Hi all. Would be grateful for your assistance. - Thyroid UK

Thyroid UK

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Hi all. Would be grateful for your assistance.

Dadof5 profile image
10 Replies

As I have stated in my previous posts I’m hypothyroid and believe I’m being under medicated at the moment. I’m having a problem getting a face to face with a doctor at my surgery so I’ve written my doctor a letter hoping she would contact me to arrange an appointment. No luck so tried doing an e-consult thought I was going to get at least a phone call. No luck just an email reply saying my last blood test result was fine and if I was still worried about my weight gain to book a blood test! We all know that will just be a TSH test don’t we. So I now have to resort to ringing up at 8 am every morning hoping to get a face to face. So to that I’m trying to be prepared. I have had lots of very good advice on here but don’t want the doctor to use the old people on forums aren’t doctors so don’t know what they are talking about excuse. So does anyone have links to the following articles that I print out.?

Why FT4 and FT3 levels should be 60% - 70% through range.

Why GP should test vitamin D, folate, ferritin and B12 yearly?

Why the above needs to be optimal for high Levothyroxine dosages? And what is optimal?

Anything that says hypothyroidism should be treated before starting patients on treatment for type 2 diabetes of cholesterol problems?

thanks in advance

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Dadof5
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10 Replies
SarahJane1471 profile image
SarahJane1471

morning. If you search for tattybogle she has a post which gives all the links.

Looking at your last results you have room for an increase of your Levo.

tattybogle profile image
tattybogle in reply toSarahJane1471

This post Dadof5 .... use these references to show an increase in dose which takes your TSH lower than 1.8 is perfectly safe / even recommended. healthunlocked.com/thyroidu.... (*one has ref to cholesterol)

the above ref's work as long as TSH stays over 0.4/0.5 on the higher dose.

GP does NOT know what TSH will go to on a higher dose unless they try it .. so you re asking for "a trial of higher dose to see if it improves symptoms".

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

if TSH is lower than 0.4 after a few months on higher dose, but you feel better and want to keep that dose .... then this post contains the evidence you need to show TSH between 0.04 -0.4 has no greater risks than TSH in range 0.4 - 4 healthunlocked.com/thyroidu....

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

there are no proper references to 60/70% being needed / better .. that is just a observation that often turns out to be true , but it is not true for everyone .

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

NHS Cholesterol link and Vits stuff ~i'll add them in a bit if no one else has done it first .

tattybogle profile image
tattybogle in reply totattybogle

ferritin healthunlocked.com/thyroidu...

tattybogle profile image
tattybogle in reply totattybogle

nhs.uk/conditions/statins/c...

" If you have an underactive thyroid (hypothyroidism), treatment may be delayed until this problem is treated. This is because having an underactive thyroid can lead to an increased cholesterol level, and treating hypothyroidism may cause your cholesterol level to decrease, without the need for statins. Statins are also more likely to cause muscle damage in people with an underactive thyroid".

tattybogle profile image
tattybogle in reply totattybogle

B12 ( perhaps .. haven't read it ) healthunlocked.com/thyroidu...

tattybogle profile image
tattybogle in reply totattybogle

Ah ha ....here it is ..i knew i had read a paper somewhere that supports testing for :

Vit B12

Vit D

Iron

Pernicious Anemia

Ultrasound

The paper is the subject of this post healthunlocked.com/thyroidu...

direct link to paper link.springer.com/article/1...

tattybogle profile image
tattybogle in reply totattybogle

this page from ThyroidUK charity .. (NHS information for patients directs patient to ThyroidUK charity for advice on hypothyroidism )

thyroiduk.org/if-you-are-hy...

Go down to 'Managing with hypothyroidism ' ..list of stuff re. Vits

SlowDragon profile image
SlowDragonAdministrator

Previous post 30 days ago

Monitor My Health test results show you are not on high enough dose

How long have you been on 150mcg 

Do you normally take levothyroxine waking or bedtime 

FT4: 14.5 pmol/l (Range 12 - 22) 

Ft4 is only 25.00% through range 

FT3: 4.4 pmol/l (Range 3.1 - 6.8)

Ft3 better at 35.14% through range 

Most people when adequately treated will have both Ft3 and Ft4 at least 60-70% through range 

Your results show you are not on high enough dose levothyroxine 

Print out copy of results and give to GP

Email/post results from Monitor My Health (also include info that this is NHS private testing service)

request in writing 25mcg dose increase in levothyroxine

Make sure you get same brand levothyroxine at each prescription

Bloods should be retested in 6-10 weeks

Meanwhile you need vitamin D, folate, ferritin and B12 tested

Either try to get GP to test

Or test privately

You could test vitamin D now here

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

Looking for Vitamin D to be at least over 80nmol

What vitamin supplements are you currently taking

Include the rest at next test via Monitor My Health

Monitor My Health also now offer thyroid and vitamin testing, plus cholesterol and HBA1C for £65 

(Doesn’t include thyroid antibodies) 

monitormyhealth.org.uk/full...

10% off code here 

thyroiduk.org/getting-a-dia...

Dadof5 profile image
Dadof5

Thanks all this is just the sort of information I was looking for.

jools1213 profile image
jools1213

HiI'm not an expert on anything except my own experience. I had radio- iodine treatment in 2010 for Graves disease. It took three years and a lot of blood tests before I was stable on 125mcg levothyroxine. The endocrinologist was very supportive but told me right at the beginning it was going to be a long road and he was right. I kept going hypo and put on three stone. I lost the weight eventually via weight watchers. I've been stable for 10 years but it was a long haul. I just had to keep plugging away

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