Blood test results taken due to symptoms- const... - Thyroid UK

Thyroid UK

137,934 members161,762 posts

Blood test results taken due to symptoms- constant pins and needles and itchiness and brain fog/ memory loss

Fluffyone profile image
10 Replies

Hi,

I have Hashimotos and thyroid levels are stable and good. Take Levothyroxine, Atorvostatin, Vitamin D, Selenium, Omega 3, Magnesium, Boron, K2 and probiotic.

Pre diabetic level 44.3. Range <42mmol, Was on Folic acid and iron but now levels are fine.

So due to above symptoms mainly but also muscle / joint pain Endo suggested doing Coeliac antibody test, nerve conduction study, a.m. cortisol and a trial of trans dermal oestrogen.

So.. my Nan and twin sister has had breast cancer so no oestrogen for me. Go said do other tests before nerve conduction tests.

Here are results

Cortisol ref range 133-537 nmol/L Mine 626

Coeliac test range 0.00-4.90kU/L Mine 0.5

B12 range 197.00-771.00ng/L Mine 849

Photo with full blood count also.

Previous eGFRcreatinine (CKD-EPI) range 90-120mL Mine 79.6 GP said at this level ok though

GP has booked to appointment to speak about results but not till 18th so any information you can give me would be great.

Thanks Lesley

Written by
Fluffyone profile image
Fluffyone
To view profiles and participate in discussions please or .
Read more about...
10 Replies
Marz profile image
Marz

Could be the statins ? Are you still taking them ?

Fluffyone profile image
Fluffyone in reply to Marz

Hi, timings don’t suggest statins, always tolerated them really well with no side effects. I do still take as diet had no affect on levels.

Marz profile image
Marz in reply to Fluffyone

Food will not affect your cholesterol levels. Cholesterol is made in the liver and needed to produce hormones. The brain is made up of lots of cholesterol too. How is your T3 level ?

Fluffyone profile image
Fluffyone in reply to Marz

Serum free T3 level Range 3.10-6.80pmol/L. Mine 4.2

Endo didn’t think a problem with level

I am concerned about high Cortisol levels though

SlowDragon profile image
SlowDragonAdministrator

Ft3 is far too low at 4.2

What’s your Ft4 and TSH results

GFR low also suggests under medicated

High cholesterol suggests under medicated

How much levothyroxine are you currently taking?

Do you always get same brand of levothyroxine

Which brand

For full Thyroid evaluation you need TSH, FT4 and FT3 tested.

Also EXTREMELY important to REGULARLY test vitamin D, folate, ferritin and B12

Many Hashimoto’s patients need to supplement continuously to maintain OPTIMAL vitamin levels

How much vitamin D are you currently taking

When were levels last tested

High B12 without supplementing can be misleading.....

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Is this how you do your tests?

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Thriva also offer just vitamin testing

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

Also vitamin D available as separate test via MMH

Or alternative Vitamin D NHS postal kit

vitamindtest.org.uk

SlowDragon profile image
SlowDragonAdministrator

Hashimoto's frequently affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

Your coeliac test was negative so can immediately try strictly gluten free diet

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

restartmed.com/hashimotos-g...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

ncbi.nlm.nih.gov/pubmed/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

ncbi.nlm.nih.gov/pubmed/300...

The obtained results suggest that the gluten-free diet may bring clinical benefits to women with autoimmune thyroid disease

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

SlowDragon profile image
SlowDragonAdministrator

Just read your previous post

healthunlocked.com/thyroidu...

Already strictly gluten free

Anyone with Hashimoto’s who needs to be on strictly gluten free diet is almost inevitably going to have poor conversion of Ft4 to Ft3

Suggest you make appointment with recommended private thyroid specialist endocrinologist

Will pm you

Meanwhile work on maintaining all four vitamins at optimal levels

SlowDragon profile image
SlowDragonAdministrator

How much levothyroxine are you currently taking

Do you always get bloods tested as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test

Always get same brand of levothyroxine

Low GFR and hypothyroidism academic.oup.com/jcem/artic...

High cholesterol and being hypothyroid

nhs.uk/conditions/statins/c...

If you have an underactive thyroid (hypothyroidism), treatment may be delayed until this problem is treated. This is because having an underactive thyroid can lead to an increased cholesterol level, and treating hypothyroidism may cause your cholesterol level to decrease, without the need for statins. Statins are also more likely to cause muscle damage in people with an underactive thyroid.

High cortisol common when under medicated as adrenals try to compensate for lack of thyroid hormones

Fluffyone profile image
Fluffyone in reply to SlowDragon

Hi,

100 Levo, all blood tests I’ve followed guidance.

Ft 4 range 12-22pmol/L Mine 18.3TSH range 0.27-4.20mU/L Mine 0.5

Endorse was Prof. Gittoes who was suggested by Endo off Thyroid UK list who didn’t do private. But he poo poooed my concerns over FT3 being low.

Vitamin D July 160nmol/L reduced dose since as quite high now, was too low

Folate was 2.2 now >20 stopped taking

Ferritin range 15-150 ug/L. Mine 154.3. Stopped tablets now

B12 posted earlier

greygoose profile image
greygoose

Taking statins is a very bad idea. Your cholesterol level has nothing to do with what you eat, but everything to do with your FT3 level. And, your cholesterol level is saying that your FT3 level is too low for you! Whatever any endo might think!

As Marz says, cholesterol is made in the liver, and the liver adjusts the amount it makes to tie in with what you eat, so that the level is always constant. But, when T3 is low, the body cannot process and eliminate cholesterol correctly, and it tends to build up in the blood. Statins are not, and never have been, recommended for hypos, and it has been well established that they do nothing for women. So, assuming that you are a hypo woman, your doctor should never have prescribed them!

Also, quite apart from that, even if they did lower your cholesterol, there's no point. Cholesterol is a red herring. It does not cause heart attacks or strokes - being hypo and taking statins is far more likely to cause those! Cholesterol does you no harm, no matter what its level. So, no point in risking all the side-effects of statins - low sex hormones, muscle aches, diabetes, higher risk of breast cancer - to try and lower it. It's even said that those with higher levels of cholesterol live longer! :)

You may also like...

Blood test help for chronic fatigue and brain fog

Pretty much everything came back within the normal range except for my LDL and total cholesterol...

Solutions for brain fog when test results are good

abnormal results I’m confused by the tests and how I feel - as the tests may suggest I am over...

Blood Test Results - Unusual Symptoms

Serum total 25-OH vit D level 50 nmol/L 50.00 - 200.00nmol/L Serum TSH level - (SAI) - 0.54 miu/L...

Brain fog, anxiety, confusion and memory loss.

BLOOD TEST RESULTS FROM 22/02/2022 taken at 7.45AM

requesting follow up test within two months the lab has rejected some of the tests, annoyingly, I...