After reading your kind suggestions of what helped you I rang the surgery, I was lucky to get an phone call appointment (not my doctor)a different doctor of course. He felt that my thyroxine levels were steady and had been for the last few years but after listening to my symptoms decided we'd start from scratch, so stool samples, FBC to include Ferittin & CA125, I'd to stop lansoperzole with a another stool test after 2 weeks. Appointment booked to discuss with yet another doctor in new year.🤦 So I'm struggling with reflux big time so looked up "The Acid Reflux diet" by Dr Jonathan Aviv so much in depth information which I've identified with myself, the diet is interesting 🤞will help ease my discomfort. Defo need an endoscopy to see what the damage is. Now no alcohol, chocolate or coffee nor dairy & careful with read meat oh & all processed food all triggers.Wish you all a Merry Christmas & a happy New Year. Will update then😁
Update from recent imput from you all regarding... - Thyroid UK
Update from recent imput from you all regarding acid reflux etc
First step is always to get FULL thyroid and vitamin testing done
as your dose levothyroxine has been reduced from 150mcg to 100mcg/75mcg on alternate days….highly likely you are under medicated
What vitamin supplements are you currently taking
Which brand of levothyroxine are you currently taking
Many people find different brands are not interchangeable
Teva is ONLY brand that makes 75mcg tablets
Teva upsets many people
Do you have autoimmune thyroid disease
PPI lowers vitamin levels
Low vitamin levels tend to lower TSH
Just testing TSH is completely inadequate
Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine or after any significant changes
Eg starting or stopping PPI, HRT, improving low vitamins etc etc
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.
Very important to test vitamin D, folate, ferritin and B12 at least once year minimum
About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high thyroid antibodies
Autoimmune thyroid disease with goitre is Hashimoto’s
Autoimmune thyroid disease without goitre is Ord’s thyroiditis.
Both are autoimmune and generally called Hashimoto’s.
Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)
20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis
In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)
Recommended on here that all thyroid blood tests early morning, ideally just before 9am and last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
List of private testing options and money off codes
thyroiduk.org/getting-a-dia...
Medichecks Thyroid plus antibodies and vitamins
medichecks.com/products/adv...
Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins
bluehorizonbloodtests.co.uk...
If you can get GP to test vitamins then cheapest option for just TSH, FT4 and FT3
£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code
thyroiduk.org/getting-a-dia...
Monitor My Health also now offer thyroid and vitamin testing, plus cholesterol and HBA1C for £65
monitormyhealth.org.uk/full...
NHS easy postal kit vitamin D test £29 via
Only do private testing early Monday or Tuesday morning.
Watch out for postal strikes, probably want to pay for guaranteed 24 hours delivery
Link about thyroid blood tests
thyroiduk.org/getting-a-dia...
Link about Hashimoto’s
thyroiduk.org/hypothyroid-b...
Symptoms of hypothyroidism
thyroiduk.org/wp-content/up...
Wow, what a lot of questions & loads of of things to do of which I thank you.I've taken various supplements over the years non never really seem to work. I'm on Adcal inc. vit D for my osteopenia plus I had a hip replacement some 7 years ago due to trauma.
At the moment I'm seeing where I go with the acid reflux diagnosis & their treatment but will certainly query any outcomes. Have thought of private health care but again will see how this stage of events pans out.
Grateful for your input, making notes as I write👍
What were thyroid results when on 150mcg levothyroxine
Why was dose reduced
Far, far too often medics dose by TSH which is completely wrong
Reducing dose levothyroxine frequently results in low Ft3 …..low vitamin levels
Essential to maintain optimal vitamin levels for good conversion and highly likely to need to supplement vitamin D and B vitamins continuously to maintain optimal vitamin levels
Being under medicated for thyroid, frequently causes low stomach acid, then poor nutrient absorption and low vitamin levels
Low vitamin levels tend to lower TSH ……medics inappropriately reduce levothyroxine further ……and patient spirals downwards
Thousands of posts on here about low stomach acid
healthunlocked.com/search/p...
But never assume you have low stomach acid
healthygut.com/4-common-bet...
Web links re low stomach acid and reflux and hypothyroidism
nutritionjersey.com/high-or...
stopthethyroidmadness.com/s...
thyroidpharmacist.com/artic...
How to test your stomach acid levels
healthygut.com/articles/3-t...
meraki-nutrition.co.uk/indi...
huffingtonpost.co.uk/laura-...
lispine.com/blog/10-telling...
Protect your teeth if using ACV with mother
healthunlocked.com/thyroidu...
Ppi
Omeprazole will lower vitamin levels even further
gov.uk/drug-safety-update/p...
webmd.com/heartburn-gerd/ne...
pharmacytimes.com/publicati...
PPI and increased risk T2 diabetes
gut.bmj.com/content/early/2...
Iron Deficiency and PPI
medpagetoday.com/resource-c...
futurity.org/anemia-proton-...
onlinelibrary.wiley.com/doi...
sciencedirect.com/science/a...
But never assume you have low stomach acid
You meant never assume you have high stomach acid, I think? 
no …I did actually mean never assume you have low stomach acid
Test first
Taking Betaine HCL or ACV might make symptoms worse
Ah, ok! Good point. I should have clicked on the link, sorry.
I guess I’m just so used to people assuming they have high stomach acid when the symptoms for low stomach acid can be surprisingly similar.
I was prescribed omeprazole similar to lanzoperole years ago for acid reflux. I had a limitless, unquestioned supply of the things.
Eventually I altered my diet pretty much the way you describe and weaned myself off the omeprazole. I realise I was lucky to be able to do that because there are people who for various reasons can’t do it but if you can alter your diet that’s a good start. Good luck with the blood tests and hope your visit with the new doctor in the new year goes well. 🎄
Cheers, I just hope I can convince them something is just not right unfortunately I've suffered for years without realising they actually is a problem🤦🤞all goes well
Have you checked out Jamie Kouffman? She is the leading expert on reflux and LPR...
" (LPR (laryngopharyngeal reflux) is acid reflux that comes up into the larynx (voice box) and pharynx (throat). I coined the term in 1987 to distinguish what I was seeing in my patients with voice, throat, and respiratory problems from GI patients with heartburn and esophageal disease (GERD))."
She has loads of help and advice on her website/blog and Youtube channel.
LPR (laryngopharyngeal reflux) is acid reflux that comes up into the larynx (voice box) and pharynx (throat). I coined the term in 1987 to distinguish what I was seeing in my patients with voice, throat, and respiratory problems from GI patients with heartburn and esophageal disease (GERD)
Thanks, I've had a look see wow never thought acid reflux had an affect onhearing I've bee suffering with tinitus for years👍 just arming myself with info for when I chat with doctor 🤦quite intricate having underactive thyroid which in term comes with extras🙂
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