I received a diagnosis that I have Thy3 lesion in my left thyroid (the right was removed 5 years ago due to large goiter) and advised that I should be monitored using ultrasound. Many of my symptoms such as flushing, anxiety, sleeplessness, swelling in the neck, difficulty in swallowing, hoarse voice, would indicate cancer but as the lesion has been downgraded to category 3a and because I had a mild stroke 8 months ago, no surgery on the thyroid is offered. I have also been diagnosed with lateral venous thrombosis but the blood clot in tgd vein, apparently, has been there from a long time and new blood vessels formed around it, so treatment now focuses on antiplatelet therapy to prevent another stroke and leaving the clot alone (especially that anticoagulants made me feel ill and upset my thyroid. I have been beta blockers to control my thyroid over activity gif over 15 years. My thyroid function has improved since the stroke with Tsh going up from 0.02 (during the anticoagulant treatment with Apixaban and various injections and formulation taken because of severe side effects of these anticoagulants ) to 0.67 after changing to Gingko Biloba as a natural blood thinner. I also take a very small dose (2.5 mg Carbimazole)
My T3 has always been in mid-range and T4 tends to he in the upper quarter of the range. I am concerned that current guidance on Thy3 lesions are being challenged by the latest research, suggesting much higher malignancy rates of 40%. I am also concerned that my sick thyroid can lead to another stroke as I get spikes in blood pressure during the hot flushes. I do not respond well to blood pressure tablets. My other symptoms of having severe digestive problems and aching joints can also be attributed to my sick thyroid. I am very uncertain as to what to do. I understand the risks associated with a total thyroidectomy, especially in my condition, but feel that doing it is a lesser risk ( I know an excellent surgeon who removed my right thyroid) and may bring significant improvement to my health. Please help.
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Britpol
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Thank you. All of the tests have been done and are within the norm. I wish I knew the statistic on how many patients are well after total thyroidectomy. Apart from 49% probability of mind being malignant, I am now finding out that sick thyroid can be linked to a stroke (which I had) and Aldi poor gait leading to falls (which I also suffer from).
hello there, I have graves disease and had a total thyroidectomy in June this year.I was diagnosed in 2018 and after trying a couple of different treatments(carbimazole only and carbimazole with levothyroxine) I decided on this.I feel really well on levothyroxine only and feel that I am still improving even now.I am realistic that this is early days for me in the grand scheme of things.I have tried to keep my profile up to date from the start of my journey .If it would be helpful to you and you care to take a look you can click on the icon at the side of my name and it is there.Best wishes to you.
thank you very much; it is very reassuring. I had problems with my thyroid since childhood and would really get rid off it now, but I had a stroke 8.5 months ago, so the surgeon is too nervous. Having said that, this was my second stroke, as the MRI has shown this year. The first one went undetected by CT scan in the hospital but I know it was in 2019 when I had a temporary amnesia and some unspecified infection. The more I read about thyroid the more I realise how it can poison the whole body; I, too have stiffness in joints and muscles, problems sleeping, and digestive problems. I think that postponing surgery may be more dangerous than proceeding with it. But I have a battle ahead.
Yes, until you have a thyroid problem you don't realise how it affects your whole body.I still feel alot better than I did but now seem to be having a problem with my blood sugars.I have read that thyroid and diabetes can be closely connected.I have an appointment with my GP to have them checked.That's another thing which can affect my eyes.I can also see how you're worried about strokes, especially as an overactive thyroid can cause fast heart-rate etc.It's a balancing act isn't it, I'm still glad I had mine out, as for me it seemed very difficult to control.It's one less thing to cause problems.At the moment as I seem to be pretty stable on thyroxine.Good luck to you and I hope everything works out.
I hope you continue to improve and thank you for sharing your experience. I have been sub-clinical hyperthyroid most of my life (am 71 now) but a lot of my symptoms were the same as yours. I am tired of them and worry about the high risk of malignancy (acc to latest research into 3f and 3a nodules) as well as another possible stroke which the specialists don’t seem to associate with the sick thyroid. Because my case is not as clear cut as yours, I have a battle on my hands as regards surgery.
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