B12 deficiency still feeling something draining me

[Mlj01]

Hi i would like some feedback with my blood results please. Ive recently started b12 injection as im b12 deficiency...wondering is there anything else low and need to take.

B12 120ng/L

Ferritin 55ug/L

(15.00 -300.00ug/L)

Folate 5.7 ug/L

(>3.00ug/L)

TSH 1.08 mU/L

( 0.35-5.50mU/L)

Free T4 12pmol/L

(7.00-17.00pmol/L)

AST 20u/L

( <32.00uL)

Amylase 65u/L

(28.00-100.00u/L)

[SlowDragon Administrator]

Welcome to the forum

Are you diagnosed as having Pernicious Anaemia or just low B12?

Are you also diagnosed as being hypothyroid?

Ft4 is low

Folate low too

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin D, ferritin levels plus thyroid antibodies

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Is this how you do your tests?

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Thriva also offer just vitamin testing

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

Also vitamin D available as separate test via MMH

Or alternative Vitamin D NHS postal kit

vitamindtest.org.uk

[Mlj01 in reply to SlowDragon]

When i was having my injections i got given a leaflet about pernicious anaemia they think i have it as i do eat b12. They havnt tested me for it. Sent me of with the leaflet and look online. I requested my medical records a recently got them only to find my b12 was 175 in 2016 and they were advised to investigate and give me treatment but they never told me. Ive been suffering with serve pain just under my left rib for 5 years. Vomiting..yellow stools..blood..weakness...stiffness.! For most of my life ive suffered from blurry vision...palpitations...buzzing in ears. Also i have heavy periods since i was a teenager and still suffer with them on the implant. Theyve always said my thyroid is fine and everything else. It was my dermatologists that found my low b12 in November 2020...now i find out my gp knew about it and still said nothing. B12 injection have helped and i feel a lot better a lot of my symptoms are better...just in shock as im been treated for gallbladder and liver problems. Mri ct an ultrasound scans are all clear. I feel left in the dark.

[SlowDragon Administrator in reply to Mlj01]

Are you in the U.K.?

Heavy periods lead to very low iron/ferritin

Low B12 frequently a result of being hypothyroid

Essential to test thyroid antibodies and vitamin D

[Mlj01 in reply to SlowDragon]

Yes i live in wales.Ive orderd a test kit from medicchecks from the link you sent me. So hopefully will get more answers soon.

[SlowDragon Administrator in reply to Mlj01]

Are you currently taking any other supplements apart from B12?

Important to stop taking any supplements that contain biotin a week before ALL BLOOD TESTS as biotin can falsely affect test results

Only do test early Monday or Tuesday morning and then post back via tracked postal 24 hour service

All thyroid tests should be done as early as possible in morning before eating or drinking anything other than water.

Come back with new post once you get results

[Mlj01 in reply to SlowDragon]

No only b12 and that was a injection in December when i started the treatment of 6 injections in 2 weeks. My next one is march. This week i feel awful and numb and im a little shaky so dont know if that has anything to do with b12 being low. Will let you know when i get my results Thank you so much for your help x

[SlowDragon Administrator in reply to Mlj01]

Frequently necessary to have injections more frequently. Ask for injections every 2 months