It took me 8 years to get a diagnosis of Hashimoto’s ultimately via a private Endo and private blood tests as my GP was clueless. After a Hemi-T and with a TSH of 50 the NHS prescribed Levo. As I continued to feel rough I went back to my Endo and I tried NDT which also didn’t work as still tired, depressed etc. with all the usual symptoms. (When are the NHS going to recognise these symptoms and do proper blood tests and stop relying on TSH only).
That’s when I came across Paul Robinson who I will be eternally grateful to. I had already done two Cortisol saliva tests in the past which showed sub-optimal performance. I started CT3M with NDT and saw some improvement but I wasn’t really getting better. That’s when I discovered I have the DIO2 gene and decided to go cold turkey and drop NDT and switch to T3 only. After two weeks I started to feel better. I have just done another Cortisol saliva test and all my results have improved – see graph attached.
I’m sorry Paul Robinson had to suffer for so many years. His books are well worth the read and have pointed me in the right direction and I’m a CT3M convert.
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NDobby
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Sorry I am not familiar; if you had some genetic resistance to thyroid hormone, why would ndt not work the same as t3 since it contains t3 as well as t4? Anyways, at least you are getting there. Good to hear it. I will have to look into this man.
The amount of desiccated thyroid you'd need to take to get a high dose of T3, as needed in resistance to thyroid hormone, is huge. (Round about five grains to get 50 micrograms of T3 - and even then we have little good evidence for how much T3 is absorbed.) A combination of being expensive, including a vast amount of T4 that is not needed, and also having a substantial amount of excipients. All of these are reasons.
Interesting. Thanks. Sounds like I will look into it more because its good to know. Never tried t3 but i was thinking of trying it sublingually soon since ndt didn't work for me, which is why i was curious.
Yeah, i see what you mean, its also weird to stand out emptying capsules and the overall effort but i felt it was worth it. I tried this method for the first time yesterday and my fatigue almost lifted despite taking the same supplements for months; only this time it was sublingual. I'm not sure what is going on there but I feel sometimes it can be effective for some that don't absorb them well
NDobby Glad it is working. I always feel obliged to point out for others reading this that Paul Robinson himself states that this method is only for folks who have tested and shown to have low cortisol as well as hypo - otherwise you can make yourself very ill.
Ah Lalatoot it was you mentioned about making ‘one’ very ill by following Paul Robinsons CTM3 protocol. I have no reason to doubt you. It’s just Hidden has introduced some good observations. Can I ask what it is about this protocol which might make one very ill? It’s just I have had enough of that thank you and I would like to avoid any more if possible!
There are a few on here that have commented in the past that this made them very ill. Sorry I don't know more.However their comments made me Google the method and read about it. It is only for people with low cortisol. The dosing regime is based on this and will through things out of balance if you don't have low cortisol .
Right that is good. I have sent for a saliva test that is supposed to check this issue. Honestly I had no idea when I decided, whether or how it might be useful. It’s just those ‘important names’ all seem to think it’s a thing and I just could no longer ignore its possibilities. It’s a bit of a minefield. And it’s all expensive but no stone unturned.
I am glad you are feeling better! I bet you are so relieved.
I feel like we are in a very similiar situation but I’m trying my best to get optimal on NDT before completely ruling it out. How long did you go cold turkey from NDT before adding in T3? X
I might be wiser if I knew what CTM3 was. However very glad it’s working out for you. I have sent off for an adrenal test but honestly even when I get the results, no doubt it will be another huge learning curve. Why isn’t it simpler?
helvella I believe the reason that CT3M works sometimes and doesn’t at other times is due to the nature of the AI. If the issue is secondary (with the pituitary) CT3M could help by stimulating ACTH. If the issue is primary, with the glands themselves, no amount of stimulating a low ACTH will help. I think this is why people get such mixed responses to his technique.
Interesting. I am trying to do everything I can before attempting T3 again. So if the adrenals themselves are knackered, this is where adrenal support is necessary. Primary? However if it’s a lack of T3, it’s secondary and T3 could deal with it. CT3M would be a further perhaps more sophisticated pattern of dosing for some people? So the adrenal test will at least give a clue to adrenal impairment. Attempt support before T3?
That’s exactly how I see it at the moment arTistapple but I don’t really know why Paul doesn’t simply state this in his book/material that it is a good thing for secondary to try, but not for primary, as it would save a lot of time and stress for those who will ultimately find it fruitless waking yourself (and your partner potentially) if you knew beforehand. So maybe it isn’t this straight forward, but I don’t get how CT3M could ever help primary. I personally tried CT3M, and it did nothing, I have officially diagnosed primary.
OK. Like everyone on here, I just want to get it right and get on with life. But so far I seem to have been wrong with every hope - the main one KEEPING IT SIMPLE. Maybe Paul Robinson just needs to update his work. However I get the picture that really his experimentation has been done mainly on himself, so maybe that’s not his experience. It makes sense to me what you are saying but only yesterday someone mentioned that it could not be good for some people. I will need to trawl through again, find that someone and ask the question to them. Still what was an area I completely had no comprehension of (even although I have ordered a saliva test) suddenly begins to make some sense! I do read your posts but up until now “Duh”. I so much appreciate you getting back to me.
It is extremely confusing. I’ve had to take 6 months off work to get to grips with my health and sort this mess out myself, working through this minefield while hypo is tortuous, you are doing very well!
The thing that helped me the most was having a synacthen test, because when I got that done I could clearly see that firstly, yes I have an adrenal problem. And secondly, it’s primary not secondary. That has hugely informed how I go about treating myself. It could be worth it for you too if you suspect an adrenal problem. Do you do your dats? X
Well I had to stop working 2002 because nobody could find anything wrong with me. I have not been idle but it’s been excruciating. You could have knocked me down with a feather when told just over two years ago of diagnosis. Old medical records show subclinical but I was never informed - I trusted the b…….s. Something else I am obviously ignorant of - dats? I can check synacthen test, it’s obviously not the saliva test.
Oh you’ve been ill longer than me! I also had to wait 8 years for diagnosis, then another 8 to learn to ignore the endos who said T4 mono is enough 🤦♀️
OK stupid me. I have been doing the temperature thing but really as Dr. Peat said. Unfortunately I have a digital thermometer. My average seems to be about 35.5. I might ask you more about this later when I get my results if you do not mind too much?
Ofc I don’t mind 🙂 but I’m not an expert, I’ll just try to help if I can. Btw - waking temperature is your thyroid, DATS is your adrenals. If your waking temp is 35.5 then that would suggest you are very hypo ☹️
This is fantastic you are feeling well. Sadly Paul’s method will not help with primary adrenal insufficiency, so can be hit and miss when it comes to results. Very glad you got the results you need 🙏🤩
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