I am long term Hashis suffer. I was for years on thyroid s. But due to supply problems and the stress of sourcing meds getting some thyroid s that was not up to scratch led my levels to go out of whack. for a while I tied synthetic t3 but I felt that aggravated some one term joint pain issues. I suffer a lot with tendon and ligament pain. For the last 20 years the pain has cycle to different parts of my body for months on end sometimes several things at once. I can’t recall being pain free much at all. The issues range from plantar fascia, knee issues, Achilles, wrists tendonitis, severe neck pain, tennis elbow, frozen shoulder. Pain in fingers and feet. Sciatica. I cope with it and get on things. I work part time and and currently at uni and home educating my teen. Sometimes it’s gets hard and I feel scared for the future. The drs have referred for physio and rheumatology they have ruled out ra and sjorgens. The said I have fibro but I don’t know. My physio said some people just have tendon and ligament problems. So who knows. I have meds I take when I can’t bear it . I don’t like taking too much prescription meds.
So long story short I am now just on for 112.5 mcg. Of Levo. My last bloods and I only have tsh was. 1.85 I feel better than for a while in certain ways, but I am rocking two frozen shoulders which really sucks. Moving in bed at night is agony and getting going first thing is really tough. My energy levels are ok most days if I keep going until about 7-8 and then I really just want to go to bed. If I stop and sit I get tired.
I supplement with vit d, selenium, b complex, magnesium and iron for anaemia. And probiotics.
My main issue that is bothering me most though, even above the pain is mood.
I’m not depressed, but I feel in a bad mood a lot, irritable, angry no patience. Like I am pre-menstrual almost.
Things really annoy me and I feel like a resentful angry women and this is not who I am at all.
I have some stress in my life, but for the most part I feel I have a really good life, great kids,beautiful grandchildren good husband, good friends. I live in a beautiful place I am very fortunate.
So why am I p***** off most of the time. I can control my grumpiness with my kids, but I feel my husband gets the brunt of it. He is great he knows it’s not me, but it doesn’t stop me from feeling bad.
On the T3 I didn’t get this except just before my period.
My heart feels like it is becoming hard and angry and I don’t know what to do. I don’t want to make. MY pain worse so am scared to try t3 again.
Any supplement suggestions would be helpful. Or any other advice.
thanks for reading
Jeanette
Written by
redjay999
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Oh, my poor dear! You sound very, very hypo. Everything you say screams hypo. And your TSH is too high for someone on thyroid hormone replacement.
Just testing TSH is totally inadequate. You need full thyroid testing:
TSH
FT4
FT3
vit D
vit B12
folate
ferritin.
There is no supplement that is going to help you with your mood changes. You need more thyroid hormone - you can only replace a hormone with a hormone, not a nutrient or a drug.
It sounds like you have seen a bunch of very ignorant, uncaring doctors. They only 'diagnose' people with fibro when they have no idea what's really wrong with them.
Why did you stop the T3? And why would you think it would make your pain worse? T3 is what your body needs. Every single cell in your body needs T3 to function correctly, and when they don't get enough, that's what causes symptoms like pain and mood instability.
getting some thyroid s that was not up to scratch led my levels to go out of whack.
Hmmm... More like the Hashi's playing you up than a problem with the Thyroid S. But, difficult to say without full testing.
Please add most recent thyroid and vitamin results
Just testing TSH is completely inadequate
First step ……Get FULL thyroid and vitamin testing
Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine
Do you always get same brand levothyroxine at each prescription
For full Thyroid evaluation you need TSH, FT4 and FT3 tested
Also both TPO and TG thyroid antibodies tested at least once
Very important to test vitamin D, folate, ferritin and B12 at least once year minimum
About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high thyroid antibodies
Autoimmune thyroid disease with goitre is Hashimoto’s
Autoimmune thyroid disease without goitre is Ord’s thyroiditis.
Both are autoimmune and generally called Hashimoto’s.
Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease (hashimoto’s)
In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)
Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
If when On T3 - day before test split T3 as 2 or 3 smaller doses spread through the day with last dose 8-12 hours before test
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
List of private testing options and money off codes
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