Looking for advice for my daughter.: Hi it's me... - Thyroid UK

Thyroid UK

141,242 members166,488 posts

Looking for advice for my daughter.

Otto11 profile image
5 Replies

Hi it's me again but this time I'm looking for advice for my daughter who has had Hypothyroidism since a teenager. Now 45. I've told her she needs to increase her thyroxine but thought I would ask the experts. They have never tested her T4 or T3. Her vitamins were tested last in October 2022 which were dreadful & I bought her a B12 spray as she forgets to take or is reluctant to take tablets.

Her results are all over the place & she has had them all early morning but I doubt she omitted her thyroxine the night prior to the tests as she wouldn't have know about that. (neither did I till I asked this group). Here are her results.

2018 TSH 6.1

2019 TSH 0.05

2020 TSH 0.13 Tested 2 months later TSH 0.05

2021 TSH 0.07 Tested 2 months later TSH 5.4 then again 4 months later TSH 1.1

2022 TSH 0.48 Her vitamins were B12 290, Ferritin 24, Folate 92, & Vit D 39

2023 TSH 4.0

She currently takes 100mcg thyroxine x 4 weekly & 75mcg x 3 weekly

As you can see her Vitamin levels are very low but her GP has done nothing about any of it.

Next steps advice please

Written by
Otto11 profile image
Otto11
To view profiles and participate in discussions please or .
Read more about...
5 Replies
SlowDragon profile image
SlowDragonAdministrator

2022

TSH 0.48 Her vitamins were B12 290, Ferritin 24, Folate 92, & Vit D 39

2023 TSH 4.0

2022 too long ago now to advise on vitamins but clearly terrible

Just testing TSH completely inadequate…..but TSH over 2 is too high

Suggest she either

push to increase dose to 100mcg daily now and then get full thyroid and vitamin tests in 6-8 weeks

Or

Retest full thyroid and vitamins now

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/testing/thyro...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/signs-and-sym...

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Otto11 profile image
Otto11 in reply toSlowDragon

Thanks for your advice. I will get her to ask for another blood test if she can. If not she will need to do a private one. Thanks again.

SovietSong profile image
SovietSong

Disgraceful that your Daughter has been hypo since a teenager and T4 levels have not been tested.Best to do private testing as the GPs won't test T3.Id be on with surgery first thing in morning and insisting on 100mcg daily for two months then take the private test.I don't know of many people who are doing well on 89mcg daily.

Bearo profile image
Bearo in reply toSovietSong

I’m on this dose as I was slightly overmedicated on 100mcg - going to test very soon but this dose may be the best for me!

Otto11 profile image
Otto11 in reply toSovietSong

Thanks.

Not what you're looking for?

You may also like...

HELP FOR DAUGHTER STILL NEEDED PLEASE !!

I posted on behalf of my daughter 2 months ago with her Thyroid & Vitamin results and received a...
janey1234 profile image

new here need advice for my daughter

Hi, my 17 year old daughter was told she has sub clinical hypothyroid last sept, when she was...

Hi, looking for advice,

Hi, looking for advice, these are my bt results: march 2021: TSH 0.21, free T3 5.23, free thyroxine...
lesel profile image

Got GP appointment but what to say to get him to test anything more than TSH

Hi 3 months ago I wrote a post about my daughters results since 2018 & her vitamin levels which...
Otto11 profile image

Hypo advice please for my daughter

I would really appreciate some help with my daughter's thyroid evaluation bloods done with medi...
dizzy864 profile image

Moderation team

See all
SlowDragon profile image
SlowDragonAdministrator
Jaydee1507 profile image
Jaydee1507Administrator
RedApple profile image
RedAppleAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.