Spoke to GP after private bloods, no joy :( - Thyroid UK

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Spoke to GP after private bloods, no joy :(

SummerJessica profile image
19 Replies

I received my private bloods through Thriva for my thyroid last week. I have now spoken to my GP (not my regular one) who has not said to repeat bloods but has instead said to treat deficiency first (pic attached again for ease of reference).

He said that although my TSH is high, it wouldn't warrant treatment due to my FT3, FT4 and T4 being "normal". I brought up all my symptoms and issues from the last year and said that a lot of, if not all of them could be down to thyroid issues, including my 24mm nodule on my thyroid. He said treating the deficiency in vitamins and minerals first (my diet is very varied, so would need supplements) is their first port of call. Over the last 2 years I have had 3 TSH bloods and they keep escalating. 3.4 in 2018, 4.2 in 2019 and recently 6.1. The GP has never run a full Thyroid panel hence going elsewhere to get it checked. He is going to speak to my regular GP to see where we go from here but he said other than my Vit D he can't see anything "abnormal, plus nearly everyone is deficient in winter" sigh, it seems like I'm constantly fighting.

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SummerJessica profile image
SummerJessica
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19 Replies
humanbean profile image
humanbean

You can download your results from Thriva as a PDF file. It can be a lot easier to read than the colour coded pictures that they provide, which many of us find quite confusing :

intercom.help/thrivahelpcen...

SummerJessica profile image
SummerJessica in reply to humanbean

Much easier to understand, thanks :)

Results
SlowDragon profile image
SlowDragonAdministrator

Vitamin D is just 3 points away from 25nmol and needing LOADING DOSE prescribed (300,000iu in total over 6-8 weeks)

GP should prescribe 1600iu everyday for 6 months as absolute minimum

NHS Guidelines on dose vitamin D required

ouh.nhs.uk/osteoporosis/use...

GP will often only prescribe to bring levels to 50nmol.

Some areas will prescribe to bring levels to 75nmol or even 80nmol

leedsformulary.nhs.uk/docs/...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

But improving to around 80nmol or 100nmol by self supplementing may be better

ncbi.nlm.nih.gov/pubmed/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly via vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function. There’s a version made that also contains vitamin K2 Mk7

amazon.co.uk/BetterYou-Dlux...

It’s trial and error what dose we need,

Calculator for working out dose you may need to bring level to 40ng/ml = 100nmol

grassrootshealth.net/projec...

Government recommends everyone supplement October to April

gov.uk/government/news/phe-...

Taking too much vitamin D is not a good idea

chriskresser.com/vitamin-d-...

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

2 good videos on magnesium

healthunlocked.com/thyroidu...

SlowDragon profile image
SlowDragonAdministrator

B12 not low enough for GP to prescribe anything

No folate test

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid) may be beneficial.

This can help keep all B vitamins in balance and will help improve B12 levels too

Difference between folate and folic acid

chriskresser.com/folate-vs-...

B vitamins best taken after breakfast

Igennus Super B is good quality and cheap vitamin B complex. Contains folate. Full dose is two tablets per day. Many/most people may only need one tablet per day. Certainly only start on one per day (or even half tablet per day for first couple of weeks)

Or Thorne Basic B is another option that contain folate, but is large capsule

If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

Low B12 symptoms

b12deficiency.info/signs-an...

With such low B12 result taking a B12 supplement as well as a B Complex (to balance all the B vitamins) initially for first 2-4 months, then once your serum B12 is over 500 (or Active B12 level has reached 70), stop the B12 and just carry on with the B Complex.

B12 sublingual lozenges

cytoplan.co.uk/shop-by-prod...

amazon.co.uk/Jarrow-Methylc...

healthline.com/nutrition/me...

SlowDragon profile image
SlowDragonAdministrator

As per previous post re ferritin

healthunlocked.com/thyroidu....

Lora7again profile image
Lora7again

It really annoys me when someone is clearly hypothyroid and the doctor doesn't prescribe Levothyroxine. The higher the TSH gets the more ill you will feel and the longer it takes to regain your health. I have no idea why GPs like to see us suffer!

SummerJessica profile image
SummerJessica

He said that as my T4 and FT3 is normal they wouldn't treat me as hypothyroid even if my TSH is abnormal as they would expect the others to be abnormal too :(

Lora7again profile image
Lora7again in reply to SummerJessica

Your TSH is saying your thyroid is struggling and it will only get worse not better. Getting your vitamin levels up will help but it is not the solution in my opinion. Read my story on my profile and see how I was left for over 2 years by doctors who knew nothing about thyroid disease.

SummerJessica profile image
SummerJessica in reply to Lora7again

I also have Raynauds diagnosed last year and a 24mm nodule on my thyroid found Dec 2018 :(

Lora7again profile image
Lora7again in reply to SummerJessica

I have a multinodular goiter which I have ultrasounds on every couple of years. This does cause me symptoms. Just to add a lot of people have nodules on their thyroid and they cause no problems but some do and it is always best to have them checked to see if they have grown etc. Mine are completely benign and I have had them for over 10 years.

SummerJessica profile image
SummerJessica in reply to Lora7again

This was my ultrasound results in 2018.

US Neck :

The palpable lump at the right anterior neck corresponds to

a right lobe thyroid nodule with benign U2 characteristics measuring 24mm. Otherwise the thyroid gland is normal in size and appearance. There is minimal left sided tracheal deviation. No retrosternal extension. No lymphadenopathy.

Lora7again profile image
Lora7again in reply to SummerJessica

Similar to my report only I have loads of small ones which can cause symptoms.

Finding of Ultrasound of neck.

Benign enlargement of the thyroid noted bilaterally with months hypoechoic nodules. There is a background of hypoechoic parechhyma with increased vascularity in the neck.

SlowDragon profile image
SlowDragonAdministrator in reply to SummerJessica

That’s rubbish

If TSH is over 5 and you have symptoms you should be offered trial of levothyroxine

See flow chart on top of page 2

gp-update.co.uk/Latest-Upda...

SummerJessica profile image
SummerJessica

He also didn't seem overly concerned about my Vitamin D level either :( I don't want to start taking vitamins incase they want me to do bloods again! I honestly thought he would have at least prescribed Vit D

Lora7again profile image
Lora7again in reply to SummerJessica

I use the BetterYou Vitamin D spray which is easily absorbed on your tongue.

vitamin d
SummerJessica profile image
SummerJessica

Much easier to understand in this format which I will forward on to my GP.

SlowDragon profile image
SlowDragonAdministrator in reply to SummerJessica

Your GP is obligated to prescribe vitamin D at 1600iu per day for 6 months as absolute minimum

Ideally they would prescribe LOADING DOSE

You need to self supplement to improve B12 and folate

And work on improving low ferritin with iron rich diet

Improving low vitamin levels should increase TSH so you can get hypothyroidism treated

SlowDragon profile image
SlowDragonAdministrator in reply to SummerJessica

I have removed the image as contains your name and DOB

janeroar profile image
janeroar

Hi I think it’s definitely worth getting your vitamins optimal as it could be affecting your thyroid function. You don’t need to wait for your doctor to prescribe the ones you’re deficient in. Luckily there’s brilliant advice here on how to load up your vitamin d.

It does make a big difference I have found to get folate ferritin vitamin d and b12 optimal. I also add in selenium as there’s evidence just adding that has lowered tsh. Get the most absorbable form ideally.I also think magnesium is pretty fundamental for my good health.

It might be you do need to have thyroxine but there’s a lot to benefit from getting these vitamin levels right first. I would also try going very strictly gluten free. It has also made the world of difference to me. It might help you avoid starting on medication. If you look at Isabella Wentz’s website she advices getting your vitamin levels optimal first and tackling your diet. There’s lots of free advice on there including very clear diet plans and recipes etc. Good luck

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