Recent blood results : Hi , been a delay in... - Thyroid UK

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Recent blood results

Johnljc profile image
19 Replies

Hi , been a delay in picking these up as have been away .

TSH LEVEL 2.4 0.35-5.50

T4 LEVEL 12.7 7.86-14.41

B12 LEVEL 305 150-750

VIT D LEVEL 45.3 50-150

Been told vit d is marginally low and to get otc supplements

Reason for blood test was because hot flushes and sweating

Currently taking 75mcg of eltroxin and was taking wellman multi vit ( stopped taking a week before test)

Anyone have any thoughts on results.

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Johnljc profile image
Johnljc
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19 Replies
OudMood profile image
OudMood

Has the FT3 been tested at all?

Also how do you feel on the current dose?

The vitamin D is NOT "marginally low" it is EXTREMELY low.

Most people benefit from the value being around 100-125.

You can also have a look at calculators telling you about a loading and maintenance dose to ideally achieve those levels.

grassrootshealth.net/blog/n...

You can then ask GP to retest or test using Monitor My Health NHS service which is about £29.

monitormyhealth.org.uk/#vie...

Johnljc profile image
Johnljc in reply to OudMood

Thanks for replying, yo my knowledge ft3 has never been tested. Also I have never truly felt comfortable on levothyroxine

OudMood profile image
OudMood in reply to Johnljc

Normally a thyroid panel includes TSH, FT3 and FT4 as a minimum.

You do need to know what the FT3 is doing as it's the hormone "responsible" for the majority of our symptoms. Unfortunately, very rarely do the labs test for it even when a GP makes the request, which is a shame.Many of us have to test privately, the cheapest available is via Monitor Myhealth linked above, for £26.10 as you can use code: "THYROIDUK10" for 10% off.

monitormyhealth.org.uk/#vie...

Try to do the blood draw between 8am and 8.30 am as TSH drops significantly after that time.

When doing the blood tests afterwards, keep it consistent.

SlowDragon profile image
SlowDragonAdministrator

B12 is also too low

No folate or ferritin results?

Multivitamins are never recommended on here. Most contain iodine not recommended for anyone on levothyroxine. Cheap poorly absorbed ingredients.

Low B12

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid) may be beneficial.

This can help keep all B vitamins in balance and will help improve B12 levels too

Difference between folate and folic acid

chriskresser.com/folate-vs-...

B vitamins best taken after breakfast

Thorne Basic B or Jarrow B Right are recommended options that contains folate, but both are large capsules. (You can tip powder out if can’t swallow capsule)

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate methyl folate supplement and separate B12

Low B12 symptoms

b12deficiency.info/signs-an...

With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a B12 supplement as well as a B Complex (to balance all the B vitamins) initially for first 2-4 months.

once your serum B12 is over 500 (or Active B12 level has reached 70), stop the B12 and just carry on with the B Complex.

B12 sublingual lozenges

amazon.co.uk/Jarrow-Methylc...

cytoplan.co.uk/shop-by-prod...

healthunlocked.com/thyroidu...

How other member saw how effective improving low B vitamins has been

healthunlocked.com/thyroidu...

Johnljc profile image
Johnljc in reply to SlowDragon

What sort of range should my b12 be ?

SlowDragon profile image
SlowDragonAdministrator in reply to Johnljc

B12 At least over 500

Folate and ferritin at least half way through range and vitamin D at least around 80nmol

Johnljc profile image
Johnljc in reply to SlowDragon

Is there a calculator out there for how much b12 to take or is it just a generic dose

SlowDragon profile image
SlowDragonAdministrator in reply to Johnljc

Start with vitamin B complex - either Thorne Basic B or Jarrow B right

Only add one supplement at a time, then wait at least 10-14 days to assess before adding another

After two weeks add in B12 sublingual supplement

Retest in 2-4 months

Once Serum B12 is over 500, or Active B12 is over 70…..stop separate B12 and just continue with daily vitamin B complex

How much vitamin D are you currently taking

Likely to need at least 3000iu - 4000iu daily

Retest after 2-3 months

Once vitamin D reaches 100-125nmol…..reduce vitamin D dose to maintenance level. Trial and error what dose that is

For some it might be 2000iu daily all year

Others might need 2000iu in summer and 3000iu in winter

Or if gluten intolerant/dairy intolerant, likely to need higher dose….4000iu or more just as maintenance dose and higher to increase vitamin D levels

Test twice yearly via NHS private testing service when supplementing

vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.

There’s a version made that also contains vitamin K2 Mk7. One spray = 1000iu

amazon.co.uk/BetterYou-Dlux...

It’s trial and error what dose we need, with hashimoto’s we frequently need higher dose than average

Vitamin D and thyroid disease

grassrootshealth.net/blog/t...

Vitamin D may prevent Autoimmune disease

newscientist.com/article/23...

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Great article by Dr Malcolm Kendrick on magnesium

drmalcolmkendrick.org/categ...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

SlowDragon profile image
SlowDragonAdministrator

TSH LEVEL 2.4 0.35-5.50

T4 LEVEL 12.7 7.86-14.41

TSH is too high

Was test done early morning, ideally before 9am and last dose levothyroxine 24 hours before test

Request increase in levothyroxine to 75mcg and 100mcg alternate days and retest in 2-3 months

Approx how much do you weigh in kilo

Guidelines on dose levothyroxine by weight can help get dose increase in levothyroxine

TSH should be under 2 as an absolute maximum when on levothyroxine

gponline.com/endocrinology-...

Replacement therapy with levothyroxine should be initiated in all patients to achieve a TSH level of 0.5-2.0pmol/L.

NHS England Liothyronine guidelines July 2019 clearly state on page 13 that TSH should be between 0.4-1.5 when OPTIMALLY treated with just Levothyroxine

Note that it says test should be in morning BEFORE taking levothyroxine

Also to test vitamin D, folate, B12 and ferritin

sps.nhs.uk/wp-content/uploa...

Graph showing median TSH in healthy population is 1-1.5

web.archive.org/web/2004060...

Aim is to bring a TSH under 2.5

UK guidance suggests aiming for a TSH of 0.5–2.5

gp-update.co.uk/SM4/Mutable...

Persevere - have all guidelines printed and be ready to quote them

healthunlocked.com/thyroidu...

Johnljc profile image
Johnljc in reply to SlowDragon

That's the problem with going through the doctors, they just see it's fine and leave you be ..... my next endo appointment isn't till November too..

SlowDragon profile image
SlowDragonAdministrator in reply to Johnljc

Suggest you improve B12, folate and vitamin D and get TSH, Ft4 and Ft3 tested by Monitor My Health in 6-8 weeks time

Essential to test TSH, Ft4 and Ft3 together

Looking for Ft3 at least 50-60% through range

For good conversion of Ft4 to Ft3 we need OPTIMAL vitamin levels

Always test thyroid levels early Monday or Tuesday morning, before 9am and last dose levothyroxine 24 hours before test

Which brand of levothyroxine are you currently taking

Do you always get same brand at each prescription

Come back with new post once you get full thyroid results

How much do you weigh in kilo

You have to be assertive.

Print out guidelines that help argue for dose increase and put forward your case

SlowDragon profile image
SlowDragonAdministrator in reply to Johnljc

endocrinologist also should be testing testosterone

As a bloke and under medicated, testosterone levels can drop

thyroidpharmacist.com/artic...

Johnljc profile image
Johnljc in reply to SlowDragon

No , been tested once a few years ago .... can't remember the result but was told it was in range

SlowDragon profile image
SlowDragonAdministrator in reply to Johnljc

So request new testosterone test in November

Always get actual results and ranges on all tests

Keep good records of all your results

The only person who can manage this disease is you

Keeping all four vitamins optimal essential

Test folate, ferritin and B12 at least annually

Test vitamin D twice year

SlowDragon profile image
SlowDragonAdministrator in reply to Johnljc

Do you always test thyroid levels early morning, before 9am and last dose levothyroxine 24 hours before test

Always get same brand levothyroxine at each prescription?

How much do you weigh in kilo

SlowDragon profile image
SlowDragonAdministrator

Are you already on gluten free or dairy free diet?

If not already gluten free get coeliac blood test done BEFORE considering trial on gluten free diet

Johnljc profile image
Johnljc in reply to SlowDragon

Been tested for coeliac and was fine

SlowDragon profile image
SlowDragonAdministrator in reply to Johnljc

Only 5% of Hashimoto’s patients test positive for coeliac

But further 80% of Hashimoto’s patients find strictly gluten free diet helps, often significantly, or is absolutely essential

It’s ALWAYS worth trying gluten free for minimum 3-6 months

Low vitamin levels shows gut is affected

SlowDragon profile image
SlowDragonAdministrator

Retest full thyroid and vitamin levels after 8-10 weeks

B12 range in U.K. is too wide

Interesting that in this research B12 below 400 is considered inadequate

healthunlocked.com/thyroidu...

How other member saw how effective improving low B vitamins has been

healthunlocked.com/thyroidu...

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