I wanted to know if Medicheck test for Chrohn, Coeliac? I am on an exclusion anti inflammatory diet to reduce pain and emptying myself several times a day. I have had surgery to excise endometriosis on and around the bowel, followed by a colonoscopy where they diagnosed and cauterised hemorragic colitis with neovascularisation. It has helped for the bowel bleeding. Unfortunately, I am still reacting to the same foods, so I m thinking of investigating myself as specialists and GPS not interested ( I don’t look like I’m dying yet!) and I look healthy as very slim.
Any opinion would be good so as to know where to start. Thank you.
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Anastasia17
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Oooh, I'm sorry that you've been having such an awful time.
Coeliac testing is widely available, and is one of the cheaper tests at about £20. It isn't always accurate though, so if it comes back negative, you can't rule it out. There is also Non Coeliac Gluten Sensitivity (NCGS).
Crohn's may be monitored by inflammatory markers in blood tests, but can't be diagnosed by blood tests.
Our very own ThyroidUK provides discounts codes for Cambridge Nutritional Sciences & Smartblood, both of which offer the food intolerance tests for raised IgG antibodies, making prices £13.50 & £14.75 respectively.
Yes, general-purpose antibody molecules … all mixed up with an evaluation of symptoms and/or IgA deficiency and/of biopsy. That’s why a diagnosis is so difficult.
I think the food intolerance tests are very useful. Apart from identifying difficult foods at that time, it just makes one more mindful in eating & identifying culprit foods via symptoms for future.
Yes, this one says that it tests IgA and tissue transglutaminase (tTG)....so coeliac specific. I think the short answer is that if you get a positive on this test, your GP is unlikely to refuse to test, but a negative doesn't rule it out.
I don't know how/which testing shows gluten sensitivity.
Would Coeliac give me night sweats, every night despite being on a strict gluten, dairy, soya, chocolate, caffeine free diet. I had hopes that the HRT would stop this but it hasn’t . This morning I was awake at 5.30am (I took melatonin last night so sleep a bit longer) which is pretty late for me but low rank stomachache starts, with a light headache, so I take paracetamol to relax the pain and myself, it usually sends me back to sleep until I get up for work. I have tried a few sleeping tablets but either hormones or something else will kick me out of my slumber between 2am and 5.30am every night, hence the reason why I think something else is at play here and I would like to have a normal sleeping pattern and also stop taking paracetamol at night.
Heavy sweating at any time of day or night may be caused by high or low cortisol.
I see you are a member of Endometriosis UK. Endometriosis causes huge amounts of pain which the medical profession often dismisses and disbelieves and either doesn't treat or under-treats or wrongly treats. And chronic pain will raise cortisol. If cortisol does become high then it is possible that the body won't be able to keep up the over-production of cortisol for ever, and eventually cortisol becomes low.
Another factor that can raise cortisol is too low a level of thyroid hormones.
Have you ever had your basic nutrients tested? Have you got copies of blood tests for nutrients, thyroid, full blood count, anything else? If not you should ask the receptionists at your surgery (NOT the doctor) for access to your blood test results online. If your surgery doesn't have this facility available then ask for paper copies of your blood test results for, say, the last three years.
Doctors will tell patients that a result is fine as long as it is in the reference range. So, if the reference range for ferritin is 13 - 150 then somebody with a ferritin result of 15 will be told their result is fine, and so will someone who has a result of 85 or 150. (Although the rules for ferritin changed very recently and, despite the reference range starting at 13, doctors should now treat for iron deficiency if the result is below 30.)
Have you got any results for thyroid function testing? Assuming that you have some form of thyroid disease then knowing the results of a thyroid function test can be very educational. And we can tell you if you are under or over-dosed.
Hi Humanbean. I did realise that the receptionist did not have a clue when telling me over the phone that my ferritin levels were 'fine' when, actually, they were very low, they went to 7 in 2013. Since 2014/15 I pick up all the results myself to double check as, you are right, the GPs really only read the results within the reference and the NHS references are tooooo low. For example, for women, the ferritin levels should be optimally 70, a nurse told me that 3 years ago after a decade of acute and repeated anaemia. They really do NOT care... a healthy budget is better than a healthy patient......I will check my results for thyroid as I did request it a few years ago.
Did you manage to have the thyroid anti-bodies tested - suggested by greygoose some eleven months ago ? If positive and you do have Hashimotos then there could be a possible link with your Endometriosis.
Hi Marx. No I didn’t because I was recovering from surgery and because I do not think that I have hypothyroidism… but maybe I should check. However, I am now on HRT, could this false the results ?
Micki Rose at Pure Health still offers quite a lot of testing, even though it is not as wide a range as it used to be. Worth doing some reading on her site, and she is happy for you to ask if not sure. This is the test page to start you off purehealthclinic.co.uk/test...
When the GP organised the test 2 years ago, I had already put myself on my exclusion anti inflammatory diet ; gluten is one of them, that’s why I have always had a doubt about the results. It’s more than likely that the female GP knew what she was doing…
There is genetic testing available in USA for coeliac and NCGS, look up the Gluten Free Society and genetic testing. There is some information in the comments bit as well as a video. I’ve not really looked into it for the uk/ Europe so don’t know if you can get it here easily. This site has loads of useful information though for helping through the gluten free minefield
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