Following on from my last post about not being able to keep my thyroid stable since having Hashis I’ve now got my latest test results. I’m going to be retested in 6 weeks and that will also include magnesium, ferritin.
Results are T3 - 4.7 (3.9-6.8) T4 11.6 (11-26) TSH less than 0.01. (0.27-4.2). Both t3 and t4 have dropped since November when they were t3 5.5 and t4 15.2. I have no idea why this has happened and needless to say due to TSH they’re talking about dropping my Levo which is currently 75mcg per day. Endo said taking T3 can sometimes push down T4. I felt like my T4 was probably low and wanted more medication, not less!! Any suggestions to help would be appreciated x
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Yes…..many people find they need BOTH Ft4 and Ft3 at least half way through range
What vitamin supplements are you currently taking
What are your most recent vitamin results
I take Vit D, selenium and B. It’s about a year since I was tested so I’m going to be retested in a few weeks. I also started through the skin HRT in Feb and have read that this can affect levels. He wants to lower my Levo in a few weeks after I’ve been retested, but that will send it through the floor! On these forums the consensus seems to be TSH isn’t important, but that goes against what the medical profession say? I asked my Specialist what could happen with suppressed TSH and he said heart and bone problems. I’m thinking maybe reduce t3 slightly and up t4? What are your thoughts? X
How much T3 are you currently taking
Was test done early morning before 9am, last dose Levothyroxine 24 hours before test and last 1/3 Rd of daily T3 approx 8-12 hours before test
Yes HRT frequently results in needing dose increase in thyroid hormones
I take 15 mcg split and 75mcg Levo. I had the test at 8.30 on empty stomach and no caffeine.
So last dose T3 was somewhere between 8.30pm and midnight
FT4: 11.6 pmol/l (Range 11 - 26) 4.00%
FT3: 4.7 pmol/l (Range 3.9 - 6.8) 27.59%
Helpful calculator for working out percentage through range
thyroid.dopiaza.org
Ft4 would be far too low for many people on levothyroxine plus T3
Suggest you increase levothyroxine by 12.5mcg to 87.5mcg daily and retest in 6-8 weeks
Likely to need further increase in levothyroxine after this to 100mcg daily
Always get same brand levothyroxine at each prescription
Hi runner25I have just come back from an appointment with nhs endocrinologist who told me (amongst other things) that I was hyper and likely to get osteoporosis and arterial fibrillation and he wants to try and bring my tsh up. I have no idea how he thinks he'll achieve that and I'm terrified I'll be ill. He's reduced my t4 from 125 to 75 and increased t3 from 10 to 15! I went private before this and was looking for a prescription to maintain current levels. The private endocrinologist said that the whole tsh being suppressed causing heart and bone issues was overused and outdated . Current endocrinologist couldn't give a crap whether I'm on my knees or not. Just tsh in his range. I hope you get sorted out.
Honestly, I feel your pain! Being told constantly that you’re within range so should be feeling ok,or that even though you feel crap your TSH is too low is just not helpful at all!! I think I’m going to have to play around a bit with my dosing, I’m wondering if less T3 but more Levo might work? If I were you, I’d only be willing to do very measured, smaller adjustments to see how things go, but nowhere near the drastic drop that they’re suggesting. It really is the pits isn’t it. I’ve just taken a week off sick for the first time since my thyroid issues began as I could feel myself sliding into very hypo symptoms and I only did that because we’re going on holiday on Monday and I’m determined not to be feeling crap. I’m trying to rest up and am mainly watching Wimbledon, but I’ve never sat on the sofa as much as I do now with thyroid issues! Urgh, so dull!! I do have good weeks too and really try to make the most of them, but getting the balance right is hard isn’t it. I hope you manage to convince them to do things slowly and that it all works out for you. X
HiI know that feeling only too well! I've never been so heavy and inactive as now and I'm finding it hard to come to terms with. I was actually very close to feeling normal. I was even trying to get back to running but it feels like I'm not moving forward and I just cannot speed up! Dr couldn't care less. Said effects of under treated negligible. I felt things only needed tweaking but he's gone in with a sledgehammer. Thankfully he hasn't changed my levo prescription so I can increase if it doesn't work. I think it's a good idea to take time off. You need a break and perfect timing to watch Wimbledon 🎾
Hopefully you’ll find that an increase in t3 will really help you to be active like you want to. I guess the only thing is it will, as I have just discovered, possibly push down your t4 and tsh! I expect you already do this, but I keep a diary to try to track my symptoms, blood results. Literally a few words to say how I’m feeling. It’s quite funny though as I generally only write daily when I’m feeling crap and then there’ll be a gap of a few weeks when I must have felt generally ok. I don’t want to know anything about thyroid when I’m feeling ok so I don’t log anything and then I start up again when I’m sliding down the pan again! Don’t give up. Keep asking questions and changing Endos if you are not having much luck, you deserve a good life! Xx
Thank you. We all deserve a good life. Good tip though. I don't have the option of changing nhs endocrinologist but I might ditch him and go back to private!