The issue of sourcing liothyronine (T3) medicines continues to be a difficult area. Without being able simply to publish a list of sources, we have to rely on the technical equivalent of word of mouth - that is, Private Messages.
If you want to ask where you can source liothyronine, I'd like to make the following suggestions and recommendations:
Write a brand new post. If people wish to respond, it should clearly be a response to you and not likely to be confused with other members on a thread started by someone else.
Don't write multiple posts. If you receive no information after a reasonable time, by all means post again. But don't have two or more requests going at the same time.
Make sure that you say which country you are in - or at least, that we can find it in your profile.
Explain whether you have a prescription or not, any special requirements, and some background. People are far more likely to help if they feel you understand what you are asking for.
Don't add a "me too" comment to another thread. Most especially, don't do that on threads that are years old. Such responses are very likely to be missed.
If you receive replies which are helpful, maybe add a comment at the end of your post saying something like: "Thank you to the members who sent me Private Messages. I now have sufficient information."
If someone makes it clear they are happy to be asked by Private Message where they managed to source liothyronine, then just send them a Private Message. There is no need to post "I'm sending a Private Message".
Finally, if you receive a Private Message, think carefully about who sent it and whether it is trustworthy. Check the member's profile. When did they sign up? Was it in the past few days? Have they posted or replied in the past? If you are not sure, wait. Ask an administrator if that source is known to be good.
Written by
helvella
Administrator
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Can this be stuck to the homepage perhaps? I don't know if threads can be a sticky and stuck at the top of the posts lists permanently or stuck to the homepage etc.
There is a pinned posts section to the right (depending on how you are viewing the site) but people rarely notice it, and almost never click on See all >
For those who are thinking of posting such sources, might I add the caveat that you find out who you're sending the response to as well and make sure they're what/who they say they are?
I was asked by the endocrinologist who hijacked my appointment in August from my usual one, specifically to withdraw my T3, to supply him with a list of my sources in a letter marked "Private & Confidential" so that his secretary wouldn't open it before he got it. I have no idea why he wanted that (he said it was so he could help other patients which, given his attitude throughout the consultation, I very much doubt) but I strongly suspect his motives were not good ones. After I posted that development, some other members here have come forward to say they'd had similar experiences with their endos.
If they are willing to resort to such practices, why not pose as fellow sufferers here to get their hands on the information?
Might I suggest that only the admins should supply that information, rather than the general membership? Members could forward the details to the admins if they found new sources, but only admins could disseminate it to other members.
I realise that it would add another layer of responsibility on the shoulders of our admirable admins, but it might safeguard the info a little better... just a thought.
So I guess we're back to my first suggestion then, and I would hope people would check who they're responding to before sharing that information.
We've already seen some of our sources being closed down, and although I have approximately 12 months' supply stocked up, I'm worried that whatever avenues we have left will be closed off too, especially post-Brexit...
The only thing I ever disagree with you about is posting on the main forum 'I'm sending a private message'. I think most of what we write is not only for the benefit of the original poster we're replying to, but to everyone else who might pass through and read it, including many who never write a word or ask any questions themselves.
Noting that we've sent a message gives information to all those people. Moderators and forum regulars see that the person has been replied to and isn't left hanging, others who might post a similar request see that it gets responses and that its accepted on the forum, the poster of such a message is indicating to others that they're willing to help with an enquiry. The list goes on.
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