I have some new blood test results. I would like to know what you think. Am not on any medication at the moment and have been feeling better than I have in the past. Just seen the Endo and he has advised that I go back on Carbimazole every other day? I havent taken any since last May 2021. He mentioned nodules affecting my hormone levels?
TSH - <0.02 mU/L. (0.35-5.50)
Free T4- 14.5 pmol/L. (7.0-17.0)
Free T3 - 5.6 pmol/L. (3.5-6.5)
What were your levels when you came off carbi?
Free T4 13.8 pmol/L 7-17 68%
Free T3 4.5. pmol/L 3.50-6.50 33.33%
I cant find them at the moment and the info doesnt seem to be on here anymore? I found this much. This was two days after stopping low dose Carbimazole.
OK, so they have risen every so slightly. But, what worries me is that the endo is fixated on the TSH. Ask him why he thinks you should go back on carbi.
He sad something about nodules on my thyroid and my pituitary gland not functioning properly..
OK, so is he testing the pituitary in any way? Or doing an ultrasound to check on nodules? It's all very well having theories, it's quite another to back them up. And, that, I find, is were most endos fall down.
But, if you've had Grave's, does he not know that it very often happens that the HPT axis becomes down-graded, and the TSH might never rise again? That doesn't mean that there's anything wrong with the pituitary, just that it has adjusted to you having Grave's, but doesn't usually adjust back again. Or is that what he meant?
I have never been diagnosed as having Graves. But do have a goitre from sometime in my past.
Were all thyroid antibodies tested? Have you had scan of thyroid showing nodules,
To determine if they are hyper functioning an uptake scan must be done.
My nodule is managed with carbimazole. Im told is wont resolve and Doctors were keen to treat with radioactive iodine as it isn’t expected to go into remission which is the aim with Graves.
You were previously on a low dose? You may have to remain on a low dose to keep levels in range. Also - so far it’s just the TSH which is low. FT4 & FT3 in range. A common pattern is for TSH to drop then FT3 to slowly rise and FT4 to follow behind. This is what occurred with mine.
If endocrinologist knows you have nodule why was medication stopped - sounds to me like it a guess.
I stopped the Carbimazole myself as I felt unwell when I took it.
How did is make you unwell? Allergy, nausea? Or were you given too much making you hypothyroid. How will doctors prevent you becoming Ill with it again?
There a 2nd option antithyroid there PTU (Propylthiouracil)
Has that been offered as some do better on this drug.
Ok thanks.
Here’s all your previous posts
Suggest you get FULL thyroid and vitamin testing done including TPO and TG thyroid antibodies
What vitamin supplements are you currently taking
Just a multivit that I stopped for some time before doing the blood test. And fish oil. Vit C. B12 sublingual.
Multivitamins are never recommended on here Suggest you test vitamin D, folate, ferritin and B12
Come back with new post once you get results
Perhaps cholesterol levels too
Low cholesterol suggests hyperthyroid, high cholesterol cholesterol hypothyroid
What is in a Full thyroid please?
You may not be able to get your doctor to do a full evaluation. They often refuse to test t3 (the active thyroid hormone). It would include TSH, free t4, free t3, TPO (thyroid peroxidase) and TG (thyroglobulin) antibodies, vitamins d and b12, folate and ferritin.
If you want a private comprehensive test including antibodies and vitamin levels, Medichecks have a good one for £79.
thyroiduk.org/help-and-supp...
There are discount codes on the page and you can get 10% off your first test.
They did my cholesterol. I will put the results up.
Thyroid Test results 
Latest blood test results 
Blood test results...Hypo?
Blood results for Thyroid
New Thyroid Test Results 
