I am having real trouble with and without taking t3. If I don’t add t3 into my 100mcg tirsont and 9.5mcg compounded t3 I feel dreadful with extreme fatigue, body aches and hair loss. But with taking t3 I get really bad racing heart rate (resting 110). I do have Pots so this is already an issue.
I am just seeing if anyone else has been in this same position where tolerating t3 is difficult but without it I honestly feel like I am going to die. Have attached bloods.
Bloods had 24 hour t4 gap and t3 8 hours. No biotin, fasting bloods.
Taking b complex, iron, pro biotic and vit D, COQ10.
Any help would be much appreciated! I have tried cutting my 9.5mcg t3 dose to just 5mcg )split) through the day. But it isn’t enough to make me feel well.
Also note these bloods were based on 100mcg t4 and 5mcg t3. Tsh I know is too high
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Ajva
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Tolerance of thyroid hormones is dependent on vitamin status. I see you've fairly recently started to supplement but it will take a while before you get to where you need to be to tolerate T3 better. Keep taking the supplements and retest in 3 months for them.
Otherwise, regarding thyroid results, you're essentially undermedicated and no wonder dropping the T3 dose makes you feel worse. That's probably a bad idea.
Looking back on your older posts you've been taking T3 containing hormones and never yet had your TSH suppressed which is where it should be. Keeping TSH within the normal range on a T3 hormone will mean you are undermedicated.
thank you. That is very helpful. I have only seen my tsh suppressed when I was on 1 grain armour and 50mcg or t4. Plus the bloods I had done not last time, but the time before. Here were the results. This was on 100mcg t4 and 9.5mcg t3. So I can see how dropping my t3 on halve is causing my issues.
I felt quite a bit better on the armour plus t4. But it played havoc with my pots and blood pressure.
Firstly, probably best to remove that image as it has your personal details.
Difficult to read but that TSH doesn't look suppressed even. Should be .01.
Last bit of advice. Stick with one medication method such as you are now and optimise the blood results by adjusting Levo and T3 doses slowly and in small increments.
ah thank you will remove those details now. It is 0.97 the tsh. I am really struggling to read results with anything under 1 to be honest.
You are completely right it is much easier to dose change with seperate meds. The issue is just my high HR with the t3. May I add I am even on heart meds to lower my HR. My usual resting rate is 60bpm on heart meds. Now it is 100+
I have POTS/pandysautonomia too. Definitely if not on enough T3 I can get a high heart rate. Never been so grateful for my latest 5mcg T3 dose raise!
So your TSH has never been suppressed which means that no treatment that you've tried so far has been taken to optimal levels. Indeed separate Levo + T3 is the easiest to tweak dosing.
Do you have a doctor/endo? Many won't suppress a TSH which is terrible obviously for their patients. I tried NDT years ago and was in that situation, also didn't have optimal vitamin levels and failed miserably.
Bizarrely if you had a small dose increase of 5mcg T3 then your heart rate might calm down. This would be helped by a higher iron/ferritin level. My heart used to go wild with low ferritin! Split your dose to 2 or 3, so one waking, one mid afternoon, one bed time.
I do wonder how much of the pots symptoms are due to thyroid. It all started at the same time for me so not sure if it is coincidence.
Now I have been on t3 I could be without it. I tried a few weeks without it and I honestly felt dreadful. Also the more I increase t4 the worse I feel. Can hardly get out of bed with high dose t4 only. I was on NDT for years. Issue I had is my t3 was top of range, tsh high and t4 really low. So added in 50 levo but felt hyper as my t3 was going over range.
I actually just get my scripts off of a prescribing pharmacist. I pretty much tell her what I would like to do script wise. And I am on compounded t3 so can dose what ever dosage which is easier.
There's a link with POTS and hypo but noone knows what yet. Pretty high percentage of POTS sufferers are hypo which is more than a coincidence.
I'm definitely much improved having got all vitamins optimal and now adding T3. Not there yet but have a bit more stamina, not crashing, improved heart rate but I'm not optimal thyroid wise yet + it can take months even on the right dose. Patience is key.
Fillers can be an issue, I felt like you on Levo that had lactose in it. Also sub optimal vitamins can make you feel terrible on Levo.
PS I just put your numbers in to a calculator and both your FT4 & FT3 are at 50%. Most people feel well when they are at 60-70%. Only change one thing in a small way at a time. Retest after 6-8 weeks on a steady dose. Adding T3 can drop FT4 slightly.
TSH is kind of irrelevant when on anything containing T3, it should be suppressed which yours is not, so no it's not OK. Better to go on FT4 & FT3 %'s and get them to 60-70% of their range. Link to calculators is at top right of group page.
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