I’ve had a thyroidectomy since 2014 started on 50mg. Then eventually had to adjust dose up to Tirosint 125mg over 7 years.
My Endocrinlogist is scratching her head for 4 years I was balanced. My freeT3 and freeT4 were both in normal. During covid I could not do “In Person” visits so my labs didn’t get ordered like they should and doctors were unable to see my body to properly diagnosis me. My levels increased out of control TSH was 0.154 in January 2021 with normal T3/T4. March 2021 level jumped TSH 12.89 T3 below normal T4 my meds were adjusted once again added Cytomel 5mg ..labs 6 weeks to have my levels at critical point TSH 20.89 T3/T4 normal gained 50 pounds since January 2021 legs are so swollen entire leg and lower, almost in a complete stupor. Labs drawn 6 weeks later shows finally decrease TSH 5.84 T3 1.1 and T4 1.4 normal per on T3/T4 reference range. To date still feeling ill tired, muscle stiffiness and no reduction in weight 278 ..swelling still abundant even on 40mg Lasix can’t increased due to stage 3 kidney disease.
My other primary diagnosis Transverse Myelitis, below waist paraesthesia. This disease TM complicates my symptoms.
Waiting for this week to be drawn. I’m on 175mg Tirosint and 10mg Cytomel. Symptoms now ..severe swelling in legs, feet, ankles and hands. Still no weight loss. In need if a solution that spiraling out of control. Any suggestions on medications to take. I have no thyroid so not taking replacement is not an option.
Feb 4 2021 Labs
Glucose 107 (65-99)
TSH 9.07 (0.45-4.50)
T4 Free 1.1 (0.8-1.7)
Feb 11, 2021
Valley Fever Negative
TSH 11.70 (0.45-4.50)
T3 2.6 (2.0-4.8)
T4 1.1 (0.8-1.7)
April 7, 2021
TSH Reflux 18.40 (0.45-4.50)
T4 1.0 (0.8-1.7)
May 4, 2021
TSH 5.87 (0.45-4.50)
T3 3.0 (2.0-4.8)
T4 1.2 (0.8-1.7)
Thank you❤️
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palberts01
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Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
When on T3, day before test, split dose into three smaller doses roughly equal 8 hour intervals. Taking last small dose T3 at roughly 8-12 hours before test
Is this how you do your tests?
Assuming yes .....Results show you are still under medicated
Suggest you increase T3 by 5mcg -
Do you currently split T3 dose into 2 x 5mcg?
Add 3rd 5mcg dose and trial 3 doses at roughly equal 8 hour intervals
Essential to regularly retest vitamin D, folate, ferritin and B12 levels too
So with me taking at 5am and blood draw at 4pm wouldn’t it be lower not higher I’m confused. I can’t drive so rely on husband to take me to labs at 4 when he gets off
Hi palberts01. Has anyone looked into any of your drugs causing an allergic reaction? Can happen even after being on them for a long time if another drug interacts with it. Or a change of brand etc.
I only ask as severe leg swelling can be linked to severe allergic reactions in drugs. X
All my problems were in place prior to starting T3 medication. My level was perfect so I’m bumboozeled. I’ve changed nothing I just started in February gaining weight like crazy
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Why even adding T3 is not helping?
Very Low TSH With Low T4
Can I discontinue Levothyroxine 50mg ? I started getting thyroid problems after taking antidepressants and mood stabilizers. Not taking now.
Update on Labs - What is Going On? :-)
