I don't understand: I just got my blood results... - Thyroid UK

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I don't understand

Linac profile image
10 Replies

I just got my blood results back from Thriva and they may as well be in Dutch for all the sense they make to me.

I had them done via Thriva a few years ago and it showed an underactive thyroid at TSH 5.7mu/L plus Vitamin D deficiency at 38.52nmol/L. My doctor refused to accept the results, did his own and said I'm fine. Well my symptoms have got worse and I don't feel they are related to my narcolepsy or fibro so I did another test.

TSH - 7.16mu/L was 5.7

FT4 - 12pmol/L was 10.12

FT3 - 5.2pmol/L

TPOAB - 15.7kiu/L

T4 -100nmol/L

TGAB - 18.9ku/L

D - 90nmol/L (I have been taking 3000iu supplement a day since last test)

Active B12 - 84pmol/L (I take 1000mcg a day)

I am thinking of taking NDT but I really have no clue as to what this all means and what I need to aim for?

My doctor is a lost cause, he simply puts everything down to fibro. I cannot see a different doc as he's the only one we have and I can't move surgeries because we have catchment areas and although I've begged the town surgery wont take me.

Would these results cause such extreme fatigue? Depression? Joint and muscle pain? Or is this all in my head?

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Linac
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tattybogle profile image
tattybogle

Yes , they absolutely do explain fatigue , depression , joint pain. this healthunlocked.com/thyroidu... is what Normal healthy TSH levels look like .... most people have 1 or 2 ish...the graph doesn't even go up to 7.

Your doctor cannot say fibromyalgia causes TSH to rise to 7 or even 5 .. it does not affect TSH levels, and if he suggests it does, ask him to show you some evidence of this .. he won't be able to because there is none.

I don't know the lab ranges for thriva off the top of my head , but even without them 5.7 was probably over range , and 7.16 will definitely be over range .

When Doctor did his own and said "your fine " do you know what the actual TSH result was.. and was it over range ?

Find out ...because if NHS have 2 over-range TSH results taken over 3 months apart, the if you have symptoms of hypothyroidism , even if fT4 is still within range. it is called 'sub-clinical hypothyroidism' and guidelines say that a GP may consider a trail of levothyroxine at this point to see if getting TSH back into range improves symptoms.

Also, if they test thyroid antibodies TPOab (thyroid peroxidase antibodies) and these are over range, it shows an increased probability that the patient will eventually become 'overtly hypothyroid' meaning "over range TSH /with under-range T4" .. and so this also helps to persuade them to start treatment with Levo (synthetic T4)

(T4 is the thyroid hormone , TSH is just a signal from the pituitary to ask thyroid to make more hormone )

Linac profile image
Linac in reply totattybogle

Hi thank you for replying.

My doc actually blames my symptoms on the fibro not the TSH and other levels.

I took the last results in to him and he refused to look at them.

When my results of his came back he said I was fine and that I have fibro what do I expect.

I don't know what those results were though and I wasn't savvy enough to ask, I just got out as quick as I could.

SeasideSusie profile image
SeasideSusieRemembering

Linac

I just got my blood results back from Thriva and they may as well be in Dutch for all the sense they make to me.

Oh dear :( but I had to laugh. The way Thriva displays their results on the graphic they do is very confusing, it really is quite nonsensical with their "normal" and "optimal" ranges. Is it the graphic you're looking at? They do apparently have a link to a listed version that looks like this and gives the proper ranges which may be more helpful, I can't tell you where the link is when you log into your account because I wont use Thriva:

healthunlocked.com/thyroidu...

TSH - 7.16mu/L was 5.7 (0.27-4.2)

FT4 - 12pmol/L was 10.12 (12-22)

FT3 - 5.2pmol/L (3.1-6.8)

Are you taking any thyroid meds at all, only back in 2017 you were taking

Thiroyd and built up to 3 grains.

TPOAB - 15.7kiu/L (<34)

TGAB - 18.9ku/L (<115)

Antibodies low so no indication of autoimmune thyroid disease (Hashimoto's) with those negative results.

D - 90nmol/L (I have been taking 3000iu supplement a day since last test)

Vit D is recommended to be 100-150nmol/L according to the Vit D Society and Grassroots Health. You might want to adjust your dose until you reach the upper end of that range or just carry on and see if you do eventually get there. Are you also taking D3's important cofactors - magnesium and Vit K2-MK7?

Active B12 - 84pmol/L (I take 1000mcg a day)

Active B12 below 70 suggests testing for B12 deficiency, so you are nicely over that low limit but I always think it best to aim for 100+.

As you are taking B12 (is it methylcobalamin?) are you also taking a good quality, bioavailable B Complex to keep all the B vitamins in balance? Recommended here by many members are eitherThorne Basic B or Igennus Super B.

What was your folate result?

What was your ferritin result?

Would these results cause such extreme fatigue? Depression? Joint and muscle pain? Or is this all in my head?

The thyroid results, yes definitely, they are very hypothyroid results.

humanbean profile image
humanbean in reply toSeasideSusie

To get results in an easier to read fashion, this help link from Thriva tells people how to get it:

intercom.help/thrivahelpcen...

SeasideSusie profile image
SeasideSusieRemembering in reply tohumanbean

Thanks HB, that's useful :)

Linac profile image
Linac in reply toSeasideSusie

Thank you for responding.I stopped taking the NDT after a few months because I was getting in a right pickle and not feeling any better so figured doc was right and it was down to weight and fibro.

Yes I take Vit D3 in a morning and K2 in the evening. I'm struggling with magnesium as it makes me feel nauseous.

I am taking the correct B12 but I have changed from MK7 to MK4 due to current thoughts on it being the better one?

My Ferritin is 94ug/L. I don't see iron but I did an advanced iron panel and that all seems normal apparently.

SeasideSusie profile image
SeasideSusieRemembering in reply toLinac

Linac

I have changed from MK7 to MK4 due to current thoughts on it being the better one?

There is so much information out there, sometimes conflicting, and I've wondered if it might be best to take a combination of both, the only trouble with a combined MK7 and MK4 is that MK4 needs to be multidosed and MK7 doesn't.

SlowDragon profile image
SlowDragonAdministrator

Was this test done as early as possible in morning before eating or drinking anything other than water. This gives highest TSH

High TSH confirms you are hypothyroid

See flow chart on top of page 2

gp-update.co.uk/Latest-Upda...

Print this out and See GP.

Request trail of levothyroxine at 50mcg minimum starting dose

Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine

Also request ultrasound scan of thyroid

20% of Hashimoto's patients never have raised antibodies

healthunlocked.com/thyroidu...

Paul Robson on atrophied thyroid - especially if no TPO antibodies

paulrobinsonthyroid.com/cou...

Suggest you see thyroid specialist endocrinologist if GP won’t start trial of levothyroxine

Roughly how old are you

Linac profile image
Linac in reply toSlowDragon

Thank you for responding.

Yes I did the test at 6.30am.

I am dreading seeing my doctor as this has been going on for years and just the thought of seeing makes me anxious.

SlowDragon profile image
SlowDragonAdministrator in reply toLinac

Print out the flow chart link I gave you

Give copy to GP and request trial of levothyroxine

If they refuse see endocrinologist

Email Thyroid UK for list of recommend thyroid specialist endocrinologists...NHS and Private

tukadmin@thyroiduk.org

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