I have some new blood test results. I would like to know what you think. Am not on any medication at the moment and have been feeling better than I have in the past. Just seen the Endo and he has advised that I go back on Carbimazole every other day? I havent taken any since last May 2021. He mentioned nodules affecting my hormone levels?
TSH - <0.02 mU/L. (0.35-5.50)
Free T4- 14.5 pmol/L. (7.0-17.0)
Free T3 - 5.6 pmol/L. (3.5-6.5)
Written by
D9d9
To view profiles and participate in discussions please or .
I cant find them at the moment and the info doesnt seem to be on here anymore? I found this much. This was two days after stopping low dose Carbimazole.
OK, so they have risen every so slightly. But, what worries me is that the endo is fixated on the TSH. Ask him why he thinks you should go back on carbi.
OK, so is he testing the pituitary in any way? Or doing an ultrasound to check on nodules? It's all very well having theories, it's quite another to back them up. And, that, I find, is were most endos fall down.
But, if you've had Grave's, does he not know that it very often happens that the HPT axis becomes down-graded, and the TSH might never rise again? That doesn't mean that there's anything wrong with the pituitary, just that it has adjusted to you having Grave's, but doesn't usually adjust back again. Or is that what he meant?
No, but you were hyper, weren't you. Otherwise, they would not have put you on carbi. Long-term suppressed TSH could have the same effect as Graves on the HPT axis.
Were all thyroid antibodies tested? Have you had scan of thyroid showing nodules,
To determine if they are hyper functioning an uptake scan must be done.
My nodule is managed with carbimazole. Im told is wont resolve and Doctors were keen to treat with radioactive iodine as it isn’t expected to go into remission which is the aim with Graves.
You were previously on a low dose? You may have to remain on a low dose to keep levels in range. Also - so far it’s just the TSH which is low. FT4 & FT3 in range. A common pattern is for TSH to drop then FT3 to slowly rise and FT4 to follow behind. This is what occurred with mine.
If endocrinologist knows you have nodule why was medication stopped - sounds to me like it a guess.
How did is make you unwell? Allergy, nausea? Or were you given too much making you hypothyroid. How will doctors prevent you becoming Ill with it again?
There a 2nd option antithyroid there PTU (Propylthiouracil)
Has that been offered as some do better on this drug.
You may not be able to get your doctor to do a full evaluation. They often refuse to test t3 (the active thyroid hormone). It would include TSH, free t4, free t3, TPO (thyroid peroxidase) and TG (thyroglobulin) antibodies, vitamins d and b12, folate and ferritin.
If you want a private comprehensive test including antibodies and vitamin levels, Medichecks have a good one for £79.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.