Recent Thyroid Blood results

[bubbatetley]

Hi, hope you are all ok.. My recent blood results are

FT4 = 14 . 5

FT3 = 6 . 8

TSH = 0.01

VIT D = 67 . 0

Calcium = 2 .48

Can any one advise please

Thank you

regards

Bubba

[SeasideSusie Remembering]

bubbatetley

Please add the reference ranges for your results. These differ from lab to lab and we can only interpret results when ranges are also given.

Please add unit of measurement for Vit D - nmol/L or ng/ml.

What thyroid meds are you on?

When did you take your last dose?

How do you feel?

[bubbatetley in reply to SeasideSusie]

T4 = 14. 5 pmol/L 11 - 22 . 6

T3 = 6 . 8 pmol/L 3 . 5 - 6 . 5

TSH= 0 .01 mU/ L 0. 2 - 4 . 0

Serum Vitamin B 12 level 411 ng/L { 211 . 0 - 911 .0}

Folate level [ 42U5 11 . 5 ug/L [ 3 . 0 -14. 4}

-

[SeasideSusie Remembering in reply to bubbatetley]

What thyroid meds are you on?

When did you take your last dose?

How do you feel?

[bubbatetley in reply to SeasideSusie]

I am on

Levo 75mcg 1 daily

Liothyronine 50 mcg daily

Vit D 3,000 units daily

These med were taken AM/PM

Feel awful with so many symptoms

itching

Brain fog

anxiety

insomnia

no appetite

Dry Eyes

chronic wind

hair loss, esp eyebrows

nausea

[SeasideSusie Remembering in reply to bubbatetley]

These med were taken AM/PM

We need to know when you took your last dose of Levo and T3 before your test.

Last dose of Levo should be 24 hours before test.

Last dose of T3 should be 8-12 hours before test, and we need to know if you split your T3 into multiple doses the day before, if so what was the split and the amount of the last dose taken.

It's crucial to know these timings so that we can interpret your FT4 and FT3 properly.

[bubbatetley in reply to SeasideSusie]

Hi, not due for any bloods for 6 weeks. I

Cheers!

[bubbatetley in reply to bubbatetley]

Constant sneezing. pains in throat and sounding like I have a cold all the time with a runny nose, always very cold and then very hot

[greygoose in reply to bubbatetley]

You haven't answered the most important question:

We need to know when you took your last dose of Levo and T3 before your test.

Susie can't tell you any more without knowing that.

[SlowDragon Administrator in reply to bubbatetley]

A month ago your last post said your Liothyronine had been increased from 20mcg to 30mcg (3 x 10mcg per day)

Yet here you say you are on 50mcg T3

Are you 50mcg or 30mcg T3?

Taking too much T3 and/or increasing too quickly can make you feel extremely unwell

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

If/when also on T3, make sure to take last dose 8-12 hours prior to test, even if this means adjusting time or splitting of dose day before test

Is this how you did the test?

[bubbatetley in reply to SlowDragon]

Sorry SlowDragon, i've made a mistake, I am taking Liothyronine 30 mcg daily, I split the dose to 10 mcg 3 times a day. Not due for any bloods to be taken for a month, I don't take any of my Thyroid meds until after blood draw, and I stop taking the Levo 24hrs before, and Lio 8 - 12 hrs prior to test,

I am going to see a Professor of Endocrinology on Friday, hopefully he can help me feel better. My present Endo is struggling with me and is saying I am a very complex patient and not tolerating any of the medication. So I have asked for a second opinion, so fingers crossed for Friday.

Thank you

Kind regards

Bubba

[SlowDragon Administrator in reply to bubbatetley]

So your Levothyroxine is probably too low

FT4 14 (12-22)

That's only 20% through range

Many of us need good FT4 and FT3

Suggest you increase Levothyroxine by 25mcg and retest in 6-8 weeks

All four vitamins need to be optimal

Vitamin D at least around 80nmol and around 100nmol may be better

B12 is likely too low

B12 and folate near top of range

Ferritin at least half way through range

What vitamin supplements do you currently take?

Do you have Hashimoto's?

Are you on strictly gluten free diet

Bloating and IBS suggests gluten intolerance

Dairy or lactose intolerance is common.

Sneezing and runny nose suggests lactose intolerant

If you are lactose intolerant you would need lactose free Levothyroxine and T3

[bubbatetley in reply to SlowDragon]

Thank you SlowDragon, would I feel this ill though if i undermedicated? MY Endo wanted me toreduce Levo to 50mcg, but I refused as I know it will make me not able to move and be very lethargic, I really am in a terrible place and have contemplated suicide.. These damn doctors do not understand how desperate alot of us are, and are only interested in your blood ranges, they need to learn more and be more compassionate and listen to us in depth..,rather than dismissing us with a few pills and say see ya in 6 weeks... THEY ARE USELESS!!!!!!

[SlowDragon Administrator in reply to bubbatetley]

I was extremely ill for long time. Frequently bed bound, in wheelchair etc. See my profile for my own thyroid journey

What have I learnt on here......GOOD vitamin levels are essential and key to making progress

Endocrinologist see unaware that vitamins "within range" are not the same as optimal vitamin levels

Eg I had vitamin D at 60nmol...it's not deficient.....but this is far too low for someone with Hashimoto's.

Also I only discovered recently, when I got access to historic blood test results online ..... I had been extremely Vitamin D deficient years ago when I was extremely ill. I was never told or vitamin D prescribed...and in days before online forum...was unaware of its significance

Gluten intolerance is extremely common.

Again endocrinologists will test for coeliac, but still never seem to advise Hashimoto's patients on trying strictly gluten free diet

Only coming to this forum did I see just how likely gluten intolerance was despite the factI had zero gut symptoms.... tested negative for coeliac twice ......endoscopy confirmed I was extremely gluten intolerant.

Many, many Hashimoto's patients are also lactose intolerant

[bubbatetley in reply to SlowDragon]

Thankyou, I will read your profile,, I too am still learning about this awful disease and would be so very lost without this Forum..

kind regards bubba

[bubbatetley in reply to SlowDragon]

Hi SlowDragon, thank you for replying. I have got a DVT in my leg, had it now for 3 weeks. Going for a scan tomorrow to see what has caused it. I'm taking blood thinning meds. The pain is horrendous and the leg is so swollen.. Yesterday my Endocrinologist rang to let me know about my recent blood results.. I have posted them on here. She has changed my T3 to 5mcg twice daily and kept me on Levo 100mcg. She said that my ranges were in fact good, and that she was reluctant to change my T4 dose, even though I am still feeling so ill yet again.

Take care, and thank you for all the advice you have given me.

Keep safe

🌺

[SlowDragon Administrator in reply to bubbatetley]

Do you feel more unwell in mornings than evenings?

This can suggest adrenal issues

Has endocrinologist done any adrenal testing

24 hours urine collection

ATCH test

Have you considered saliva cortisol and DHEA testing

NHS still don't offer this comprehensive cortisol test

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[bubbatetley in reply to SlowDragon]

HI, i feel ill as soon as I wake up, but have difficulty sleeping at night.. I am going to see a Professor this Friday for the first time.. My previous consultant never did a saliva test, when I did ask her about it, she said it was not necessary.. neither did she do urine or ATCH ... Hopefully the Professor will do more tests. I will ask him..

[Merlio18 in reply to bubbatetley]

Hi can I ask who the endo is you are going to see as I am in the same situation as you and need an endo who is will to prescribe a brand on an individual patient basis as I am very sensitive and need to get a second opinion ?

Thanks Nicola

[bubbatetley in reply to bubbatetley]

Thank you Seaside Susie

[bubbatetley in reply to SeasideSusie]

Hi SeasideSusie, Good day. Did you look at my Blood results? im in a desperate place feeling so very ill..

Thankyou

Kindregds

Bubba

[SeasideSusie Remembering in reply to bubbatetley]

I'm still waiting for the answer to the question that Greygoose reminded you that you hadn't answered:

greygoose

greygoose

•in reply to bubbatetley

20 hours ago

You haven't answered the most important question:

We need to know when you took your last dose of Levo and T3 before your test.

Susie can't tell you any more without knowing that.

[bubbatetley in reply to SeasideSusie]

Sorry Seaside Susie, I did reply [confused] I take my T4 75 mcg every morning and my T3 30 mcg split everyday. 10mcg x 3 daily.. . I am going to see a professor this FRIDAY, I have not had any bloods drawn for a month now, so I am presuming the Professor will do this

[SlowDragon Administrator in reply to bubbatetley]

Bloods should be retested 6-8 weeks after any dose change

If professor wants bloods done

You need to get them done early morning before eating or drinking anything other than water and last dose Levothyroxine 24 hours prior to blood test and last T3 12 hours prior to blood test

But this is highly unlikely to be possible at a hospital appointment......

[SeasideSusie Remembering in reply to bubbatetley]

The question was

"When did you take your last doses before the test"

not "when do you normally take them".

I did ask:

"When did you take your last dose?"

and Greygoose also replied to you with:

"You haven't answered the most important question:

We need to know when you took your last dose of Levo and T3 before your test.

Susie can't tell you any more without knowing that"

It's essential to know because there is a specific time gap that should be left between Levo and blood draw and T3 and blood draw, and if those time gaps are different to the ones advised you can either have false low or false high FT4/FT3 results. So I can't accurately interpret your tests unless I know when you took your last dose of Levo and your last dose of T3 before the blood draw for those tests.

[bubbatetley in reply to SeasideSusie]

Ok, understand now , at long last [ brain Fog ] will be in touch.

Thankyou