Update in current treatment!

[Humphre]

After bloods & stool samples I'm declared normal😅 the Dr says my thyroid is stable so need to worry. I don't think they listen as I believe the thyroid & acid reflux goes hand in hand, so I'm to have an endoscopy to see why I continue with symptoms meanwhile back on the lansoperzole (off for 4weeks) I'm watching out for triggers being careful & managing. I've started taking zinc 15mcg to see if that helps. Otherwise I'm doing better than some. We'll see how I go.

[SlowDragon Administrator]

previous post shows you are highly likely not on high enough dose levothyroxine having had dose reduced

healthunlocked.com/thyroidu...

Come back with new post once you get FULL Thyroid and vitamin results

[SlowDragon Administrator]

Also if your lactose intolerant and on dairy free diet you should be getting lactose free levothyroxine

Are you also on gluten free diet

[Humphre in reply to SlowDragon]

No not on gluten free but I'm careful how much I eat and what it is. I can tolerate a little of gluten etc but it's the amount my eyes are like dinner plates but my stomach is s saucer 😊 so little & often. My feelings are thyroxine needs a tweak but we'll see on going.

[Anthea55]

You mention acid reflux and lansoprazole.

Acid reflux may actually be alkali reflux. Many of us have low stomach acid, not high stomach acid. Many doctors don't know about this unfortunately. Lansoprazole is meant to reduce stomach acid so making things worse.

Low stomach acid is called 'hypochlorhydria'. Here are 2 links which explain more about it.

healthline.com/health/hypoc...

drmyhill.co.uk/wiki/Hypochl...

You can do a simple at home test to check your stomach acid - it's called the burp test.

I hope this helps. You'll find more discussions on here about it.

[Humphre in reply to Anthea55]

Thank you for this information I'll check it out, burp test works fine though I've to restart lansoperzole tomorrow but I'm thinking I might wait & see how I do

[Humphre in reply to Humphre]

Hi just read one of the links & noticed that I've just started on zinc supplement & I believe l'm low on B12 so I'll see how that goes before getting back on PPI 👍

[Anthea55 in reply to Humphre]

I've just found a recent post/discussion about PPI.

healthunlocked.com/thyroidu... which you might find helpful.

[Humphre in reply to Anthea55]

👍 interesting read, I'm reluctant to go back on ppi 🤔 as means I'll have to be awake early to take 1st lot of meds...... I'll have to come up with plan thanks👋

[SlowDragon Administrator]

Thousands of posts on here about low stomach acid 

healthunlocked.com/search/p...

But never assume you have low stomach acid 

healthygut.com/4-common-bet...

Web links re low stomach acid and reflux and hypothyroidism 

nutritionjersey.com/high-or...

stopthethyroidmadness.com/s...

thyroidpharmacist.com/artic...

 How to test your stomach acid levels 

healthygut.com/articles/3-t...

meraki-nutrition.co.uk/indi...

huffingtonpost.co.uk/laura-...

lispine.com/blog/10-telling...

Protect your teeth if using ACV with mother 

healthunlocked.com/thyroidu...

Ppi 

Omeprazole or Lansoprazole will lower vitamin levels even further 

gov.uk/drug-safety-update/p...

webmd.com/heartburn-gerd/ne...

pharmacytimes.com/publicati...

PPI and increased risk T2 diabetes 

gut.bmj.com/content/early/2...

Iron Deficiency and PPI 

medpagetoday.com/resource-c...

futurity.org/anemia-proton-...

onlinelibrary.wiley.com/doi...

sciencedirect.com/science/a...

Recommend getting full thyroid and vitamin levels tested as next step

Looking for Ft3 at least 60-70% through range and Ft4 probably a little higher

Test early morning and last dose levothyroxine 24 hours before test

Do you always get same brand levothyroxine at each prescription

[Humphre in reply to SlowDragon]

My Dr's are hard to talk to re blood test etc & no I get different brands all the time I'll speak with pharmacy see if they can supply same brands each time for all, great more reading😜 👍

[SlowDragon Administrator in reply to Humphre]

Well obviously you will need to test privately like thousands of U.K. patients

Do you know if your hypothyroidism is autoimmune thyroid disease usually diagnosed by high thyroid antibodies ?

cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

Monitor My Health also now offer thyroid and vitamin testing, plus cholesterol and HBA1C for £65 

(Doesn’t include thyroid antibodies) 

monitormyhealth.org.uk/full...

10% off code here 

thyroiduk.org/getting-a-dia...

if you need to test thyroid antibodies too

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

[Humphre in reply to SlowDragon]

Thank you I'll look into that maybe the only way to get the best care. 😊

[SlowDragon Administrator in reply to Humphre]

if you have never had thyroid antibodies tested in past by NHS recommend you include these in testing

[Humphre in reply to SlowDragon]

I haven't a clue, when I was diagnosed, by a locum Dr, I was given very little information my levothyroxine went up to 150mcg per day at one point now down to 100 one day & 75the next nothing about any anti bodies or even vitamin levels. Recently diagnosed with osteopenia in a couple of areas plus osteoarthritis in wrist which in damp weather is painful. I'm generally well but for this on going lump in throat & phlegm.

👍For all this information

[SlowDragon Administrator in reply to Humphre]

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high thyroid antibodies 

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis. 

Both are autoimmune and generally called Hashimoto’s.

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis 

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism 

thyroiduk.org/wp-content/up...

Low vitamin levels are extremely common with autoimmune thyroid disease…..especially low vitamin D, low B vitamins and low magnesium

For good bone health frequently necessary to supplement vitamin D, B complex and magnesium continuously to maintain optimal levels

Approx 80% of autoimmune patients who try strictly gluten free diet find noticeable or significant improvement. But always test for coeliac before considering trial on strictly gluten free diet

[Humphre in reply to SlowDragon]

Wow in a nutshell👍 no idea which is me but the vitamins is the area I think I'm struggling. From a food intolerance test it showed I was lacking in B12 & 5, vit C, Betakaroten, L-Carnitine & Adenine Arginine also low in pepsin. I shall study some more methinks thanks