Drs appointment update! What do I do now??

TSH 1.9 (0.3-5.5)

Serum thyroid peroxide antibody concentration 143.6 (0.0-60.0)

Dr requested to see me about this one, and so yesterday was my appointment and my dr basically told me my results were nothing to be concerned about and I'm probably depressed and I should see the weight management nurse to tackle my weight and then I should feel better!! .... Ok I've got a low mood but not depressed, I'm over weight yes but I'm not massive! So my symptoms inc vitiligo that's getting worse was nothing to do with the thyroid.

I really not sure which way to turn 😞

9 Replies

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  • Sgill80,

    Thyroid peroxidase antibodies are positive for autoimmune thyroid disease (Hashimoto's) which causes 90% of hypothyroidism in the UK, Europe, USA and Canada. 100% gluten-free diet may improve symptoms and reduce antibodies and may slow progression to hypothyroidism.

    chriskresser.com/the-gluten...

    thyroiduk.org.uk/tuk/about_...

    Taking 200mcg selenium daily will support thyroid and may improve thyroid levels slightly. You can also supplement NutriThyroid which many people find helpful.

    I've been low weight all my life but 4 or 5 years before I was diagnosed with Hashimoto's I went up 2 dress sizes in 6 months and eventually gained 13kg without changing my diet at all. I had no Hashi/hypothyroid symptoms other than a tendency to feel cold which wasn't anything new, and generally felt very well. I then lost 13kg in 10 months and was feeling very ill. Antibodies were 230 but thyroid levels were euthyroid (normal). I was told symptoms were non-thyroidal as Hashi's is asymtomatic and I was euthyroid. I had a thyroidectomy and symptoms improved almost immediately. I believe my doctors were wrong and euthyroid Hashi's does cause symptoms.

    medscape.com/viewarticle/76...

    Vitiligo is a separate autoimmune condition unrelated to thyroid but autoimmune conditions do seem to hunt in packs and it is not uncommon to have several.

    __________________________________________________________________________________________

    I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.

  • Hi Clutter,

    I am the same as you in that I have high antibodies and symptoms but euthyroid results. I just wondered how you managed to get a thyroidectomy with your euthyroid results?

  • Sheepcoat,

    I had a hemilobectomy to remove a large nodule compressing my trachea. Tumour was malignant so I had completion thyroidectomy 3 months later.

  • Oh I see, so just goes to show that antibodies / nodules can cause symptoms with euthyroid results then. I have problems with breathing and am constantly having to keep taking deep breaths to intake enough oxygen (especially the day after exercise), but I've had breathing tests etc and they say everything is normal.

  • I had one white patch on my throat - before the Hashimotos diagnosis. Now gone :-)

  • A TSH of 1.9 without also testing free t4 and free t3 is waste of time since you may well have 2ndary/central hypothyroid

    Go back and request free t4 and free t3 on basis vitilgo is autoimmune and linked to hashis and tsh alone is insufficent if you have central hypothyroid

  • Hi Sgill80, it would appear you have Hashimotos Thyroiditis-it can be some time before your immune system has caused enough damage for your TSH to rise so now is the time to react.

    Having one Autoimmune is rare, we normally have 2/3 if not more - your antibodies are attacking different tissues in your body and so you need to calm the immune response.

    Do some research, arm yourself with all your info and then go back to your doctor - you need a referral for an Endochronologist.

    A lot of us here (including myself) have Hashimotos so we will help you with anything you need 💟

  • Thank you! I have been doin some research, I just don't feel confident enough to take on my dr over this. I am going to request to see another dr and see if I can get anywhere. I just feel my last dr wasn't taking my symptoms seriously.

    I've even considered self medicating but wouldn't know where to start, but I'm going to keep bugging my dr to see if I get anywhere first.

    thank you all for your advice.

  • It would be a very good idea to get a full set of tests before embarking on self-medication.

    TSH

    FT4

    FT3

    vit D

    vit B12

    folate

    ferritin.

    If you look on the main page of TUK, you will find information about getting private tests. Good luck! :)

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