I had a similar reaction to you when on levothyroxine alone. I also developed severe palpitations in the middle of the night. The cardiologist who was trying to find out the reason for these palpitations was thinking of putting an implant in my heart to 'see what was going on'.
A few weeks later T3 was added by an Endocrinologist to T4 and palps ceased altogether and eventually I took T3 alone. Neither did I return to the endocrinologist who, due my TSH, wanted me to stop T3. I said I cannot do that as my health has improved so was told to reduce T4. The more I reduced T4 the better I became.
I then found Thyroiduk.org.uk and due to their help and assistance enabled me to restore my (and many members) health - before Healthunlocked who now cover all autoimmune conditions. I think Healthunlocked is a brilliant idea because we have the opportunity to read/learn/improve through other members' experience of their conditions.
I think the fact, too, is that because members are suffering despite being diagnosed and given replacement thyroid hormones. If not they wouldn't be searching the internet and HU allows us to have more knowledge about our conditions.
She is increasing my Levo and retesting in 4-6 weeks.
So how much levothyroxine were you taking ?
Presumably dose was increased 2 months ago and now been retested
And now increased again?
So how much are you now taking
Bloods should be retested 6-8 weeks after EACH dose increase
Which brand of levothyroxine are you currently taking
Do you always get same brand
What other vitamin supplements are you currently taking
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies
Have you had vitamin D, folate and B12 tested?
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Is this how you do your tests?
Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins
All vitamins and minerals are the bottoms of the range. She argues with me, telling me this isn’t an issue.
Ferritin is 26 range (10-291) she prescribed iron tablets without doing a full iron panel.
Exactly how low are vitamin D, folate and B12
Low ferritin
Are you vegetarian or vegan?
Look at increasing iron rich foods in diet
Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption
This is interesting because I have noticed that many patients with Hashimoto’s disease and hypothyroidism, start to feel worse when their ferritin drops below 80 and usually there is hair loss when it drops below 50.
Thyroid disease is as much about optimising vitamins as thyroid hormones .....but man6 endocrinologist seem completely unaware
In answer to your question, yes. Just because someone went to university and got credentials to practice endocrinology, does not mean they are particularly bright enough to help you get well.
Best of luck stumbling upon someone who listens and thinks.
Thanks for your reply. Your right! She’s been promoted to clinical lead and is very unhelpful. The people on here are amazing and I don’t know what I would do without them.
It’s putting the cart before the horse to worry about vitamin levels et cetera without having an absolutely clear bead on all your vital thyroid hormone levels - free T3 free T4 and TSH at the very least all from the same blood test taken at regular intervals at the same time to see a trend. This together with thyroid hormone replacement dosing and symptom diary is the starting point. Your thyroid hormones are way way way more significant then tweaking vitamins unless you are catastrophically deficient in selenium for example. Aim for healthy normal levels of thyroid hormones and TSH for a while before deviating to levels which may be unique to you for optimum function . Healthy normal free T3 is commonly not as high as the lab range may suggest! And total T4 has to be enough to feed intracellular conversion even if you take t3 replacement; such that free T4 is between 14-17 and TSH between 1 and 2 and free T3 between 4.5 and 5, or thereabouts.
Also worth considering that if you go through the data there is clearly an age related normal range by peer group and that if you see higher values than you have as normal it’s possibly because the cohort were much younger (unless you’re 21 or you’re over medicated!
There’s other data on common or normal thyroid values coincidental to other biological monitoring such as the Boston longitudinal ageing study (sorry I can’t find the reference quickly) and other small cohort studies on circadian profile of thyrotropin and thyroid hormones (which come out with higher normal values than the mass studies.
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or you’re over medicated!
HOW DO YOU INCREASE YOUR FERRITIN LEVEL?
Improvement after increase in Levo, then crash
Symptoms worse after diagnosis and starting Levo 
New Blood Labs after adding Liothyronine - TSH looks better but Ferritin levels low. Have symptoms of low Ferritin but Iron is OK.
