private test results

[Einaling]

help need some clarity please

[Jaydee1507 Administrator]

Do you also have results for FT4 & FT3? Please post them.

[Einaling in reply to Jaydee1507]

Yes

Clear

[SlowDragon Administrator]

Previous post 16 days ago your TSH was much higher

healthunlocked.com/thyroidu...

This suggests autoimmune thyroid disease…..levels can vary significantly day by day…hour by hour

just testing TSH is completely inadequate

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Also both TPO and TG thyroid antibodies tested at least once

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

what time was this test done

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/testing/thyro...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/signs-and-sym...

Tips on how to do DIY finger prick test

See detailed reply by SeasideSusie

healthunlocked.com/thyroidu...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

[tattybogle in reply to SlowDragon]

note . According to previous post Einaling was taking 5mcg carbimazole ( for last 20 yrs ) but has decided to stop taking it since previous test , hence lower TSH now .

[Einaling in reply to tattybogle]

Yes that’s correct thank you

[Einaling in reply to SlowDragon]

Yes full image

Clear

[SlowDragon Administrator in reply to Einaling]

Well at moment your Ft4 and Ft3 are very low

How long since you stopped Carbimazole

When were vitamin levels last tested

What vitamin supplements are you taking

[Einaling in reply to SlowDragon]

I get b12 injections every 8 weeks. I take my own multivitamins gp has never mentioned a vitamin test.

[Einaling in reply to Einaling]

Stop Carbimazole 2 weeks ago

[SlowDragon Administrator in reply to Einaling]

Tested too soon then

Only ever test 6-8 weeks minimum after any changes

TSH has altered …..but Ft4 and Ft3 have not ….yet

Multivitamins never recommended on here

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

exactly what multivitamins are you taking

Suggest you stop. And only take daily vitamin B complex and daily vitamin D

Request GP test full iron panel for anaemia including ferritin

Plus vitamin D

[Einaling in reply to SlowDragon]

It’s a menopause supplement called menopace. I will stop it today and get the recommended B & D vitamins. I appreciate this help you guys have amazing knowledge 🙏🏻

[Einaling in reply to SlowDragon]

can I continue with these?

Are these ok to take?

[SlowDragon Administrator in reply to Einaling]

No …iron blocks absorption and never take iron unless tested and low

Iodine not recommended for anyone with thyroid issues. It use to be used to treat HYPERthyroid patients

[SlowDragon Administrator]

as you get B12 injections it’s recommended to also take daily vitamin B complex

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid)

This can help keep all B vitamins in balance and will help maintain B12 levels between injections too

Difference between folate and folic acid

healthline.com/nutrition/fo...

B vitamins best taken after breakfast

Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule)

Thorne currently difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay

Other options

healthunlocked.com/thyroidu....

Igennus B complex popular option too. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg)

Post discussing how biotin can affect test results

healthunlocked.com/thyroidu...

helvella.blogspot.com/p/hel...

Test vitamin D twice yearly when supplementing

NHS private testing service

vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.

There’s a version made that also contains vitamin K2 Mk7.

One spray = 1000iu

amazon.co.uk/BetterYou-Dlux...

It’s trial and error what dose we need, with thyroid issues we frequently need higher dose than average

GP will often only prescribe to bring vitamin D levels to 50nmol.

Some areas will prescribe to bring levels to 75nmol or even 80nmol

leedsformulary.nhs.uk/docs/...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

But improving to around 80nmol or 100nmol by self supplementing may be better

pubmed.ncbi.nlm.nih.gov/218...

vitamindsociety.org/pdf/Vit...

[Einaling in reply to SlowDragon]

Sound advice thank you so very much 😊

[SlowDragon Administrator in reply to Einaling]

Come back with new post once you get vitamin D and ferritin results

Never supplement iron without doing full iron panel test for anaemia first and retest 3-4 times a year if self supplementing. It’s possible to have low ferritin but high iron

Test early morning, only water to drink between waking and test. Avoid high iron rich dinner night before test

Medichecks iron panel test

medichecks.com/products/iro...