I have been on thyroxine for the past 20 years, but for the last 18 months I have suffered from severe allergic reactions and finally worked out I am allergic to additives in all tablets amongst other things. Finally convinced my doctor to try me on liquid thyroxine. My pharmacy ordered me two bottles, the first being Ten Pharma brand and the second to collect at a later date. The Ten Pharma brand was brilliant and I had no adverse reaction. When I went to pick up the second bottle it was Teva brand, which I wasn’t happy about as Ten Pharma was fine. As soon as I started taking the teva brand I had a severe reaction. The pharmacist is now telling me he is having trouble getting Ten Pharma brand. I haven’t taken any thyroxine for a week now!
Am at my Wits End! Any suggestions, advice, help would be much appreciated x
Written by
MrsHashimot
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The first thing I would do is contact the makers of Ten Pharma to see if there is any supply problem. If not then maybe ring round other pharmacies to find one who can source it for you.
Email address for Ten Pharma taken from ThyroidUK's main website: medicalinformation@jensongroup.com
Check out Ten Pharma details on ThyroidUK's main website here:
Thank you! I have tried to do both the things you have suggested! I can’t find a telephone number for ten pharma and it comes up with a supplier called Jenson pharmaceuticals and when I look them up the company has dissolved!😡🤦♀️
Only test thyroid levels after 6-8 weeks on constant unchanging dose and brand of levothyroxine
For full Thyroid evaluation you need TSH, FT4 and FT3 tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common with Hashimoto’s
Ask GP to test vitamin levels NOW
Or test vitamins at next thyroid test
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins
No Rhyme or reason!? I have had allergic reactions to lots of tablets over time. Thought I was allergic to caking agents, preservatives in tablets. Until have allergy tests, will not know definitively. It’s just a matter of trial and error, which is very frustrating and painful! The symptoms start with itching streaming eyes. Red, swollen, itchy hands, ears and chest and then hives. Throat gets tingerly and scratchy and sometimes breathless and dizzy. Not much fun!😩. Will let you know whether I get my medication today. Day 9 without thyroxine!!
I hope you will, or already have, filed Yellow Card reports for all the products you have suffered from.
In the end, it is ONLY feedback from patients which will identify issues. An individual report by an individual patient will do little on its own. But as reports accumulate, they most certainly help. And even a single report means they (whether the MHRA or a pharmaceutical company) can no longer say "We've had no reports about xxxxx"!
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