Buying T3 online,/over seas: HI, my doctor is... - Thyroid UK

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Buying T3 online,/over seas

Sugarplumb61 profile image
8 Replies

HI, my doctor is threatening to stop my T3 meds as its expensive, no he didnt say that its just what they are doingm and we all know.

Ive had years of pain on Levothyroxine and I ve had years of pleasure whilst I have been taking T3.

So I know I do not want to be taken off the T3.

Does anyone know of a reputable company that will supply me T3 if I lose my NHS supply.

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SlowDragon profile image
SlowDragonAdministrator

You haven’t posted for over 3 years

Please write a new post with most recent thyroid and vitamin results

Plus what dose and brand levothyroxine and T3 currently taking

And what vitamin supplements

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

On T3 - day before test split T3 as 2 or 3 smaller doses spread through the day with last dose 8-12 hours before test

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/testing/thyro...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/signs-and-sym...

Tips on how to do DIY finger prick test

See detailed reply by SeasideSusie

healthunlocked.com/thyroidu...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Here’s link for how to request Thyroid U.K.list of private Doctors but also list of recommended thyroid specialist endocrinologists who will prescribe T3

Ideally choose an endocrinologist to see privately initially and who also does NHS consultations

thyroiduk.org/contact-us/ge...

SlowDragon profile image
SlowDragonAdministrator

Does anyone know of a reputable company that will supply me T3 if I lose my NHS supply.

Private messages only please

Jazzw profile image
Jazzw

It’s not as expensive as it used to be. And some brands are much cheaper.

bnf.nice.org.uk/drugs/lioth...

You are worth the expense. Don’t let your doctor decide whether you’re worth the money—cos you absolutely are. Fight this. You’re well on liothyronine. And if going back to levothyroxine only will make you ill, it won’t be a cost saving in the long run.

Sparklingsunshine profile image
Sparklingsunshine

Normally I was under the impression that if an NHS Endo had initiated T3 your GP couldn't just stop it, especially if they agreed to take over the cost of prescribing, but I'm happy to be corrected.

ThyroidieGriaffe profile image
ThyroidieGriaffe

Hi sorry to hear you are being threatened with this. I hooe you fight this if you can. National guidance is no one should be re reviewed if they have been seen by a NHS endo, unless there is a clinical reason. Cost is not a clinical reason. Also, the national guidance is that a GP can not deprescribe. You would need to be referred to a consultant. You can pick the endocrinologist, and I suggest you pick one known to be T3 open-minded. This can actually cost more as a process. A single referral to an endo costs the NHS anout £330. There are resources on TUK and ITT on this. You will need to be on top of your test results. If these are in range you can strongly argue not to be referred. See Slowdragons reply on test results. Good luck.

Sugarplumb61 profile image
Sugarplumb61 in reply to ThyroidieGriaffe

HI,

Thank you for all this information. Im terrified of being taken off Liothyrine and my health going back to what it was like. I suffer with weight gain and lethargy. Im so careful and attend Slimming world , Id rather not suffer. Do you know of any suppliments that mimic Liothyrine perhaps.

ThyroidieGriaffe profile image
ThyroidieGriaffe in reply to Sugarplumb61

Hello there is nothing that mimics T3. Apart from.fighting the GP and using the national guidance that a GP cannot deprescribe I suggest you get all you vitamins in order and blood tests. The admin are really good on the support for the vitamins. On fighting it make sure they cannot say what you have is anything else. Read the nhs national guidance that is on line or pop onto ITT if it's not on the hub as a referenced file or post. I know the fear having been there and fought, good luck.

waveylines profile image
waveylines

If it's a GP threatening to stop your T3, Liothyronine then he/, she cannot do so without Endo advice. What I would do is be lining up an Endo quietly so if you have to resort to have to seeing one again make sure its one that you choose. Be very picky over who that is because many are not T3 friendly. Who was it who prescribed it initially? Are they still around?This idea that they can just stop a critical thyroid hormone like Liothyronine is a complete nonsense. If it's come from your GP hopefully they will back down from their nonsense!

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