
Its really important to know the range so could you find that out?
You are legally entitled to a printed copy of your results, ask at GP reception. In England you can get the NHS app and ask for permission to see your blood results on that by asking at GP’s reception.
Its essential to test vit D twice a year. You do need to know you're taking the right amount. Not too much, not too little, just right.
My surgery is an utter nightmare you have to fill out a form to request your own blood results and I am still waiting on a print out 2 weeks later. I am sure its the top end of 6 as before at 7.7 I was classed as over but will hopefully get my copy soon. I have just ordered the vit d test online from your link.
Hi Kirsty
If you download the nhs app you can view blood tests online. Beats ringing surgery/ waiting for printouts.
You can view all your results via patient access website or the nhs app.
Unfortunately we dont have access to this in Scotland - would be so much easier
That is ridiculous!!!
Tell me about it! Its like pulling teeth trying to get actual levels over the phone they refuse to tell you then its a form for a printout which can take up to 30 days.
What an absolute joke! I can view mine online the next day!
It is a joke! Makes me angrier than normal 🤣
Finally got a copy of results. FT3 range is 3.1 to 6.8 and I am 5.3.
RBC slightly over at 5.03 (3.88 - 4.99)
Liver function test
Total protein hi 87 (60-80)
Globulin hi 46 (21-35)
CRP hi 11 (0-10)
No idea on other the above but all marked no action from GP.
Ordered the vit d test but not sure I managed big enough blood spots on card - have sent away anyway?!
your folate is very poor
You need daily vitamin B complex
Difference between folate and folic acid
healthline.com/nutrition/fo...
Many Hashimoto’s patients have MTHFR gene variation and can have trouble processing folic acid.
thyroidpharmacist.com/artic...
B vitamins best taken after breakfast
Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule)
Thorne currently difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay
Igennus B complex popular option too. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose
Post discussing different B complex
healthunlocked.com/thyroidu...
IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results
endo.confex.com/endo/2016en...
endocrinenews.endocrine.org...
In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12
Post discussing how biotin can affect test results
if not already on strictly gluten free diet
Definitely always worth trying
Only 5% of Hashimoto’s patients test positive for coeliac but a further 81% of Hashimoto’s patients who try gluten free diet find noticeable or significant improvement or find it’s essential
A strictly gluten free diet helps or is essential due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and may slowly lower TPO antibodies
While still eating high gluten diet ask GP for coeliac blood test first as per NICE Guidelines
nice.org.uk/guidance/ng20/c...
Or buy a test online, about £20
Assuming test is negative you can immediately go on strictly gluten free dietÂ
(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)Â
Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse
chriskresser.com/the-gluten...
amymyersmd.com/2018/04/3-re...
thyroidpharmacist.com/artic...
drknews.com/changing-your-d...
Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease
pubmed.ncbi.nlm.nih.gov/296...
The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported
nuclmed.gr/wp/wp-content/up...
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
restartmed.com/hashimotos-g...
Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.
Similarly few months later consider trying dairy free too. Approx 50-60% find dairy free beneficial
With loads of vegan dairy alternatives these days it’s not as difficult as in the past
Post discussing gluten
healthunlocked.com/thyroidu...
Thank you for all the info. Much appreciated. My folate was previously at 2.3 and told I was normal despite range starting at 4! I do now have methyl folate so will try to get it back to top end of range. Have been tested for coeliac and came back negative. Have tried cutting out gluten before with no change but worth a try again. Have ordered a vit d test too. Hashis PoTs and menopausal isnt a great combo lol
rather than just folate, a good vitamin B complex with methyl folate in
Can take several months for gluten free to become effective
May need dairy free too
Will give that a go. Thank you so much x
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