I have hasimotos. Diagnosed in Sept 2021 and started meds in Oct 2021. So still learning.
"The thyroid gland is subjectively bulky, heterogenous and hypoechoic
with an increase in background vascularity - appearances would fit
with thyroiditis. There is a rounded 7mm area of reduced echogenicity
in the right lobe which is most likely related to the changes
associated with the thyroiditis, although a small spongiform nodule
(U2) is also a possibility.
At least one reactive level VI node demonstrated inferior to the
thyroid."
I'm assuming this is OK and just relates to the hasimotos.
I have NHS repeat bloods on Thursday but I did a medichecks test.
TSH - 2.21 mu/L (0.27 - 4.2)
Free T3 - 5.3 pmol/L (3.1 - 6.8)
Free Thyroxine - 16 pmol/L (12 - 22)
My GP has already said that once I'm down to this TSH level she wouldn't be considering upping my levo. I'm on 75mcg. I weigh 80kg.
I feel way better than I did but still not quite right. Could it be I just need a bit longer as I was only started on meds in October? I started on 75mcg in November. Or does that mean I'm still undermedicated? Anyone have TSH of around 2.2 and feel OK?
Mostly fatigue, dry skin, hair loss, breathlessness. Just generally feeling rubbish. I will have iron levels retested Thursday too incase symptoms could be down to that.
Just wondering if theres a chance I'm undermedicated can I ask to speak to another GP at my surgery? Is there a chance one is more knowledgeable on thyroid issues. Anyone else have a GP who you have to battle at every call lol?!
Last question... If I was to consider going private, does anyone have experience on whether they would possibly increase my levo based on if my levels are still around the above test results. Thanks
Most patients generally feel best when their TSH is 1 or below with FT4 and FT3 in the upper part of their reference ranges. This is not set in stone, it's very individual. Unfortunately, some doctors seem to think that once our TSH is in range then everything is fine, they only look at numbers and forget that the patient is a living, breathing, feeling human being.
Your FT4 is 40% through range and your FT3 is 59% through range. As you are symptomatic then there is plenty of room for an increase in your dose of Levo.
Some things you can discuss with your GP to support your request for an increase:
Tests for follow-up and monitoring of primary hypothyroidism
1.4.1 Aim to maintain TSH levels within the reference range when treating primary hypothyroidism with levothyroxine. If symptoms persist, consider adjusting the dose of levothyroxine further to achieve optimal wellbeing, but avoid using doses that cause TSH suppression or thyrotoxicosis.
Also, Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine (the professional publication for doctors):
"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l. In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l. Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l. This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l).*"
*He confirmed, during a talk he gave to The Thyroid Trust, that this applies to Free T3 as well as Total T3 and this is when on Levo only. You can hear this at 1 hour 19 mins to 1 hour 21 minutes in this video of that talk youtu.be/HYhYAVyKzhw
You can obtain a copy of this article from ThyroidUK:
tukadmin@thyroiduk.org
print it and highlight Question 6 to show your GP.
Last question... If I was to consider going private, does anyone have experience on whether they would possibly increase my levo based on if my levels are still around the above test results.
That depends entirely on the private doctor, some stick rigidly to the same incorrect assumptions about TSH being the only test result needed, so see how it goes with your GP first and if you don't get an increase then send for the list of thyroid friendly private endos from ThyroidiUK (same email address as above) then ask on the forum for members to send you feedback by private message on any that you are interested in.
hopefully someone who can translate your scan report will be along soon.
But in the meantime , re. asking GP for a dose increase to get your TSH below 2 , please see my reply to this post (4th reply down ) healthunlocked.com/thyroidu...
It gives 4 or 5 references for GP's , advising them to get TSH below 2 (ish) on Levo .
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