Private consultant? : Hi all, I have had the... - Thyroid UK

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Private consultant?

Fedupandtired18 profile image
16 Replies

Hi all, I have had the symptoms of Hypo for 20

Years. Over the last two years I’ve almost gone bald at times (with a lot of Regaine) I have recovered some hair, I’m constantly fighting my weight in-spite of a protein/low carb diet which i monitor v closely, nails broken (I can actually peel my nails), no energy I could sleep 24 hours if I could and I am freezing cold all the time. My last test about 12 months ago showed T4 through the roof and almost No T3. That’s why the T4 is so high I guess. Just ordered another private test.

I have bought thyroid meds (NDT) recently but thought I should try and find some private GP/consultant for one last try armed with the new test results when I get them.

I live in Birmingham UK and just wondering if anyone has seen anyone in the Midlands and what happened?

I feel like I am at my wits end. Not feeling like you’re in control of your own body is just horrific... hope someone on this forum can help.

Stay safe all,

Rebecca xxxx

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Fedupandtired18
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16 Replies
SlowDragon profile image
SlowDragonAdministrator

Just testing TSH, Ft4 and Ft3 is not whole picture

Do you have Hashimoto’s?

Autoimmune thyroid disease diagnosed by high thyroid antibodies

What vitamin supplements are you currently taking

How much levothyroxine are you currently taking

Do you always get same brand of levothyroxine

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin levels NOW

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Is this how you do your tests?

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Thriva also offer just vitamin testing

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

Hair loss is frequently low iron/ferritin

Fedupandtired18 profile image
Fedupandtired18 in reply to SlowDragon

Hi thanks so much x

I have never had any treatment whatsoever and I think I had better contact a private Endo and see if I can get some help.

Vitamins haven’t been checked so will get on to that too and see what can be done.

Vitamins I take Nourkin twice daily, multi vitamin, T3 convert aid from Nutri.

SlowDragon profile image
SlowDragonAdministrator in reply to Fedupandtired18

Is this the Nourkin

hollandandbarrett.com/shop/...?

Do you know it’s essential to stop ALL supplements that contain biotin a WEEK before all blood tests as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

Which multivitamin exactly?

What’s the T3 convert aid?

Anything called thyroid support frequently contains iodine not recommended unless been tested and actually deficient

Fedupandtired18 profile image
Fedupandtired18 in reply to SlowDragon

Hi SlowDragon,

The T convert is this (attached) and the multivitamin for women by Vitabiotics. I didn’t know about Biotin so thank you!

Fedupandtired18 profile image
Fedupandtired18 in reply to Fedupandtired18

This is the multivitamin x

SlowDragon profile image
SlowDragonAdministrator in reply to Fedupandtired18

So this doesn’t contain iodine which is good

It does contain biotin too.....so you’re taking quite a lot of biotin in both

Fedupandtired18 profile image
Fedupandtired18 in reply to SlowDragon

Probably too much then?

SlowDragon profile image
SlowDragonAdministrator

Just reread previous post

healthunlocked.com/thyroidu...

Not currently taking any levothyroxine

Negative thyroid antibodies

But would be good idea to get ultrasound scan of thyroid

20% of Hashimoto's patients never have raised antibodies

healthunlocked.com/thyroidu...

Paul Robson on atrophied thyroid - especially if no TPO antibodies

paulrobinsonthyroid.com/cou...

What’s your diet like

Are you vegetarian or vegan?

Fedupandtired18 profile image
Fedupandtired18 in reply to SlowDragon

Thank you 🙏

I am a meat eater never been veggie. These are my test results previously. Attached to you x

pennyannie profile image
pennyannie in reply to Fedupandtired18

Hello Fedupandtired :

I was going to answer you - based on the above blood test, believing that you were on some form of thyroid hormone replacement.

Those of us on replacement hormone therapy are generally attempting to restore our levels and " get back " to our natural T3 and T4 levels :-

But seeing your levels above, they do not look very good to start with as your natural T3 is below range and your conversion ratio way out at 6.58 in a guide range of 3-5 :

In general when on T4 thyroid hormone replacement - the accepted conversion ratio is said to be 1 /3.50-4.50 T3 / T4 with most people preferring to come in at around 4 or under :

So presume this accepted ratio to be what is considered the normal ratio of production from a healthy thyroid gland.

So, to find your conversion ratio you simply divide your T3 into your T4 :

So a T3 of 2.6 divided into T4 of 17 = 6.58 :

If your were on T4 I would think you have a conversion issue : and suggest you needed a little T3 - Liothyronine to rebalance your T3 and T4 levels back into around a 1/4 ratio ?

I'm out of my depth, which isn't difficult, but surely these results support your continued symptoms and ill heath and the need for thyroid hormone replacement - and I don't understand why you haven't been picked up by the medical mainstream and helped.

Fedupandtired18 profile image
Fedupandtired18 in reply to pennyannie

Thank you so so much Pennyannie! I’m just now

In the process of booking a private Endo appointment from the list given to me on here. She says exactly the same thing! So I’m crossing my fingers and hoping for once after all this time I can be helped!

Xxx

pennyannie profile image
pennyannie in reply to Fedupandtired18

Oh - good - hopefully you will have some help -

I wonder if it's the old chestnut of CCG's refusing to prescribe new prescriptions of T3 - Liothyronine on the NHS .

Keep us in the loop and let us know when I can uncross my fingers too :

I'll charge you another time !!!!

P.S. I too have read Dr P's book and do take NAX / Adrenal supplement from Nutri Advanced - I didn't experience anything untoward and have been taking 2 x NAX daily for around 5 years. I found a massive benefit to my achey achey lower back which I believed stemmed from my adrenals having also suffered side effects from the RAI thyroid ablation treatment I was given for Graves Disease in 2005.

I also purchased the T Convert - but not aware of any benefits.

I don't know about biotin and if it could distort your results " that much " :

I supplement ferritin, folate, B12 and vitamin D to maintain optimal levels to aid T4 to T3 conversion and have been well self medicating with Thyroid S and now in my third year and so much improved it simply defies my understanding of the health service we are meant to be so grateful for.

HighlandMo profile image
HighlandMo

I think that rather than spend money on a private endo you should change GP and hopefully get a bit more support and a trial of medication. Your symptoms cry out that your thyroid needs help. It may well be that you end up back here relying on self help but it’s worth a try.

Fedupandtired18 profile image
Fedupandtired18

Hi all, got another test lined up and a consultation end of this month. I went to hospital two weeks ago for a smallProcedure and they noted that my blood pressure was low. So got a blood pressure machine from chemist and it’s low. Another sigh of Hypo?

Love to you all x

Fedupandtired18 profile image
Fedupandtired18

Hi all would you fast before a full whole screen? They’ve bot said anything. ..? Xx

SeasideSusie profile image
SeasideSusieRemembering in reply to Fedupandtired18

Yes. If you don't know exactly what is being tested then assume something will require a fasting test, I fast before any planned blood test in case they slip something in they haven't told me about, or there's a fasting test they haven't told me about. For instance, many people don't know that iron tests need to be done after a 12 hour fast.

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