I recently had my annual thyroid blood tests done by the surgery. They rang back to say that I needed to see a GP. I asked to see the lady doctor who had held my hand whilst transferring from online buying of T3 to getting it through the NHS. She had left. So a telephone appointment was made with a doctor I had never met. I was concerned as I had wasted 3 years of my life being told by another GP that my thyroid levels were fine (thyroidectomy 10 years previously) and that I was depressed. Found my results on Patients Portal and it said TSH Abnormal see doctor. So I feared that they would try to reduce my T3.
Telephone appointment duly arrived so I said straight out that I had not asked for this consultation but had been summoned. The GP replied that it was because of the abnormally low TSH, but that he had looked back over my blood tests and this had been so since taking T3.
So I decided to give him a brief resume of my history and ended by saying "As far as I am concerned, TSH readings are irrelevant in people with no thyroid gland. The important readings are those of T4 & T3, and they need to be in the top of the range, which some people might feel were hyperthyroid; but to feel well and normal this was the case."
The GP replied "I would agree with you, we are on the same page."!! I thanked him profusely.
So I am delighted that he is an enlightened GP; but think that the blood testing units also need education. They state that below the range TSH is abnormal and that there is no need to test for T3.
Thanks for all the support from you all over the years, and to those starting out, good luck and perseverance....