Problem Thyroid s: I have been taking Thyroid s... - Thyroid UK

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Problem Thyroid s

Brightness14 profile image
103 Replies

I have been taking Thyroid s from the same supplier for over seven years.

This July I received my new supply of 1000 grains costing £330. I noticed that

the pills in the new supply were different colour and size, it was mentioned on

here by someone. Anyway, I have no thyroid so rely on these to keep me alive.

After about 2-3 weeks I was becoming worse and feeling very ill. I realised

that these two new bottles were no good. I have emailed my supplier. Anyone

on this site and ordering these now should be aware that the new Thyroid s

is not fit for purpose and in fact dangerous too.

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Brightness14 profile image
Brightness14
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103 Replies
shaws profile image
shawsAdministrator

Thanks for alerting our members about your reaction to ThyroidS.

I can imagine how you felt when realising that your body wasn't reacting as it did on your previous tablets.

I hope it can be resolved soon or you will have to trial another make.

Brightness14 profile image
Brightness14 in reply to shaws

Thanks I have supplies of Levo and Cynomel but have never tried it. Also some Armour which I bought during Covid.

I am awaiting surgery on a large ear tumour called a Cholesteatoma so not feeling very

good today.. Watch this space.

shaws profile image
shawsAdministrator in reply to Brightness14

I'm sorry you have to have an ear operation but hope you have a swift recovery to good health.

SeasideSusie profile image
SeasideSusieRemembering

Brightness14

Anyone on this site and ordering these now should be aware that the new Thyroid s is not fit for purpose and in fact dangerous too.

That is rather an alarming statement and could cause panic and anxiety for some of our members.

This may be your experience but it is not the experience of everyone. There have been posts recently where members have noticed a difference in new batches of Thyroid-S, some who don't do well on it and some who have found no difference at all.

So you are recounting your own personal experience but how are we to know that you have the genuine article? I have heard that to ensure the genuine article there is now only one reliable supplier.

There is no problem with you posting about your experience but it should be made clear that this is your experience only and that members might want to be aware that it's possible they might experience a difference with their tablets.

Please do not name your supplier on the forum but have you actually contacted them about the problem you have had with this new batch, surely that would be the first thing you would do.

Brightness14 profile image
Brightness14 in reply to SeasideSusie

I agree with what you say. Perhaps I won't post my experiences again. There are many people on here with a thyroid but without one and after taking it for seven years with

no problems and noticing the colour I still gave them a go. After forty days and rapidly

going downhill fast. I will never warn anyone again, I promise.

SeasideSusie profile image
SeasideSusieRemembering in reply to Brightness14

As I said, there's no problem with posting about your experience but just make sure you mention that it purely your experience. Unfortunately the way you ended your opening post is alarmist.

If you contact your supplier and explain what's happened there may be an explanation. I know that the manufacturers have said that each batch is different and that people should test a few weeks after starting a new batch.

welsh_babe profile image
welsh_babe in reply to SeasideSusie

I felt ill after my batch too and got a refund. I know of others too

in reply to SeasideSusie

I know that the manufacturers have said that each batch is different and that people should test a few weeks after starting a new batch.

I just saw this and hope it´s not too late to react. How can each batch be different and has the manufacturer explained why this happens? I thought the whole point of taking NDT was to avoid the possible fluctutations that can occur with glandulars with no declared hormone content. Now, the size and colour of pills seem to vary from batch to batch, as does potency. Surely Sriprasit cannot use different fillers and binders in each batch? It´s all very strange as I took Thyroid-S sucessfully for years, so at one point they were able to manufacture consistent batches. I wish I knew what had happened as I have not been able to find any natural product that comes even close to "old" Thyroid-S.

Brightness14 profile image
Brightness14 in reply to

I have tried three of the new Thyroid s batches and none now work for me.

They have often been different in FT3 reading over the years, but the ones from 2022 were totally different in Colour, Shiny etc.etc. The new one do not cut into halves or quarters either.

I have now been trying for a whole year and these simply do not work for me, after sevens years.

I was only taking a new batch in Sept 2022 when after only 44 days I started falling down. I had a blood test and my FT3 had gone from 6.06 to only 2.76 . I had a few of the original ones left from 2021 these only lasted 10 days but I felt well again very quickly.

I am now trying Metavive Porcine will post if I find they work, so far so good so I live in hope.

in reply to Brightness14

Interesting! I just ordered Metavive for the first time. I hope you keep us updated!

I agree with what you say about Thyroid-S. It´s such a shame, it used to be a great product but something definitely happened to it to make it work less well.

Brightness14 profile image
Brightness14 in reply to

It' s really to early to tell. Today I have taken 1 x Metvive 1 at around 7am, another one at 1.30pm and I am taking another 1 the same dosage at around 5.30pm, So far so good. Nothing negative to report so far. These are only 40g each so very small. Three are only around 120g in total so very little.

I intend to up the dose in around 10 to 14 days.

mintgreenish profile image
mintgreenish in reply to Brightness14

Can u post batch number please. I received a new order in July and will start them in a few weeks. I have read posts that the ones with a greenish color are stronger.

Brightness14 profile image
Brightness14 in reply to mintgreenish

Batch Number TA22006 the other bottle I have thrown away.

The most important thing is the fact that the actual pills are a different size and colour.

After seven years of always feeling well, at the age of 76 year I am thinking of giving up.

pennyannie profile image
pennyannie in reply to Brightness14

You can't give up Brightness please don't think like this -

Is the second bottle looking more favourable ?

Are you planning to contact the supplier ?

Brightness14 profile image
Brightness14 in reply to pennyannie

I did contact the supplier but as yet no reply. I ahve often recommended this supplier to other so falt that I had to warn them.

pennyannie profile image
pennyannie in reply to Brightness14

Well, yes, I'm sure we are all guilty of recommended trusted suppliers as we all feel part of some 2022 Suffragettes movement and try to help each other out against the medical mainstream and it is an upstream challenge for all of us.

Does the second bottle also look suspect ?

You live in France don't you?

Brightness14 profile image
Brightness14 in reply to pennyannie

Yes I am in France and I have now thrown away both bottles and I am using up the old batch. I am then going to try Levo plus T3. I always have these posted to my sister who then repacks them and sends them to me here.

I visit the GP and he gives me a prescription for Levo plus T3 so I have plenty.

Framboise profile image
Framboise in reply to mintgreenish

This is interesting, I haven't heard of any Thyroid-S tablets with a greenish colour, however there's apparently a new brand in circulation which are blueish. If you see any of the greenish ones please would you let me know?

mintgreenish profile image
mintgreenish in reply to Framboise

There appears to have a hint of green to my new pills

Framboise profile image
Framboise in reply to mintgreenish

This just gets more confusing doesn't it. Do you think they're working ok?

mintgreenish profile image
mintgreenish in reply to Framboise

Havent tried them yet. I see you posted a picture some time ago that showed thyroid s in 3 slightly different shades. The ones i have now are like one from your picture. I will start them in a few weeks but I will start at a bit lower dose just in case they are a bit stronger.

Framboise profile image
Framboise in reply to mintgreenish

I'm currently taking 21089 and that was the third tablet in my photo. They're fine for me, and I know that batch 22012 is working fine for someone taking that one. I normally take 3.25 grains and always start a new batch well before running out of the old, by taking 3 grains of the old and 0.25 grains of the new one for a few days, then adjusting in half grains until I've switched over completely. That way if it's a bad batch I know before I'm completely out of the old batch. It's always a bit of a worry though!

Maya_83 profile image
Maya_83 in reply to Framboise

My ones are green with no smell at all. I purchased them in August this year. This was my first ever bottle so I had nothing to compare with.

should I be worried?

Brightness14 profile image
Brightness14 in reply to Maya_83

Well don't be worried just take these as directed. Then post your blood test results on here for answers.

Maya_83 profile image
Maya_83 in reply to Brightness14

I initially felt well, well, better but have been feeling awful these last few weeks.

in reply to Brightness14

So sorry to hear you have been so unwell, and thank you for bringing this up, it is important to hear when other folk don't do well on the medication ourselves are on. I have just started a new batch and feel absolutely awful, which has been going on for 2 weeks, a week after I started the new batch. After I started feeling rough, I asked for a blood test and my results came back with my T4 being mid normal range, and my FT3 slightly higher than normal range with a suppressed TSH, which isn't too far off my previous stats. Over the last 3 batches, I have felt more fatigued especially after taking the grains, but have managed and plodded on. This time however, I have felt awful, by the way of a continual intense pressure headache all over, but worse in the sinus area, around my eyes and jaw. My glands in my neck. My head has felt to the point of explosion last night with my blood pressure being dangerously high, so I had to attend the emergency clinic and get emergency blood pressure medication. I have had racing and a thickening feeling in my throat as well. I have hardly slept for two weeks, and I haven't felt overly fatigued which would be the case after so little sleep. I can't take much more of this, I have reduced the dose to a very small amount and racing has calmed a little and pressure in my temples are not so severe, which could be as a result of the blood pressure meds, but the pressure pain in my sinus area, jaw and eyes still pretty much remain. It all seems to have started around the time of starting this batch. Sinusitis was ruled out by an ENT and I don't suffer with heart issues or hypertension normally (apart from at the end of pregnancy with twins). I think I am going to have to resort to Levothyroxine again and take synthetic T3 as I don't convert too well on levo alone. I am just hoping the T3 is not more expensive than NDT. I am hugely disappointed as I was doing much better on the NDT than levo alone, but I can't afford to buy the more expensive brands at the moment, so I'm stuck. It's good you've got other things to try, all the best with that.

Brightness14 profile image
Brightness14 in reply to

Sorry to hear that you are unwell. Have you still got your thyroid? What batch and date are your new Thyroid s.

in reply to Brightness14

Thank you, I do have my thyroid and the batch is TA22012 : 24/02/22 - 24/02/25. I bought it in September but didn't start it until 3 weeks ago. I was taking 3 grains on the last batch, but reduced it down to one yesterday, the pressure wasn't quite so intense until in the night, so I took painkillers and in the morning it started up again. I have been having all kinds of weird feelings, so I thought perhaps I'm going more hypo with the reduction, so I had 2 this morning and the pressure has intensified including the swelling in my neck glands. I don't know what's going on, I can't stand it much longer. I am hoping I can see a gp tomorrow to give me levothyroxine and I need to order T3. I don't know about switching though. I need to do it cold turkey because I can't take much more of this.

Brightness14 profile image
Brightness14 in reply to

I just hope that you can sort it out soon.

tahoetwilight profile image
tahoetwilight in reply to

"which has been going on for 2 weeks "

Um sunshine it takes 6 to 8 weeks to see if a thyroid medication is working via a blood test.

in reply to

Did you find a solution yet? I was shocked to see how expensive Thyroid-S has become. It´s just as expensive as Armour, at least if you order from European suppliers.

in reply to

Hi. I have gone back to using Thyroid S as synthetic T3 didn't work for me. I am making do with the Thyroid S as I don't have other options . Armour & Erfa are too expensive for me and I cannot get a prescription for anything other than Levo. Look at the Thyroid manufacturer's prices. I always buy direct from them now. Hopefully they are cheaper than what you've seen.

in reply to

I wish you the very best of luck!

Brightness14 profile image
Brightness14 in reply to

You too

shaws profile image
shawsAdministrator

Thanks for posting but am sorry you've been disappointed with the new tablets and hope it can be resolved problem soon.

RedApple profile image
RedAppleAdministrator

Brightness14, ' the new Thyroid s is not fit for purpose and in fact dangerous too.'

You say you received your current order back in July. It is possible that there was/is a problem with that specific batch. Anyone ordering now may not receive the same batch.

Can you add details of the batch numbers etc. so that other members can compare, and maybe report on their experience of the same batch of pills?

Framboise profile image
Framboise

Sorry to read this, there have been mixed reports lately. I'd like to say though that £330.00 for 1000 tablets of Thyroid-S is overpriced and, without giving any sources, I paid £232.55 for 1500 tablets in April. I received 3 jars of batch number 21089 and so far they're fine.

A lot of people have mentioned the difference in size and colour of the latest tablets, and a couple of months ago two of us posted photos of different tablets. I posted one of three different tablets, a very old one, a new one, and one from my last batch part way down this thread: healthunlocked.com/thyroidu... Do yours look like any of these or are they completely different? In that photo they all looked different but all have been fine, and, when I asked the manufacturer why they looked different, I was told: "Thyroid S is a natural Thyroid extract. The color of the extract may vary from batch to batch. However, we certify that the high-quality raw material from Europe is the main ingredient in our Thyroid extract product".

I'm a member of a WhatsApp group which discusses the different batches (sad I know!) and your batch number hasn't been mentioned at all, but the latest report, for batch number TA22012, manufactured after yours, is that it's fine. It seems everyone reacts in different ways, but I suggest you contact the manufacturer and query your batch and whether there are other reports of adverse effects or ineffectiveness of that batch.

Good luck!

Sorry I've edited a couple of times, and have just messaged you the emails address for the manufacturer.

RedApple profile image
RedAppleAdministrator in reply to Framboise

Framboise, You can send source details (manufacturers email etc) through the messaging / chat system. 😊

Framboise profile image
Framboise in reply to RedApple

Thanks, I shall do that :)

Brightness14 profile image
Brightness14 in reply to Framboise

Since my thyroidectomy and after seven years these pills have been great. I have taken over 6000 and from the same supplier. When I ordered the last batch of 1000 I had to pay a different person which was odd. Anyway, as soon as I opened the new batch I could see straight away that they were greenish and a different size. Mine have always been the same colour and size. After forty days on the new batch, I attended a wedding I had to be helped up the steps of the office by two men and then back down again. What I thought was my ear tumour getting worse, was in fact these pills which were not working that's why I used the word dangerous. I was told off about it.

papayarose profile image
papayarose in reply to Framboise

hi framboise, have you heard anything about batch 22054? also, can you please message me where you order from? thank u :)

Framboise profile image
Framboise in reply to papayarose

Hi papayarose, I haven't heard anything about batch 22054, it sounds like a very recent one. Have you tried it or are you wondering about it? I'm still doing fine on 21089 and have another 1000 of it. I chew the tablets and drink with water, I don't know if this makes a huge difference but I've done it since Armour altered in about 2009 and this was recommended for people who couldn't absorb the new formula so easily. In the past I've been aware that some batches of Thyroid-S are stronger or weaker than the previous batch, but never to the extent that I needed to change the dose frequently. If I hear anything about that batch I'll let you know!

Brightness14 profile image
Brightness14 in reply to Framboise

The Thyroid s altered in January 2022. The old batch TA210 something are still good but I haven't been able to purchase any of last years, hence the problem. If you know of any suppliers of the old batches please PM me.

Framboise profile image
Framboise in reply to Brightness14

I'm afraid I don't know anyone with old stock of Thyroid-S, may be worth emailing round though in case they have some hidden somewhere. I have met a number of people online who are doing fine on this year's batches though, and some who are not doing so well on last year's including one batch which I took and had no problems with. Whatever is going on only seems to be affecting some people.

Brightness14 profile image
Brightness14 in reply to Framboise

I am trying TA22012 only half a grain first thing as I still have some Levo lurking in my body. Will increase slowly and have a blood test when I have been on my old 2.25 grains after six weeks. I will then post and let every one know how it goes. Thank you

Framboise profile image
Framboise in reply to Brightness14

Thank you, that will be helpful. I know it's not much consolation, but this seems to happen to all NDTs at times. I was taking Armour when it changed formula in 2009, switched to ERFA which altered in about 2012, then tried Thyroid-S and did ok until a new endocrinologist wanted me to try Nature-Throid and I got a dreadful batch of that, so have stuck to Thyroid-S ever since. It would be so helpful if there was a pool of us who could send a few tablets they get on with to others, when this happens. Probably illegal though!

Edited to say that in future I shall order and start a new batch well before starting the last bottle of a batch I get on with, that way I should always have 6 months in stock.

Brightness14 profile image
Brightness14 in reply to Framboise

S Happens and we all have to deal with it, I suppose I just assumed that my Thyroid s would always be consistent but I was wrong. Anyway, like you I have ordered another batch before running out of this one. Will keep posting when feeling better with details. Thank you.

Ot7_jenii profile image
Ot7_jenii in reply to papayarose

Hi! I’m new to this forum, but I came here specifically looking for reviews regarding Thyroid-S, because I feel it’s not working very well for me. I also have batch 22054, and was taking Armour before this, but lost my insurance when I lost my job (I’m in the US). Have you continued noticing problems from this batch? I haven’t yet done labs, but I’ve been really tired, dizzy, and really not feeling great since I switched to these about 3 weeks ago.

Brightness14 profile image
Brightness14 in reply to Ot7_jenii

I was on Thyroid s for over seven years and felt well. Then in 2022 the tablets changed I started to fall down after 44 days on the 2022 batches. So far I have tried three different batches all from 2022, because I ran out of batches from 2021. They have reformulated these and now they don't work for me anymore, I have also had my FT3 levels checked and these were worrying low, especially without a thyroid. I have now thrown them all away now trying just Levo I don't like the T3 because it upsets me. I have some Armour left over from the Covid year. When I have sorted out my levels I am going to lower my Levo and introduce a half Amour and perhaps later on a 60mcg which I have 300 left over. The Armour never work as well as the old thyroid s. It would be cheaper to add a little Armour to the Levo,

Ot7_jenii profile image
Ot7_jenii in reply to Brightness14

Hi! Ugh, what you said about Thyroid S is def worrisome, and I’m also noticing symptoms of my thyroid levels being low. I’m in the US, and only have Medicaid at the moment since I'm currently out of work (our version of government health care but only for very poor people), and every regular doctor I’ve seen here will only prescribe T4 synthetic meds, at a dose only based off of TSH. In the past, I used Thiroyd (which worked really well), ThyroGold (which worked well for a few years, until it completely stopped working in 2019 for some unknown reason, and I ended up in the ER with super high blood pressure and a TSH of 24), and Armour Thyroid when I can afford to see a doctor that will prescribe it. My thyroid doesn’t convert T4 to T3 at all, and unfortunately I ended up with a chronic pain disorder after taking too-low of a dose of Levothroid and no T3 for most of my 20’s. I’m 39 now, and it’s crazy that I’m still trying to get optimal on these meds.

It seems like most, if not all, NDTs have become problematic in different ways since COVID, and that is pretty concerning to me. I’m also wondering why so many medications (not just thyroid meds) are seemingly lower in efficacy now (I’m noticing similar talk about ineffective medications in my ADHD treatment forums, and have also noticed a difference myself the past few years). Like, is something happening that we don’t know about in regards to source material or the manufacturing process? I hate to sound like a conspiracy theorist, but I’m kind of starting to think of the possibility that all these manufacturers may be putting less active ingredients in everything to save money or something? I hate to say that, and hope it’s not true, but who honestly knows at this point.

If Thyroid S doesn’t work for me, I’m unsure of my next steps. I guess I’ll have to go the synthetic route, which is my only option now I guess, but I need a larger dose of T4 than what doctors usually give me (I have Ord’s Thyroiditis with a very atrophied thyroid gland, and suspect I may be Thyroid Resistant). The doctors here like to keep my TSH between a 2-4, which makes me feel like absolute trash, of course. I’ll also definitely need T3, which most doctors won’t prescribe, especially if you’re under MediCal/MediCaid. In 2019, I had to order Cynomel from MX, but I guess that’s no longer manufactured either.

I’m so sick of feeling like trash every day. I lost my job last May partly because of all my health issues (it’s a long story), and I currently can’t work feeling like this. Sucks though, because without employer-sponsored insurance, I can’t afford good treatment. It’s a catch-22, and it’s pretty awful.

If you know of any outside sources for either another NDT or overseas T4/T3, could you PM me by chance? I feel like I’m running out of options now, and that’s pretty worrisome.

Thank you for replying to my comment by the way! I appreciate it 🫶🏻💜

Brightness14 profile image
Brightness14 in reply to Ot7_jenii

Hi sorry that you are having problems I will take a look and try to find out any alternatives for you.

in reply to Framboise

However, we certify that the high-quality raw material from Europe is the main ingredient in our Thyroid extract product

That is interesting as I have read that they get their raw material from China. I was not too happy about that as I imagine (possibly wrongly so) that animal welfare standards are not as high in China as in Europe. I have been worrying about the use of antibiotics and growth hormone in Chinese pigs. But, as long as I felt well on Thyroid-S (until 2018), I decided not to worry too much about it. But I had weaker batches already back then. My latest problematic batch was manufactured in 2019 and expired in 2022. Before that, I took Thyroid-S for four years with no problems at all, regardless of batch. Does the manufacturer mean that the potency of the pills will vary from batch to batch due to it being a natural product? If so, that should apply to all brands of NDT, not just Thyroid-S.

helvella profile image
helvellaAdministratorThyroid UK in reply to

Variation between batches happens for all medicines - synthetic and "natural".

But the size of the variation should be well within formal specifications. If it isn't we do have difficulties in dosing.

Thyroid S Batches

A summary of known and suspected potency of Thyroid S batches.

helvella.blogspot.com/p/thy...

Last updated 2023/07/24

in reply to helvella

That´s a good list! After seeing all the problems reported, I have decided to go down the synthetic route and hope it will be OK. One deterrent is the price of Thyroid-S; the EU suppliers now charge almost €500 for 1000 pills (twinpack, 500 x 2). They say the manufacturer has increased the price again. I simply am not willing to pay that much for something that may or may not work.

Brightness14 profile image
Brightness14 in reply to

If you buy direct from the [ a reputable source ] the price fo 500 is £128 I have just bought some that's July 2023 price. They took 10 days to arrive.

in reply to Brightness14

But I think that they then ship from Thailand? I could not risk that as the shipment would most likely be confiscated by customs.

Brightness14 profile image
Brightness14 in reply to

Are you in the UK or in the EU? They don't ship from Thailand the manufacturer has a wholesale in the UK and it's sent Parcel Force. I have mine sent to my friend in the UK and then she repacks it and sends it on to me here in France.

in reply to Brightness14

In the EU. I am not sure how shipments from the UK to the EU work after Brexit. I know we have to pay import duties on goods from the UK, but not sure if customs will open shipments from the UK.

Brightness14 profile image
Brightness14 in reply to

I have all mine sent from the UK before and after Brexit, but not direct from the suppliers I have them sent to my friend in the UK who then repacks them. My last lot arrived only last week they arrived on Thursday, posted the Friday before. I have never had any opened or charged for either. If goods arrive from the US to the UK you have to pay customs duty. These arrive UK to UK.

in reply to Brightness14

I think the principle in the EU is that you are required to pay customs duty on all shipments from third countries. The amount will depend on the value indicated on the package. My own experience is that customs are more inclined to open shipments from...let´s just say more exotic countries. But there may be differences between EU countries. I have not been able to figure out what the Trade and cooperation agreement says about this (if anything).

Brightness14 profile image
Brightness14 in reply to

I do know about it but my friend repacks it as vitamins for about £23. UK is not an exotic country though far from it. Anyway I have been lucky since 2015 when I used to have it sent straight from Thailand.

in reply to Brightness14

By exotic, I meant Asia or South America:-)

Framboise profile image
Framboise in reply to

I'm really not sure where the raw material comes from, I thought it was switched from Thailand to Cambodia a few years ago, but I can't remember where I heard that. Personally I don't have a problem with it coming from China these days, if it works, but then I'm perhaps biased in that respect as my daughter-in-law originally came from China, I'm hoping to be off there soon to have a look around :) and from what I've heard China is a very different place now from how I've always thought about it - but perhaps that's just what people want us to think! Ultimately I just want to be able to function as normally as possible.

Thinking about how we should approach each new batch, yes I think we are supposed to reassess each one and adjust the dose if necessary, that seems to be what my contact at the manufacturers of Thyroid-S were saying to me. It's annoying but looking back I had real problems with Armour at one point too, so it probably should apply to all NDTs. On the other hand, my daughter-in-law's mother is hypothyroid and she was astonished when I showed her my jar of Thyroid-S, and even more so when she heard it came from pigs! She thought it highly suspicious and told me she takes Merck levothyroxine from Germany, and that her prescription (from a private doctor in China) specifically names it each time. If only that worked for everyone!

in reply to Framboise

I agree. The problem with thyroid hormone is that it takes a few weeks to know when adjustments are necessary, and then another few weeks for a dose adjustment to be felt. I too wish that levo worked. That would save me a lot of trouble and money!

siddooo1 profile image
siddooo1

Hi Brightness14

I noticed that my new batch of Thyroid S (TA22012) tastes sweet compared to last batch but haven't noticed any other issues. Do you have other meds that you can take to keep your levels stable? I think as part of a pre-op assessment for your cholesteatoma removal they will test your Thyroid levels. I hope your operation goes well, I had this op a few years ago, it took 5 & 1/2 hours but it did put an end to the constant ear infections.

Brightness14 profile image
Brightness14 in reply to siddooo1

I have only had two ear infections in my 76 years old life. Mine was started by a sinus operation that went wrong. I am now deaf in my right ear. Anway after all the operations that I have had I am not worried. In fact I thought that because I was falling over all the time it was due to the ear tumour. It was in fact the Thyroid s batch. I have only been back on my old Thyroid s for four days and I am feeling better than I have for the past 40 days on the new batch, which I have thrown away.

mintgreenish profile image
mintgreenish in reply to Brightness14

So pleased to here you are feeling better. Best wishes !

Brightness14 profile image
Brightness14 in reply to mintgreenish

Thank you, the only problems is the fact that I only have one weeks supply of the old left. I am going to post again later asking anyone how to start Levo with T3.

Clarebear profile image
Clarebear

I only started Thyroid S 10 days ago after 10 years on Armour/Erfa/Naturethroid and haven’t noticed a difference so far. My batch is TA22024. They are green.

Brightness14 profile image
Brightness14 in reply to Clarebear

Great that's good news I am pleased for you.

Imaaan profile image
Imaaan in reply to Clarebear

Hello,

Can you pls share how much your dosage was on Erfa and how much Thyroid S you're on currently? Thank you in advance

Clarebear profile image
Clarebear in reply to Imaaan

I was on 2.75 grains of Armour and am taking 3 grains of Thyroid S - so far so good.

Imaaan profile image
Imaaan in reply to Clarebear

Can you recall how much Erfa you were on? I'm currently taking 2 grains and a 1/4 of Erfa and wowonder how much the equivalent amount of Thyroid S would be.

Really glad to hear that Thyroid S is working for you.

Brightness14 profile image
Brightness14 in reply to Clarebear

I took 2.25 grains for over seven years and felt well. Now trying to get my body used to T3 plus Levo.

in reply to Brightness14

Hi Brightness14. How are you getting on since you switched from Thyroid S to T3 & Levo? I came off Thyroid S for a while due to me feeling pretty ill with a continual pressure headache which came on suddenly with a new batch (as described in my previous comments). I then proceeded to try Levo/T3 and T3 alone, but haven't felt right and when I upped my dose, the headache came back. It seems whatever I try, nothing changes. The last day and half I have reverted back to the Thyroid S at a small dose to see if I can go back to it. I long to find something that enables me to feel energised and not have a headache. Have you found the right treatment for you yet?

Brightness14 profile image
Brightness14 in reply to

Hi sorry to hear that you are not doing so well. I started on the Levo plus T3 and after a few days became very ill. I am feeling shaky and sick and haven't been well for over three days. I stopped taking it and am waiting for it to leave my body now. I am going for a blood test tomorrow so I should be able to find out what's happened. I have ordered another batch of Thyroid s from another supplier, to my sister in the UK. She is going to send me 40 pills in an an envelope first class to be going on with I need it sorted as I haven't got a thyroid. I hope that yours goes well please let me know.

in reply to Brightness14

Oh Gosh, we are in a state. I woke up with a terrible headache during the night, so I took a small dose of T3 only and the headache became worse, which still remains even with pain killers. I am pretty incapacitated today due to this. I feel I am back to square 1 with nowhere to go treatment wise. My Thyroid S batch is one of the latest. Apparently the only reliable source for it is direct from the manufacturer. Made no difference for me.

Brightness14 profile image
Brightness14 in reply to

Sorry to hear about your headache problem. I am lucky in that I have never had a headache. It must be something to do with the receptors in the brain. When did your thyroid journey start. what else are you going to try now?

in reply to Brightness14

My thyroid journey started in 2004 when I was living in the U.S & had just a routine medical. My blood test results showed hypothyroidism, so I was put on the U.S equivalent to Levothyroxine. Prior to my diagnosis, I lived an energetic, healthy lifestyle with no inkling that I had an issue. I continued to maintain that lifestyle until I moved back to the UK and was put on Levothyroxine and was pregnant with twins. At that point, my body just basically shut down, whereby I was pretty ill, including my thyroid. As the pregnancy progressed, my levels shot down (well T4, as T3 was never tested) and I ended up on almost 400mg of Levo daily. My babies had to be delivered 10 weeks early as I could no longer support them nutritionally and my blood pressure continued at dangerous levels, including deficiencies in sodium and iron. I also had pre-eclampsia and my liver was struggling. Basically, I was pretty ill, also coping with premature babies, one being ill as well. My weight shot up during that time, and after the birth I could gradually reduce my Levo dose to around 100mg. I however, still felt rough, with fatigue and difficulty loosing weight to my normal healthy weight. I joined this forum as I was made to feel like a hypochondriac by my GP practice and learnt about T3 and NDT. After paying privately for a blood test including T3, I learnt that my T3 levels were low as I obviously did not convert too well and my TSH was too high. I took the plunge and bought Thyroid S and started on that, which was successful up until the last two batches where I was getting more fatigued even though I adjusted my doses. My blood results always showed mid range T4, higher normal range or just over FT3 and a suppressed TSH. It was with this last dose that I started with a crippling headache and weird feelings in my throat glands. It got so bad, I thought I was having a stroke or a hemorrhage. The hospital put it down to the Thyroid S after lots of blood tests. I came off it and the headache subsided to a dull headache. I then tried Levo with T3 but felt bloaty and the dull headache remained. I then tried just T3 but felt fatigued and when I tried to up a dose to half a tablet (12.5mg), the pounding headache came back and became crippling again yesterday. I am at the end of my tether with this, I can't function properly with this, and I don't know what to do from here. I have took nothing today, and I have felt the best I have for a long time... Energised with no headache thus far. I don't understand why I feel better without Thyroid meds, and tempted to stop all together, but of course I can't do that. I don't know why everything's crashed. I have been referred to the local NHS Thyroid Clinic, but to me that's pretty useless as they only prescribe Levo and get twitchy with suppressed TSH levels. I would try Armour if I could, but that is out the question for me financially. I think the Thyroid S has changed although the manufacturer claims it hasn't. I feel prickly itchy now after taking it, especially my scalp. Since the grains changed colour, that is when I came into issues. I just wish there was an affordable NDT without all the chemical nasties. I wish I could get advice about all this as I'm getting desperate to feel well again and not become very ill.

Brightness14 profile image
Brightness14 in reply to

I have read your reply and you sound so ill. I have left off all medication for 4 days and have just started 100mcg of Levo this morning. Yesterday I had a blood test ordered by my GP and received the results by email yesterday afternoon. I will post the ones from last April 2022 and Yesterdays.

In April when on the old batch 2.25 grains of Thyroid s Yesterdays after I tried too much T3 and then nothing for 3 days. Prior to this taking forty days of the Thyroid S that had something wrong with it.

Yesterday Results April 2022

TSH 0,01 ( 0.27 - 4.20 ) TSH 0.01 All same ranges

T4 12.90 ( 11.90 - 21.00 ) T4 19.70

FT3 2.76 ( 3.10 - 6.80 ) FT3 6.06

Sometimes it's hard to carry on but most of us do. Feeling sick and bad today hope for an improvement soon. If I didn't have an ear tumour I would have noticed sooner but thought that it was balance problem from the ear. Never had a bad batch of Thyroid s in seven years.

Clarebear profile image
Clarebear in reply to Clarebear

I just wanted to update my experience after 2 weeks on Thyroid S. I was on 2.5 grains of Armour but for some reason decided to take 3 grains of Thyroid S. After 15 days I started to develop a nasty headache which got worse and worse. I couldn’t sleep as it was so bad. I have had headaches previously when I’ve been overdosed and underdosed. I decided not to take any thyroid medication yesterday and today and am feeling so much better. I think I must have been overdosed. I will start again tomorrow but returning to the 2.5 grain dose I was on with Armour - fingers crossed.

Imaaan profile image
Imaaan in reply to Clarebear

What's the batch number? Hopefully tomorrow with a lower dose goes better.

Clarebear profile image
Clarebear in reply to Imaaan

TA22024

I read somewhere that Thyroid S was not as strong as Armour, hence taking a higher dose. That was obviously a mistake! I will revert to the same 2.5 grain dose and hope all will be well.

Brightness14 profile image
Brightness14 in reply to Clarebear

I think that it's about the same strength as armour, you sound about right on your dose.

in reply to Clarebear

This is my story too. Everything I have taken lately has caused me horrendous headaches and fatigue. I have been off everything for two days and feel the best I have for years. Maybe I've been miraculously cured 😅🤣... If only

Brightness14 profile image
Brightness14 in reply to

I really hope so.

in reply to Brightness14

Fatigue has started to creep in, so not miraculously cured 😔. Took some Levo today, just 75mg, and the headache is back 😡. Have you tried your new Thyroid S batch yet, any luck?

Brightness14 profile image
Brightness14 in reply to

Headache back what a shame. I haven't tried the latest batch yet still winging their way to France from the UK. Took one 100mcg Levo early morning and by 11am thought I was going to pass out, so took a 6.25 T3 and felt a little better. Not sure how to proceed now, would like to stay on Levo plus T3 not sure how. It is free for me here in France. Have you always suffered from headaches?

I just wondered if the bad batch I had was just low in ingredients, perhaps if I had upped me dose from 2.25 grains to 3 or more it may have been OK. who knows. The balance problems which I thought was caused by my ear tumour was in fact low Thyroid s. For people with more than one thing wrong it's more difficult to know what's going on.

in reply to Brightness14

I think my issue was overdosing originally as my T3 was slightly over range. Lowering it hasn't helped so far. I've not had headaches like that before. Just odd ones with sinusitis from time to time. That cause was eliminated by an ENT specialist. I just can't believe in this so called modern medicine world we have to fumble our way to health by treating ourselves. Thyroid treatment is a joke. I need to do a blood test ASAP, but there is a technical difficulty with me registering on the website. I'm waiting to hear how they can fix it. My GP blankly said no to having one there to see where I'm at. He states I've had more than my quoter this year (one per year) and concerned about draining the NHS. Considering I've paid for all my meds since 2010, I told him, I can't be accused of that 🙄.

Brightness14 profile image
Brightness14 in reply to

I was having a conversation this morning about the treatment, or not of thyroid patients. It's different for diabetic patients in that they can do a finger prick test and treat accordingly, plus the correct tablets. We on the other hand cannot. Some of us have no thyroid some have hashimotos, some have gut and other complicated health problems it's hard. I read this morning that patients ringing 999 were waiting for up to two days for an ambulance to arrive. Some have felt below par for years and years and cannot really remember what they felt like when well. It's hard, very hard, especially for people like us. Anyway, you will have to try and sort out your headaches it could have been too much, too soon. I have start on 100mcg Levo at 5am and yesterday felt so bad at around 9.30 am I took 6.25 of T3 at 10.30 am and felt a little better. Talk about hit and miss. Yesterday I took an early shower and cleaned the bathroom = losing all my T3 in the body. Today no shower just typing and feel a little better. Still planning to take 6.25 T3 at around 10.30am. I know this is not right but just want to feel well for a few hours. Too long a reply, sorry. What are you going to do now. There are several firms online for blood tests try another one, perhaps.

in reply to Brightness14

Thanks Brightness14. I'm sorry you're feeling rubbish too. The long reply is fine, it feels better to know that there are people who can fully sympathise through their own experience. I have a loving husband who genuinely feels for my current struggles and has been very patient, and not moaned when I have spent more and more money to try and sort things out. It is hard on him/us with other financial commitments, but he says he hates seeing me suffer with no help from the medics. He is American and finds it so frustrating that the NHS are so restricted in the way treatment is offered. I have seen a huge difference in it since we moved back here, especially as I worked in the NHS for years prior to moving to the States. Even though he has been wonderful, he cannot fully understand like others who are going through difficult times. I am going to try the Thyroid S at a very small dose and take it from there. Please let me know if your new awaited batch is better. I don't want to purchase anything else if Thyroid S all together has become totally useless. When so many batches become issues to several people it just gives more ammunition to the cynical medics who say NDT is nothing more than voodoo play medicine. Good luck, and thank you for your time, it means a lot 😊.

in reply to Clarebear

How are you doing on the Thyroid S now. This is what happened to me. Do you feel they are weaker or stronger?

Litatamon profile image
Litatamon in reply to Clarebear

Clarebear,Can you tell me if you found the same dose on each of the NDTs relatively the same?

Thank you.

NataliAAA profile image
NataliAAA in reply to Clarebear

Hi I started taking a new bottle of Thyroid-S. Batch number TA22024. But I don't feel the same as on my previous Thyroid-S. I think they're either too strong or too weak. The colour is also different. It is more green. Can you advise me on this batch please as it is the same batch as your Thyroid -S? Many thanks.

Brightness14 profile image
Brightness14 in reply to NataliAAA

All of the 2022 batches are the same, they have changed. I had been on Thyroid s for over seven years and always felt well on2.25 grains to 2.5 grains. I noticed straight away that these looked different, Greenish, Shiny, they don't smell the same. After only 44 days on the newer batch I started to fall over then I had a blood test on my FT3 which was always on about 6 plus had gone down to 2.76 also my FT4 was below the bottom range, all within 44 days. You may have to take a lot more to achieve the same results. At present I am on Levo only I was only on it for 8 months after my Thyroid was removed and never at the correct dose, so I am now trying it out. I have no gut problems or anything that would have altered the Thyroid s. Good Luck

Clarebear profile image
Clarebear

I haven’t taken Erfa for a few years and can’t remember but I’ve been on 2.5-2.75mcg of Armour or Erfa for the last 10 years.

Imaaan profile image
Imaaan in reply to Clarebear

Thank you for answering my questions.

Imaaan profile image
Imaaan in reply to Clarebear

Just went through your blogs/posts and it was filled with trials, tribulations, twists and turns and finally Triumphs. Thanks for for sharing such details. Its been helpful to read about your journey. I wish you continued on the blog with Thyroid s

Clarebear profile image
Clarebear in reply to Imaaan

Thanks! It took a while to get sorted as you can see from my earlier posts but I barely have to think about my thyroid now - only really when I’m running low on NDT and where I’m going to get my next bottle from! Armour has become ridiculously expensive so I’m very glad to have found Thyroid S!

Imaaan profile image
Imaaan in reply to Clarebear

It was a great reminder to hold on to hope for better days, God willingly.



Brightness14 profile image
Brightness14

No but I have always used the same supplier for the past seven years.

Batch TA 22006 was the bad one I wonder now if it was just very very weak because I was going downhill gradually for forty days.

Rapunzel profile image
Rapunzel

You do know about helvella's help page, don't you?

Thyroid S Batches

A summary of known and suspected potency of Thyroid S batches.

helvella.blogspot.com/p/thy...

Brightness14 profile image
Brightness14

Yes I posted about it last year, but thanks.

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