TSH again: Last week had blood test this is the... - Thyroid UK

Thyroid UK

137,936 members161,765 posts

TSH again

Afaghieh profile image
5 Replies

Last week had blood test this is the results from hospital no range given.

Free T4 <5.2

TSH 0.09

Free T3 3.2

FSH 52.6

Luteinising Hormone level 20.1

Oeshadial level <37

Prolactin 124

Sex hormone Globulin 75.5

My t3 intake has reduced to 20mcg daily and Endo saying considering my age the rest is normal.

I am bloated massive hair loss + everything else.

My respiratory Consultant referred me ? Pituitary cause.

I just don't know what to do.

Written by
Afaghieh profile image
Afaghieh
To view profiles and participate in discussions please or .
Read more about...
5 Replies
SlowDragon profile image
SlowDragonAdministrator

Please add ranges on these results

Presumably you don’t take any levothyroxine, looking at extremely low Ft4

On just T3 many/most people need at least 40mcg - 60mcg T3.

Often Split into 2 or 3 doses spread through the day

Ft3 looks extremely low

How long have you been taking just 20mcg T3

TSH is almost always suppressed on almost any dose of T3. That won’t tell anyone anything

Why not taking higher dose?

Or adding in levothyroxine alongside levothyroxine

Day before any blood test you need to split T3 into 3 doses

Taking last 1/3 or 1/4 of daily dose (currently 5mcg dose) 8-12 hours before test

Likely to have extremely low vitamin D, folate, ferritin and B12 unless supplementing

Afaghieh profile image
Afaghieh in reply to SlowDragon

Hi Slow DragonI am on T3 20mcg as from 19th Feb.

I have no access to range.

My TSH has been suppressed for a while with low Free t4

I can't take higher dose i am given monthly prescription for 20mcg daily.

I am low on Vit D supplementing.

Took 20mcg t3 on the 16 Feb morning and had blood test on 17 at 9am without eating.

I had B12 test not been given the results.

SlowDragon profile image
SlowDragonAdministrator in reply to Afaghieh

Why are you not also taking levothyroxine

20mcg T3 is never going to be enough, if only taking T3

20mcg T3 is the dose you would be likely to be on if also taking 100mcg levothyroxine (or higher levothyroxine dose)

If your endocrinologist thinks just 20mcg T3 and nothing else is adequate, you need different endocrinologist ASAP

20mcg T3 is only about a 1/3rd of daily dose required if only on T3

Are you in the U.K.

You are legally entitled to printed copies of your blood test results and ranges.

The best way to get access to current and historic blood test results is to register for online access to your medical record and blood test results

UK GP practices are supposed to offer everyone online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.

Link re access

healthunlocked.com/thyroidu...

In reality many GP surgeries do not have blood test results online yet

Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up.

Important to see exactly what has been tested and equally important what hasn’t been tested yet

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin levels

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

If/when also on T3, make sure to take last third or quarter of daily dose 8-12 hours prior to test, even if this means adjusting time or splitting of dose day before test

Is this how you do your tests?

Essential to regularly retest vitamin D, folate, ferritin and B12

These all need to be at GOOD levels

Vitamin D at least around 80nmol and around 100nmol maybe better

Folate and ferritin at least half way through range

B12 at least over 500

Email Thyroid UK for list of recommend thyroid specialist endocrinologists who will prescribe T3

NHS and Private

tukadmin@thyroiduk.org

The aim of levothyroxine is to increase dose upwards in 25mcg steps until TSH is under 2

When adequately treated, TSH will often be well under one.

M

ost important results are ALWAYS Ft3 followed by Ft4. When adequately treated Ft4 is usually in top third of range and Ft3 at least 60%-70% through range (regardless of how low TSH is)

Extremely important to have optimal vitamin levels too as this helps reduce symptoms and improve how levothyroxine works

Afaghieh profile image
Afaghieh in reply to SlowDragon

Hi SlowDragonIn live in the UK and have no choice withe the Endo.

Communications are through her secretary and blood test was done at the hospital so it doesn't appear on my patient access records. These results were sent by the secretary.

I can not tolerate Levo.

Yesterday I had another blood test at the hospital with my Respiratory Consultant which included thyroid test by that time I had not taken any t3 for for 3 days.

It will be interesting to see the result!

Afaghieh profile image
Afaghieh

Hi ScrumblerThank you. I was on t3 30mcg daily. I took 20mcg morning 16 Feb and no more blood test on 17 Feb at 9am haven't eaten before test. Strange thing is that few months before I had blood test at clinic that morning had taken 20mcg before blood test and results were same.

These results are from Hospital i asked for there is no range in them.

You may also like...

Back to the so****g TSH - AGAIN!

Ok. So, still seeing an endo in Warwickshire who was really nice and supportive - when I wasn't...

A little worried again about my TSH...

Have broken my brain again, TSH and NICE

make sense, TRH (hypothalamus) stimulates TSH (pituitary ) right? stimulates Thyroid to produce...

Well guys my tsh is going back up… again.

Sudden Wonky TSH level again after being ok.

'normal' so they didn't inform me) I know that that level is not good for me. Previously it has...