hi I have had labs done at Genova for thyroid - been ongoing 16 years never really felt well - have ongoing heart and anxiety issue so would like to start NDT - where do I buy it and which one please
I can off Levo 150 mgrms and heart palpitations and tummy issues better but was exhausted
I have gone back on levo 100 mgrgms
TSH off levo last week was 18.9
Others not optimal bit feel terrible
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What were your results on 150mcg levothyroxine
Which brand of levothyroxine were you taking
Did you always get same brand at each prescription
Retest thyroid levels after being on 100mcg levothyroxine every day for 6-8 weeks
Vitamin levels likely crashed right down if you stopped taking levothyroxine
When were vitamin levels last tested
What vitamin supplements are you currently taking
For full Thyroid evaluation you need TSH, FT4 and FT3 tested
Also both TPO and TG thyroid antibodies tested at least once
Very important to test vitamin D, folate, ferritin and B12 at least once year minimum
Have you ever had thyroid antibodies tested for autoimmune thyroid disease
About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high thyroid antibodies
Autoimmune thyroid disease with goitre is Hashimoto’s
Autoimmune thyroid disease without goitre is Ord’s thyroiditis.
Both are autoimmune and generally called Hashimoto’s.
Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease …….but especially if sudden reduced dose levothyroxine
20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis
In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)
Recommended that all thyroid blood tests early morning, ideally just before 9am and last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
List of private testing options and money off codes
thyroiduk.org/getting-a-dia...
Medichecks Thyroid plus antibodies and vitamins
medichecks.com/products/adv...
Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins
bluehorizonbloodtests.co.uk...
Only do private testing early Monday or Tuesday morning.
Link about thyroid blood tests
thyroiduk.org/getting-a-dia...
Link about Hashimoto’s
thyroiduk.org/hypothyroid-b...
Symptoms of hypothyroidism
thyroiduk.org/wp-content/up...
Tips on how to do DIY finger prick test
healthunlocked.com/thyroidu...
BEFORE considering adding NDT …..you need to know what current levels are …..and vitamin levels and ….if Hashimoto’s…probably need to trial strictly gluten free/dairy free diet too
Welcome to the group. If you could complete your profile it helps members understand your thyroid journey so far and offer recommendations better. Click on your image icon to start.
Members may lie to getto know you a little and try and help you with your current replacement hormone regime before they part with their source for NDT.
As requested replies with any information by PM only as we are not allowed to name sources/doctors in the group. This post will be closed to further replies.
When you receive a message with a recommendation, please do not assume it is genuine.
Scammers are joining the forum on a very regular basis and messaging members with their assertions that they have successfully purchased xyz medication from zyx source.
First, check the profile of the member that sent you the message. Are they a long term member with an active forum posting history? Or are they a recently joined member with little or no posting history?
Once you have what you think may be a genuine recommendation, please message a forum admin to ask whether the admin team have any feedback on the source you've been given.
Admins are not allowed to recommend sources, but we can tell you what, if any, feedback we've received about the source you've been given.
⚠️ Don't part with your much needed money until you are as sure as you can be that the source is genuine.
healthunlocked.com/thyroidu...
With a TSH of 18.9 you are clearly under replaced and need a dose increase. Do start another post so that members can make recommendations for your current treatment and help you to be well.
NDT shortage and where to get some!!!
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Where can I get T3?
