Back in July, after a routine blood test, my Levo was reduced from 175mg to 150mg because my T4 was too high. I had a further test 7 weeks later and my T4 had gone up slightly.
I posted my results on here and was advised to have some private blood test to check on Vits etc. My dear mum became very poorly so there has been a delay but the results have come through today and I have just been notified that my GP has now reduced my Levo again to 125mg. Apparently he tried to call me but it was the same day as my dear mum passed away.
I'm not sure what to do now. Any advice gratefully received.
I take 2 prescription Adcal - D3 daily. (each tab = 1500mg calcium carbonate and 400 I.U colecalciferol equivalent 10mg D3)
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Pinkcosmo
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Was test done as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test
What brand levothyroxine are you currently taking
Do you always get same brand levothyroxine at each prescription
What vitamin supplements are you currently taking, if any
Your Ft3 is EXTREMELY LOW
Very poor conversion of Ft4 to Ft3 (active hormone)
B12 is also terrible
You need full testing for Pernicious Anaemia before starting on either daily B12 sublingual supplements or if test positive for Pernicious Anaemia will need B12 injections
Any active B12 below 70 need further investigation
See GP
Likely poor conversion is being made worse by low B12, but stress and grief might also affect this too
If levothyroxine is reduced your Ft3 will drop even further and is already far too low
I emailed my GP the results as you suggested and he phoned me yesterday. You were right - he wasn't familiar with the active B12 test but was very interested. He is doing more blood test next week and has referred me to an endocrinologist to see about T3 treatment.
He also wants me to consider going back on HRT - I came off it several yrs ago as I'd taken it for 5 yrs to try to help my bone density (I had hysterectomy at 39 without and hormone replacement at the time. I'm 60 now!)
Thank you for your help SlowDragon - I really appreciate it.
HRT often results in needing higher dose levothyroxine
First step is to establish if B12 is low because your thyroid is under medicated or due to pernicious anaemia
Getting all four vitamins optimal may help improve conversion of Ft4 to Ft3 and is necessary before considering adding T3 prescribed alongside levothyroxine
Vast majority of endocrinologists are diabetes specialists and won’t prescribe T3
Email Thyroid UK for list of recommend thyroid specialist endocrinologists who will prescribe T3 ...NHS and Private
My ferritin levels have been high for 10 years! He's doing liver tests just to make sure everything is OK. I am lucky to have a GP that really seems to care.
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B12 testing...don't know what to do...
