Liquid Thyroxine

[Odinil]

Does anyone else have a problem with liquid thyroxine?

I did feel better on it but i had a burning sensation in my throat going down to my chest like very bad heartburn.

Ive been back on tablet form for two months and symptoms have started body aches and pains brain fog feeling low no energy, blurry eyes.

I want to go back on liquid but not if my throat burns like it did. The brand was Zentiva.

Sad thing is that i managed to get T3 prescribed and my energy levels got better but now i feel im back to square one again.

Any suggestions please x

[SeasideSusie Remembering]

Odinil

Discuss this side effect with the pharmacist or your doctor and request a different brand of liquid thyroxine. You should yellow card the Zentiva so that your side effect is recorded:

yellowcard.mhra.gov.uk/

[Odinil in reply to SeasideSusie]

Yes i will. Whether i discuss it with pharmacist, consultant or gp its as if im the only one who doesnt get on with levo.

[SlowDragon Administrator]

McPammy may have some advice on different liquid levothyroxine

Did you take liquid levothyroxine as 2 or 3 smaller split doses

Are you still splitting levothyroxine dose now back on tablets

Which brand of levothyroxine tablets are you currently taking

How much levothyroxine are you currently taking

Bloods should be retested 6-8 weeks after any dose change or brand change in levothyroxine

[Odinil in reply to SlowDragon]

I was on 6.5 liquid Zentiva daily i took it once in the morning. I was on it quite a while before the burning started i kept with it as i dreaded going back on tablets.

In the end i couldnt stand it any longer. My consultant got me to reduce my liquid dosage 6.5 one day 5.0 every other day because she said my tsh was too high at 7.0. I did this for three weeks then started went on 5.0 everyday

I have been taking T3 for about two months. 10mg a day split into 5mg twice a day.

Last blood test results showed that my tsh had gone down to 0.07.

Been back on tablets about 56 days and feel terrible. The brand is Aristo. I cant seem to tolerate any brand, ive tried many, must be the fillers. Got to say apart from the burning on liquid i did feel much better with regards my eyesight and hair, skin and no aches or pains. I did did put on alot of weight around my stomach.

I am going to have a blood test done tomorrow and see what the consultant decides to do.

[SlowDragon Administrator in reply to Odinil]

My consultant got me to reduce my liquid dosage 6.5 one day 5.0 every other day because she said my tsh was too high at 7.0.

That doesn’t make sense

If TSH was too high (and any TSH over 2 is too high) dose levothyroxine should have been INCREASED

Dose levothyroxine is increased slowly upwards until TSH is always under 2

Heartburn is common hypothyroid symptom, hardly surprising as you were under medicated

Many people on liquid levothyroxine need to split the dose , taking half dose waking and half dose mid afternoon or bedtime

Adding T3

I have been taking T3 for about two months. 10mg a day split into 5mg twice a day.

Last blood test results showed that my tsh had gone down to 0.07.

Most people when adequately treated on levothyroxine plus T3 will have extremely low TSH …..but it’s absolutely ESSENTIAL to test Ft4 and Ft3 as well

ALWAYS Test thyroid levels early morning, ideally before 9am

Last dose levothyroxine 24 hours before test

Last 5mcg dose T3 approx 8-12 hours before test

When were vitamin D, folate, ferritin and B12 last tested

What vitamin supplements are you currently taking

We always need optimal vitamin levels on levothyroxine or T3

Aristo

So are you taking 100mcg levothyroxine everyday?

[Odinil in reply to SlowDragon]

No 50mcg i split a 100mcg tablet

[SlowDragon Administrator in reply to Odinil]

Well if you were under medicated on higher dose of liquid levothyroxine, would suspect 50mcg is simply too low a dose levothyroxine

What were Ft4 and Ft3 results at last test when TSH was 0.07

What dose levothyroxine were you taking at this last test

[Odinil in reply to SlowDragon]

I will check when i get home

[SlowDragon Administrator in reply to Odinil]

Many people on levothyroxine plus T3 need BOTH Ft4 and Ft3 at least 50-60% through range

[Odinil in reply to SlowDragon]

Im going to get bloods done tomorrow at addensbrooke hospital who i am under. They test T3 levels, gp doesnt.My last blood test was six weeks ago. They said a letter was sent to me with results but i never received it. I will ask for it to be printed off tomorrow and post it here and when i get tomorrows results i'll post that too.

[SlowDragon Administrator in reply to Odinil]

Well you need TSH, Ft4 and Ft3 tested together ….just testing Ft3 would be complete waste of time

Always test early morning, ideally before 9am, last dose levothyroxine 24 hours before test

Last 5mcg dose T3 approx 8-12 hours before test

[Odinil in reply to SlowDragon]

No they test T4 T3 and tsh all together. My test is at 11.15am i said to the nurse i thought it had to be done before 9am she replied no 11.15am will be fine

[SlowDragon Administrator in reply to Odinil]

TSH is highest early morning and lowest at lunchtime

That’s why so many members test privately themselves.

Plus need to test folate, ferritin and B12 at least once a year and vitamin D twice a year

[Odinil in reply to SlowDragon]

The tsh result 7.0 was a blood test taken at 9am.The tsh result 0.07 was taken at 10.30am

Tomorrows blood test is 11. 15am

I will mention it again to the nurse see if i get the same answer that it doesnt need to be done early morning

[J675]

Yes! My GP was happy to give a me a trial of liquid levo last year. I felt better on it, but I had to stop after a couple of weeks due to the bad effect that it had on my chest, breathing and and consequently my anxiety. I did a bit of Googling and the preservative that pretty much all of the available (non compounded) oral solution use is known for causing this type of irritation in some people. So I'm back on the tablets.