Daughter post partum thyroiditis?: My daughter... - Thyroid UK

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Daughter post partum thyroiditis?

Sususulio profile image
2 Replies

My daughter was diagnosed in June with post-partum thyroiditis manifesting itself through night sweats and insomnia, lots of problems getting to that point she’d been unwell since April but constantly told it was the anxiety of a new mum and referred to well being courses!!!

Eventually she managed to get a blood test and her levels were ‘very high’

I believe T4 was in the high 50’s and reference range up to 22…. Despite asking several times the GPS surgery has not allowed access to medical records.

the consultant letter has just arrived apart from beta blockers she is on no treatment, they aren’t keen to prescribe sleeping and she doesn’t really want to rely on them but sleep is still an issue.

Question is - is the only option to wait it out, with a young baby sleep is an issue but exert below from consultants letter - what do you think she should/could do next?

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Sususulio profile image
Sususulio
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pennyannie profile image
pennyannie

Hello Sususulio

In reading the letter it talks of these 2 anti- bodies which could circulating in the blood stream and the logical next step is surely to further analyse the blood to identify if either are positive and over range as then that is the medical evidence and on which treatment plan based if deemed necessary.

The antibodies being referred to are either written as a TRab - a thyroid receptor blocking antibody and suggestive of Graves and or written as a TPO - a thyroid peroxidise and generally suggestive of Hashmoto's - both are thyroid auto immune diseases.

Since your daughter has recently given birth it's likely still a bit of a waiting game for her body to rese, and am not sure what time frame is seen as acceptable.

SlowDragon profile image
SlowDragonAdministrator

Your daughter is legally entitled to printed copies of her blood test results and ranges.

The best way to get access to current and historic blood test results is to register for online access to medical record and blood test results

UK GP practices are supposed to offer everyone online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is she may need "enhanced access" to see blood results.

Link re access

healthunlocked.com/thyroidu...

In reality many GP surgeries do not have blood test results online yet

Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up.

Important to see exactly what has been tested and equally important what hasn’t been tested yet

 

For full Thyroid evaluation she needs TSH, FT4 and FT3 tested

plus both TPO and TG thyroid antibodies tested for autoimmune HYPOTHYROID disease, also called Hashimoto’s

Hashimoto’s frequently starts with transient hyperthyroid results and symptoms before becoming increasingly hypothyroid

Can have slightly raised TPO or TG antibodies with Graves’ disease….autoimmune HYPERTHYROID disease

Link about Graves’ disease

thyroiduk.org/hyperthyroid-...

Graves Disease antibodies test

Can’t be DIY finger prick….must be private blood draw

medichecks.com/products/tsh...

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis. 

Low vitamin levels are extremely common with Graves’ disease or Hashimoto’s

Recommended on here that all thyroid blood tests early morning, ideally just before 9am

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

Only do private testing early Monday or Tuesday morning. Watch out for postal strikes, probably want to pay for guaranteed 24 hours delivery 

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism 

thyroiduk.org/wp-content/up...

Email Thyroid U.K. for list of recommended thyroid specialist endocrinologist and doctors 

tukadmin@thyroiduk.org

20% of Hashimoto's patients never have raised antibodies 

healthunlocked.com/thyroidu...

 

Come back with new post once you her GP test results

And/or new private results

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