Blood results : Not currently got diagnosis but... - Thyroid UK

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Blood results

Owl2022 profile image
11 Replies

Not currently got diagnosis but dad had hypothyroidism.

TSH 3.75 now was 5.95 in February and 1.95 in December (normal range 0.35-4.94)

T4 - 10.4 now and was 11.5 in February (normal range 9.0-19.0)

Feel terrible but doctors are saying they are normal except the tsh 5.95 in February

I had my test in afternoon (as only appointment I can get at my gps)

Vitamin d , 26 (normal range 50-)

Folate - 5.1 (normal 3.1-19.9)

Ferritin - 36 (normal 15-200)

B12 - 301 (normal 150-620)

They said they were doing antibodies but doesn’t look like they have unless they have yet to come back ,

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Owl2022 profile image
Owl2022
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11 Replies
knitwitty profile image
knitwitty

Hi owl, could you please add the ranges to those results as it makes it easier for people to comment on them. :)

SeasideSusie profile image
SeasideSusieRemembering

Owl2022

To make it possible for us to interpret your results accurately, we need to know if you have a diagnosed thyroid condition and if so are you on any thyroid medication.

Also we need the reference ranges that come with your results, ranges vary from lab to lab so we need the ones that your lab uses, eg. FT4: 10.4 (9-19).

Once we have this information we will be in a better position to help you.

Owl2022 profile image
Owl2022 in reply toSeasideSusie

Have added them

SeasideSusie profile image
SeasideSusieRemembering in reply toOwl2022

Do you have a diagnosis of hypothyroidism and on levothyroxine? Results are interpreted differently before and after starting Levo.

Did you test as we advise:

* No later than 9am

* Nothing to eat or drink except water before the test

* No biotin or any supplement containing Biotin for 3-7 days before the test (eg B Complex or hair/nail supplement

* If taking Levo, did you take your last dose 24 hours before the test

SlowDragon profile image
SlowDragonAdministrator

ALWAYS test thyroid levels early morning, ideally before 9am

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.

Very important to test vitamin D, folate, ferritin and B12

Have you had vitamins tested

What vitamin supplements are you currently taking

Low vitamin levels are extremely common, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis. Both are autoimmune and generally called Hashimoto’s.

In U.K. medics never call it Hashimoto’s, just autoimmune thyroid disease (and they usually ignore the autoimmune aspect)

Recommended on here that all thyroid blood tests early morning, ideally before 9am last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

If TPO or TG thyroid antibodies are high this is usually due to Hashimoto’s (commonly known in UK as autoimmune thyroid disease). Ord’s is autoimmune without goitre.

About 90% of all primary hypothyroidism in Uk is due to autoimmune thyroid disease .

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Starting levothyroxine - flow chart

You will need 2 tests with TSH over 5

researchgate.net/figure/Flo...

Owl2022 profile image
Owl2022

No not currently got a diagnosis, dad had hypothyroidism.

SlowDragon profile image
SlowDragonAdministrator in reply toOwl2022

Vitamin d , 26 (normal range 50-)

Folate - 5.1 (normal 3.1-19.9)

Ferritin - 36 (normal 15-200)

B12 - 301 (normal 150-620)

These are all too low and need improving

GP is obligated to prescribe vitamin D as result is below 50

However you may prefer to self supplement at higher dose to increase levels quicker

GP should prescribe 1600iu everyday for 6 months

NHS Guidelines on dose vitamin D required

ouh.nhs.uk/osteoporosis/use...

GP will often only prescribe to bring vitamin D levels to 50nmol. Some CCG areas will prescribe to bring levels to 75nmol or even 80nmol

leedsformulary.nhs.uk/docs/...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

But improving to around 80nmol or 100nmol by self supplementing may be better

pubmed.ncbi.nlm.nih.gov/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly via NHS private testing service when supplementing

vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.

There’s a version made that also contains vitamin K2 Mk7. One spray = 1000iu

amazon.co.uk/BetterYou-Dlux...

Suggest you start on 3 sprays per day. Retest in 2-3 months

It’s trial and error what dose we need,

Vitamin D and thyroid disease

grassrootshealth.net/blog/t...

Vitamin D may prevent Autoimmune disease

newscientist.com/article/23...

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

Only start one supplement at a time….vitamin D first

Then wait 10-14 days to assess before adding another…eg magnesium

SlowDragon profile image
SlowDragonAdministrator in reply toOwl2022

Work on improving low vitamin levels and retest full thyroid and vitamin levels in 3-4 months

ALWAYS test thyroid levels early morning, before 9am to get highest TSH

SlowDragon profile image
SlowDragonAdministrator

Low folate and low B12

Aiming for folate at least half way through range

B12 at least over 500

As they are within range, NHS won’t treat. Down to you to self supplement to improve

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid) may be beneficial.

This can help keep all B vitamins in balance and will help improve B12 levels too

Difference between folate and folic acid

chriskresser.com/folate-vs-...

Many Hashimoto’s patients have MTHFR gene variation and can have trouble processing folic acid.

thyroidpharmacist.com/artic...

B vitamins best taken after breakfast

Thorne Basic B or Jarrow B Right are recommended options that contains folate, but both are large capsules. (You can tip powder out if can’t swallow capsule)

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

Low B12 symptoms

b12deficiency.info/signs-an...

With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a B12 supplement as well as a B Complex (to balance all the B vitamins) initially for first 2-4 months, then once your serum B12 is over 500 (or Active B12 level has reached 70), stop the B12 and just carry on with the B Complex.

B12 sublingual lozenges

amazon.co.uk/Jarrow-Methylc...

cytoplan.co.uk/shop-by-prod...

healthunlocked.com/thyroidu...

How other member saw how effective improving low B vitamins has been

healthunlocked.com/thyroidu...

SlowDragon profile image
SlowDragonAdministrator

cks.nice.org.uk/topics/anae...

In all people, a serum ferritin level of less than 30 micrograms/L confirms the diagnosis of iron deficiency

Look at increasing iron rich foods in diet

Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption

List of iron rich foods

dailyiron.net

Links about iron and ferritin

An article that explains why Low ferritin and low thyroid levels are often linked

preventmiscarriage.com/iron...

irondisorders.org/too-littl...

davidg170.sg-host.com/wp-co...

Great in-depth article on low ferritin

oatext.com/iron-deficiency-...

drhedberg.com/ferritin-hypo...

This is interesting because I have noticed that many patients with Hashimoto’s disease and hypothyroidism, start to feel worse when their ferritin drops below 80 and usually there is hair loss when it drops below 50.

Thyroid disease is as much about optimising vitamins as thyroid hormones

healthunlocked.com/thyroidu...

restartmed.com/hypothyroidi...

Post discussing just how long it can take to raise low ferritin

healthunlocked.com/thyroidu...

Never supplement iron without doing full iron panel test for anaemia first and retest 3-4 times a year if self supplementing.

It’s possible to have low ferritin but high iron

Medichecks iron panel test

medichecks.com/products/iro...

Iron and thyroid link

healthunlocked.com/thyroidu...

Posts discussing why important to do full iron panel test

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

Chicken livers if iron is good, but ferritin low

healthunlocked.com/thyroidu...

SlowDragon profile image
SlowDragonAdministrator

Median TSH graph in healthy population 1-1.5

healthunlocked.com/thyroidu...

TSH daily variation

healthunlocked.com/thyroidu...

important when you test TSH ....

researchgate.net/publicatio...

According to the current TSH reference interval, hypothyroidism was not diagnosed in about 50% of the cases in the afternoon.”

“Further analysis demonstrated inadequate compensation of hypothyroidism, which was defined in 45.5% of the morning samples and in 9% of the afternoon samples”

It may (or may not) make a difference to TSH if fasting ….opinions differ

ncbi.nlm.nih.gov/labs/pmc/a...

ncbi.nlm.nih.gov/pubmed/252...

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