Internal Shiver and pulsating blood sensation inside body

[Tima1876]

Hi All,

I have been suffering from this internal shivering issue since February this year.

End of February at the gym I hurt my back, since then I started to get a flutter/vibration in my stomach.

After a month the flutters travelling around my body e.g. shoulder, thighs and lower stomach, GP prescribed Quinine Sulphate which I took for a month after doing a blood test and found my Vitamin D needs to be increased but still no major concern.

During the night I wake up because of the flutter/vibration, then the GP prescribed me Gabapentin which I had stopped taking about 2 months after.

The flutter/vibration is constantly there and does not allow me to sleep the complete night.

The flutters/vibration are not externally visible it is all internal, but my husband has felt it when he has placed his hands on my stomach.

I have seen a neurologist and had done a complete MRI scan where he ruled our MS and Parkinson. He had found some tension in the neck and shoulder areas and recommended physiotherapy which I am currently doing. He was the one who suggested not to take Gabapentin and also cleared me from any issues.

I have also speaking to a gastrologist as the issue started within the stomach area, he has conducted a blood test and stool test and found no issues and also cleared me. He suggested I take Amitriptyline 10mg which has helped me sleep 5 out of 7 nights (an improvement).

After reading some forums I did a private throid test which T3 and T4 test results are within the normal range.

After explaining to this to my GP they recommend to get a second opinion and get a nerve survey done. Which I went to a secondary Neurologist and still there does not seem to be an issue.

Really quite stuck to where to go now. As I do not feel any better than what I did when this started. I have recently started to feel a quite strong pulsating feeling in my arms and legs and feel my heart pounding a bit more.

Please help with any suggestions or avenues to looking into.

Much appreciated

Tima

[Hidden]

Have you had b12 tested?

[SlowDragon Administrator]

After reading some forums I did a private throid test which T3 and T4 test results are within the normal range.

Please add actual results and ranges

Just testing TSH, Ft4 and Ft3 isn’t full testing

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin levels

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Internal shivering and Fluttering can be linked adrenals .....common if thyroid is out of balance

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu....

Private testing

thyroiduk.org/getting-a-dia...

[humanbean]

Internal vibration can sometimes happen to people with low or high cortisol. In other words it could be an adrenal problem.

[SmPea]

I am experiencing very similar symptoms especially the pulsing in thighs and upper arms. I very much sympathise with you, particularly the poor sleep 🥱. I have managed to persuade my GP I need to have my cortisol tested. Getting the test done Christmas Eve! I haven’t yet convinced him to make a referral to neurology, wait to see result of test first. Sorry I can’t make any useful suggestions as I too am at a loss. I have gone through so many tests this year due to unintentional weight loss, gut problems and now this! If you do find a way forward do let me know.

[Lizzo30]

I suggest you give inositol a try , it is very safe and may help you if your shivering is from a neurological origin - the best brand I tried was Biovea it is a bit more expensive but worth it imo

[magsyh]

I get those feelings when my cortisol is low. I'm on hydrocortisone now low dose and I find it a great help.

[PeninaNZ]

I have had the feeling you describe and agree that it may be cortisol levels. I had a synacthen test that showed my adrenal response was lacking.