Reducing NDT: Hi everyone, I have redone the... - Thyroid UK

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Reducing NDT

AnnaSo profile image
19 Replies

Hi everyone,

I have redone the thyroid panel after stopping supplement with biotin (small amount) for over a week but my results are still too high.

I’ve got Hashimoto’s and been on 3.5 grains of Thyroid S for 4 years now. I gave birth 3 months back and started new batch of Thyroid S a week after.

I used to take 3.5 grain and have T3 at 6.4-6.7 (3.5-6.5) and feel great. Now I take 3.25 and T3 is up at 11.3 (been increasing over the 3 months too - at first test postpartum test T3 was 8.4 on 3.5 grain and got higher and higher at each test every 4 weeks).

I’m really lost with it all. Does anyone has any insights?

Also how do I reduce my current dose - do I go by 0.25 the same as increases go?

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AnnaSo profile image
AnnaSo
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19 Replies
pennyannie profile image
pennyannie

Hello AnnaSo

Yes any adjustments to dose need to be by 1/4 grains.

Maybe detail the batch number of your Thyroid S for any feedback ?

I'm not aware of any difference having taken both pre and post reformulated Thyroid S.

How long do you leave between last dose and blood draw?

I don't know anything regarding thyroid hormones after giving birth and breast feeding but would imagine things take time to settle.

AnnaSo profile image
AnnaSo in reply to pennyannie

hi pennyannie,

Thank you for your reply! The batch number is 21079. I previously posted about it but didn’t seem that new batches had same effect on others, although some felt it was bit stronger. I left 10h before taking the dose and the test, the same as I have been doing all the 4 years taking it.

I have read that postpartum can have impact on the thyroid for a couple of months (going too high and then crashing) but with the unfortunate timing of taking the new batch I am left wondering whether it is pregnancy or Thyroid S effect. Although I’m leaning towards pregnancy scenario now that one more test was done and T3 is higher again…

pennyannie profile image
pennyannie in reply to AnnaSo

Yes, thank you I've just looked back again - memory not so good late afternoon !!!

I too am leaning your way especially since you have a diagnosis of Hashimoto's AI disease and hopefully in time things will calm back down again.

AnnaSo profile image
AnnaSo in reply to pennyannie

fingers crossed! 😊

pennyannie profile image
pennyannie in reply to AnnaSo

Not when changing a nappy !!!

SlowDragon profile image
SlowDragonAdministrator

Important to test vitamin D, folate, ferritin and B12

We need GOOD vitamin levels to use thyroid hormones well

Very common to be anaemic after giving birth

Especially if lost lot of blood

When were vitamin levels last tested

What vitamin supplements are you currently taking

AnnaSo profile image
AnnaSo in reply to SlowDragon

hi SlowDragon,

Thank you for your response! I had all the above test done during pregnancy and right after birth too. All but ferritin and iron were in upper range. I had an iron infusion done to correct it and it’s just above mid range now and I take iron as well. I take a postpartum supplement too which is kind of a multivitamin. I take magnesium as well.

SlowDragon profile image
SlowDragonAdministrator in reply to AnnaSo

exactly what is postpartum vitamin supplement?

greygoose profile image
greygoose

Sounds like you've had a Hashi's 'hyper' swing. Which wouldn't be surprising after giving birth, it's such an upheaval. And, if that is the case, you don't want to reduce your dose permenantly, because the excess hormone will be used up/excreted with time, and you will become hypo again. :)

AnnaSo profile image
AnnaSo in reply to greygoose

hi greygoose,

Thanks for your reply! I have heard about it but never experienced before. But you’re right that pregnancy and birth hormones perfect storm can do funny things :) So do you recon I lower the dose slowly but keep monitoring every 4 weeks? I definitely don’t want to go hypo :)

Also I don’t have any hyper symptoms, is this normal? Is 11.5 (3.5-6.5) not high enough for symptoms?

greygoose profile image
greygoose in reply to AnnaSo

I would say that possibly your levels aren't high enough to cause hyper symptoms, but we're all different, and some people would feel dreadful with those levels.

I would also say to lower your dose very slowly, and increase again at the first hint of a hypo symptom. Impossible to know in advance how long it will take you to become hypo again.

AnnaSo profile image
AnnaSo in reply to greygoose

Yes will do that and keep tests going because sure enough it will crash at some point…

PixieElv profile image
PixieElv

Congratulations on your new baby. I hope all is well with you both.

Do you feel Hyper/over medicated as with NDT we dose to treat our symptoms and don’t go by blood results.

Also, it is recommended to leave at least 12h between bloods and tests.

If you do want to reduce 0.25 grain is the right amount

I hope all goes well

AnnaSo profile image
AnnaSo in reply to PixieElv

it’s going well thank you :)

I don’t actually have any hyper symptoms but don’t think this dose is right for me. I’ve been feeling great for 4 years on 3.5 grains but my T3 was much lower - top of the range sometimes slightly over. Now it’s almost double that and I worry what damage that could do to my health if it stays so high…

kmf0503 profile image
kmf0503

Hi,

If I felt hyper I would reduce .25 as others have said and test in 4-6 weeks. If you don't feel hyper symptoms you could perhaps do nothing and test again in 4-6 weeks. I can only tell you that both my DIL's had postpartum thyroid issues. One swung from hyper to hypo and the other went hypo during pregnancy and has remained so. The other one seems to have settled down without any intervention so I think I would be inclined to see what Mother Nature leaves you with, as long as you do not feel unwell. Pregnancy and postpartum are times of great upheaval and change in the body so it is difficult to know what came first...the chicken or the egg. Congratulations on your new baby. I absolutely love the newborn period. ( former neonatal nurse) Tiring but they are so lovely when they are brand new. :)

AnnaSo profile image
AnnaSo in reply to kmf0503

hi and thank you! :)

I’m now thinking that just as your DIL I’m also having a swing where it went hyper but will go back down eventually. Was contemplating waiting bit longer because read that usually the hyper phase last 3/4 months so I’m reaching that point now, but I’m a bit worried what effect this is having on my health. I’m not much across hyper stuff, I’ve only ever been hypo due to Hashimotos

You’re right, newborns are so adorable :) but it goes so fast and the newborn days feel like a blur now - I guess the lack of sleep and crazy thyroid are to blame :) it all happens so fast so really have to cherish those special moments

Duckydoodle profile image
Duckydoodle

I haven’t had time to read all of the replies, but your sex hormones plummet after givibg birth - and those (particularly estrogen) interact with thyroid hormone. I’m post meno now and every time I try to take estrogen, I have to raise my thyroid meds….

AnnaSo profile image
AnnaSo in reply to Duckydoodle

Oh that’s interesting! Our bodies are so complex it’s mind blowing how everything is linked. I reduced the dose by 0.25 and will see what the next month and next test brings

TSH110 profile image
TSH110

it says how to decrease in this guide if you over do it avd huves really helpful advice on getting the dose right:

tpauk.com/main/article/trea...

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