Still no joy from Doctor 🤦: After sending my... - Thyroid UK

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Still no joy from Doctor 🤦

Humphre profile image
16 Replies

After sending my private blood results to Dr refused to increase levo had phone appointment, kept insisting TSH suppressed & danger of osteoporosis. I tried to keep calm to explain my thoughts & where I'd research my information. Dr then asked which lab I'd used & where was it..... Quite upset/annoyed after so I wrote him an email with the vitamin regime, where the lab is(Medichecks) so I then end up with a call from medical centre by pharmacist who again suggested reduce levo again refused and went through vitamin regime so we left it at blood test in 2-3months. When I checked on my NHS app only put figures in wrong & felt I was on to much Vit D 10,000iu + AdCal 10mg, anyway see how it goes. Had B12 equivalent at my surgery

426 (110-914) which I think is low so I'm taking B12(methylcobalamin) 1300iu with MSM 130mg planning another private blood test just to see if an improvement.

Now gone gluten free, dairy free next week & I've stopped coffee & tea😥 🤞I'm now on right track but amazed how little doctors know or even care so follow the outdated guidelines.

Thanks for reading

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Humphre profile image
Humphre
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16 Replies
RedApple profile image
RedAppleAdministrator

Humphre, You could send this paper to your GP/pharmacist. It's written by the now retired endocrinologist Anthony Toft

Thyroid hormone replacement – a counterblast to guidelines

tpauk.com/main/wp-content/u...

See end of third page summary, in particular this:

2. We can prescribe doses of LT4 which do result in TSH suppression, but are associated with unequivocally normal serum T3 concentrations as I am unaware that this combination of results has ever been proved a risk factor for atrial fibrillation or reduced bone mineral density, and why should it if the level of the active hormone is normal?

Humphre profile image
Humphre in reply toRedApple

Thank you for this information I will look at & digest then send it to the doctor & pharmacist & see what happens.

pennyannie profile image
pennyannie in reply toRedApple

NIKEGIRL - Point 2 above : I would think the same applies if on NDT ;

waveylines profile image
waveylines

Well done for making a stand. It's hard but nothing is that clear cut... Not like the medics try to make out.. So once you ask them to substantiate their claims with evidence, most of the time they can't. And if they do it leads to a discussion...

On the dairy/gluten front. Try excluding one at a time for about three months. Not everyone benifits from cutting gluten or dairy out. For me gluten was a must but not dairy. For others neither helps. If you do both at once you won't know which..

Humphre profile image
Humphre in reply towaveylines

Thank you, I've had more information & support here than at my medical centre. Yes that's what I aim to do been gluten free about two weeks, soya already cut out. Dairy next as I've some kefir & sheep cheese to finish have found stomach not always happy plus I've to remember the food intolerances I have & ovoid those too

Anthea55 profile image
Anthea55

I like this link to the Thyroid UK website. It lists several myths of hypothyroidism, including the myth that a suppressed TSH leads to Osteoporosis. Assume that your doctor knows what a 'myth' is.

thyroiduk.org/further-readi...

SlowDragon profile image
SlowDragonAdministrator

What was folate result

Was vitamin D tested

With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a separate B12 supplement and add a separate vitamin B Complex after a week

Then once your serum B12 is over 500 (or Active B12 level has reached 70), you may be able to reduce then stop the B12 and just carry on with the B Complex.

If Vegetarian or vegan likely to need ongoing separate B12 few times a week

Very effective B12 drops

natureprovides.com/products...

Or

B12 sublingual lozenges

uk.iherb.com/pr/jarrow-form...

cytoplan.co.uk/shop-by-prod...

B12 range in U.K. is too wide

Interesting that in this research B12 below 400 is considered inadequate

healthunlocked.com/thyroidu...

Low folate

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid)

This can help keep all B vitamins in balance and will help improve B12 levels too

Difference between folate and folic acid

healthline.com/nutrition/fo...

Many Hashimoto’s patients have MTHFR gene variation and can have trouble processing folic acid.

thyroidpharmacist.com/artic...

B vitamins best taken after breakfast

Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule)

Thorne currently difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay

Other options

healthunlocked.com/thyroidu....

Igennus B complex popular option too. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12

Post discussing how biotin can affect test results

healthunlocked.com/thyroidu...

Humphre profile image
Humphre in reply toSlowDragon

Thank you will look into those & add accordingly 👍

SlowDragon profile image
SlowDragonAdministrator

How much levothyroxine are you currently taking

Which brand

Do you always get same brand at each prescription

well done on gluten free…..have you seen any improvement so far?

Retest 2-3 months after going dairy free

Humphre profile image
Humphre in reply toSlowDragon

I'm on a 100mcg I think I'd do better on 125 eod as my weight is around 74kgs but I'm happy to go with a B complex & see how I do. Brand at moment is Aristo but my pharmacy has trouble getting same brand. Look at pharmacy 2u but couldn't guarantee same brand. It is on my prescription for Accord I've requested change to Aristo. Yes feeling better miss my bread, made my own but used coconut oil & I've a food intolerance silly me I forgot.

No plans as yet to blood test need to give supplements to 'bed in' thanks for your input.

SlowDragon profile image
SlowDragonAdministrator in reply toHumphre

Best shop bought GF bread - Waitrose sliced brown seeded

Get a separate dedicated GF toaster for you to use

Aristo (now also called Vencamil) only currently available as 100mcg tablets

Humphre profile image
Humphre in reply toSlowDragon

Thanks will check it out👍

waveylines profile image
waveylines in reply toHumphre

I like Promise GF multi-grain bread. Available in Tesco & Sainsbury. Expensive but tasty.

Humphre profile image
Humphre in reply towaveylines

I've tried Warburtons gf free which is ok & my sis in law has suggested Becki Exccel loads of recipes but thanks for the tip

waveylines profile image
waveylines in reply toHumphre

Yes she is great. 😊😊👍

waveylines profile image
waveylines in reply toHumphre

Somebody on here makes their own GF bread but can't remember who....

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