Could I have your thoughts please?: I've just had... - Thyroid UK

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Could I have your thoughts please?

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I've just had my thriva results back.

I'm now 4 weeks post iron transfusion.

I've got an appointment for bloods at the doctor's next week and I'm assuming my TSH won't change dramatically between then and now, and GP doesn't test anything other than TSH so I can negotiate an increase in levo but I'm not sure if that's a good idea?

My T4 is 85% through the range and

T3 is 40.54%

Which is a conversation rate of 4.5 which confirms poor conversion.

Is it now time to book in to see the private Endo with a view to trialling T3?

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9 Replies
SeasideSusie profile image
SeasideSusieRemembering

plant_lady

What time did you do this test?

Did you eat or drink anything except water before the test?

Did you take a B Complex, Biotin supplement or any other supplement containing Biotin in the week before the test?

Your TSH is unexpectedly high for your FT4 level.

in reply toSeasideSusie

Hi Susie,

Test was done at 7:30am, fasting, nothing but water, last levo at 7:30 the previous morning. Left off biotin as advised.

My TSH has never been below 1 even when my T4 was 21.9 (12-22)!

SeasideSusie profile image
SeasideSusieRemembering in reply to

planty_lady

Looking at your previous results in this post

healthunlocked.com/thyroidu...

when you look at all the ones when you were taking 125mcg Levo, they have bounced around a bit, assuming that all tests were done under the same conditions. Your TSH has been 1.37 and as high as 2.81, your FT4 has been 17.6 and as high as 21.6.

Your raised antibodies confirm Hashi's, did you already know this? Fluctuations in results can happen with Hashi's, I wonder if that's contributing?

All of your results, even when TSH has been at it's lowest, show poor conversion - 13/4/21: FT4 96%, FT3 45.95%.

All of your nutrient levels look fine so maybe it is time to consider trialling T3.

in reply toSeasideSusie

I do all my tests under the same conditions to make sure they're comparable.

I am aware of the Hashis although hadn't really considered it a factor in the changing results! Not sure why... Just didn't twig, I guess.

I feel 'alright' but not well enough to accept this is as good as it's going to get!

My TSH has always baffled me somewhat because it should, in theory, be much lower with T4 so high. 🤷🏻‍♀️

SeasideSusie profile image
SeasideSusieRemembering in reply to

Have you a private endo in mind already? If not, choose with care, perhaps get a recommendation from members.

in reply toSeasideSusie

Yes, I've picked one off the TUK list and had some good feedback from some members. :D

SlowDragon profile image
SlowDragonAdministrator

You will need to tell Endo your vegetarian, gluten, dairy and soy free

in reply toSlowDragon

Ok, I'll make a point to do that. :)

Why though? What relevance does it have to treatment?

SlowDragon profile image
SlowDragonAdministrator in reply to

Gluten intolerance and dairy intolerance suggest poor gut function and more likely to need T3 prescribed alongside levothyroxine

Perhaps get DIO2 gene test done. Can help persuade endocrinologist to prescribe T3

Obviously on vegetarian or vegan diet vitamin deficiencies are almost inevitable and much harder to maintain optimal vitamin levels

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