moving from ndt to t4/t3 due to cost

[london81]

i’m on 4 grains of NP and two metavive ii

I have hashis and have been on ndt for around 7 years

In 2014 I paid around £65 for 100 grains of Nstire Throid 5 grain which lasted 3 months. I will now be looking at £240 for 100 x 2 grain of NP plus postage and customs. plus £25 for the metavive which lasts 26 days.

I’m at the point i’m lending money to buy what I need every 5 months

I had a prescription for levo plus T3 from a private consultant. but he wanted to start me on 125 levo and 15 mcg T3 which is a drastic reduction. So I didn’t take it. I also had a bit of chest pains in the past when I tried adding t3 to my NDT.

I could go onto levo and t3 at any time as I have bought a large amount of T3. but i’ve been putting it off as i’m well and stable plus i’ve just lost weight for first time in years.

My question is has anyone moved across from NDT to levo and T3, and did you need to start low or swap over direct? I am testing my thyroid and vitamins with thriva next month and will see where my health is at before i make any decisions!

thank you

[arTistapple]

Sorry don’t know anything about answering your question but I am horrified by your story. I know it’s not unusual in itself on this forum. It’s ridiculous that we have to feel so vulnerable when the NHS is supposed to be free at point of need. This extra burden of finding cash as well as the uncertainty of supply is further overwhelming us.

[london81 in reply to arTistapple]

thank you. so sorry i didn’t get a notification so i’ve just seen this.

Yes and i’m quite lucky i’ve just got a new job so can just about afford to repay a loan. i’m also paying for dental care. SIGH

I work in a legal job and my mum is a solicitor so I think if i’m refused T3 I may well look at a legal challenge. the law side of things might be slightly easier than getting the medical evidence together to prove to a high standard that people need T3!

my father was undiagnosed for years and has been sectioned many times, i believe due to hashimotos. even now the psychiatrist and endocrine doctors don’t talk or understand how the illnesses affect each other!

I feel the nhs is now only for urgent care like heart attacks and broken legs. it’s going to be private soon and for me i’m paying anyway! i’m sad for those who cannot pay/do not have tools to navigate this system