Armour hair loss: Has anyone experienced hair... - Thyroid UK

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Armour hair loss

Arabella33 profile image
24 Replies

Has anyone experienced hair loss on Armour. I was optimal tor four months but still felt hypo but all my hair fell out. Now on t3 only getting optimal, panicking it will not grow back.

Iron and all other vits are optimal it’s really just the Armour which apparently is a common side effect.

Thanks All

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Arabella33 profile image
Arabella33
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24 Replies
shaws profile image
shawsAdministrator

I am sorry you have lost your hair. I have too but was taking liothyronine (T3) only. Alopecia Areata is another autoimmune condition and you might have that. My hair grows back and then falls out again (just in time for summer holidays - why cannot it fall in the winter?)

Arabella33 profile image
Arabella33 in reply to shaws

You are in t3 only now ? I am also and was hoping my hair would regrow because of it

I don’t have autoimmune Hashimotos so don’t think it’s that

Jazzw profile image
Jazzw

Just to check—are your iron levels definitely optimal? Because low iron is the commonest cause of hair loss. Along with dramatic changes in diet (I’ve done the odd stint of fasting which resulted in sudden hairloss 6-8 weeks later, even though I’d long since stopped fasting. :) It’s the shock that does it!).

What are your ferritin levels? In range won’t necessarily be good enough—ideal would be about halfway through the ref range but at least 70 is oft quoted.

Arabella33 profile image
Arabella33 in reply to Jazzw

Yes they are 74 so iron is fine - it’s definitely the armour

Jazzw profile image
Jazzw in reply to Arabella33

Well, not definitely. It could be an autoimmune process as shaws has suggested. There’s nothing in Armour that would cause hairloss.

It’s a scary thing to experience, that much I do know—really sorry you’re going through it.

Arabella33 profile image
Arabella33 in reply to Jazzw

Thank you - it’s listed as a common side effect of Armour

I’m not Hashimotos or autoimmune and it only happened when I took the armour

I hope that now I’m t3 only it will stop

Thanks for your advice ;)

Jazzw profile image
Jazzw in reply to Arabella33

I know it’s listed as a side effect—it’s listed as a side effect of levothyroxine too—but I honestly think the hair loss is a result of insufficient thyroid hormone replacement rather than the thyroid hormone replacement itself. Would be typical to blame the drug rather than cautious prescribing, eh? Correlation rather than causation.

Here’s hoping for a lustrous head of hair really soon.

Arabella33 profile image
Arabella33 in reply to Jazzw

It happened when I started the meds even thought I was severely hypo before I still had my hair.

I do hope you are right however and getting optimal will help!

Dot think it’s autoimmune as I don’t have hashis so there’s that i suppose...

Jazzw profile image
Jazzw in reply to Arabella33

Have you had a thyroid scan then? Not everyone with Hashi’s has thyroid antibodies but you can usually tell for sure if it’s autoimmune by having an ultrasound scan of the thyroid.

SlowDragon profile image
SlowDragonAdministrator

Are you sure you don’t have autoimmune thyroid disease

Had BOTH TPO and TG thyroid antibodies tested

Ultrasound scan of thyroid done?

Arabella33 profile image
Arabella33 in reply to SlowDragon

Yes I’ve had the blood tests but not scan.

If it was autoimmune then hair loss would have been there before Treatment when I was hypo for years anyway

SlowDragon profile image
SlowDragonAdministrator in reply to Arabella33

Not necessarily .....low vitamins often become worse over time

20% of Hashimoto's patients never have raised antibodies

healthunlocked.com/thyroidu...

Paul Robson on atrophied thyroid - especially if no TPO antibodies

paulrobinsonthyroid.com/cou...

Have you had zinc levels tested

What was most recent ferritin level?

pennyannie profile image
pennyannie

Hello Arabella

I'm sorry but I don't understand :

If you were optimal on Armour you have written that you still were experiencing symptoms of hypothyroidism, is this a typo on your part :

You dose NDT up slowly and lowly until you have relief of symptoms :

Just reading through your comments and I think your ferritin could do with going higher - my ferritin needs to up at around 100 for optimal conversion of my NDT :

Arabella33 profile image
Arabella33 in reply to pennyannie

I took armour for four months. My blood were optimal during this time. I decided that since I had felt little relief I wanted to go t3 only. I’ve been doing that since and gradually feeling better.

My ferritin was slightly low at 64 but had been for a long time as I’d never supplemented and had a thick head of hair. I have now supplemented well with this and hope to will help my hair grow back

Thank you for your helpful reply

pennyannie profile image
pennyannie in reply to Arabella33

I'm glad you are feeling better -

as that's all any of us want for ourselves and others :

Arabella33 profile image
Arabella33 in reply to pennyannie

That and my hair back !

I will increase iron to see if the at helps thank you

pennyannie profile image
pennyannie in reply to Arabella33

Personally, I don't think the two issues are related.

However you do need strong core vitamins and minerals for any thyroid hormone replacement to work well so it will be in your best interests to keep an eye on your ferritin, folate, B12 and vitamin D at try to maintain them at optimal levels.

Optimal levels will be unique to each individual and I know now through my own experience and yearly blood test results that my conversion of thyroid hormone is better when my ferritin is up at around 100.

When my ferritin was at 75 my T3 was around 10% less with my T4 10% higher than when my ferritin came in at 100 : and I felt better with the higher T3 so that is what I now aim for and it does gets easier keeping all these balls in the air, as now I'd don't much thought to my thyroid supplements.

Lora7again profile image
Lora7again

Ferritin needs to be over 80 for hair growth and your thyroid levels have to be right for you. The hair you are losing now is from what happened 3-4 months ago because of the hair cycle. You have to remove the trigger before it will grow back. Mine went on for over 2 years and I am surprised I didn't end up bald because I was losing hundreds a day. I now lose about 3 a day and I no longer count them or keep them in bag to show my GP who wasn't interested in the slightest because I was in my 50s and said it was probably the menopause. I have an elderly relative in her 80s who has thick hair because she doesn't have thyroid disease. I had some hair extensions put in to make me feel better because I found it so depressing. Someone actually asked me if I had cancer and I told them no just thyroid disease.

☹️

Arabella33 profile image
Arabella33 in reply to Lora7again

Thank you very much for your helpful response. My ferritin was 64 before I took armour with a thick head of hair. I was low ft3 with brain fog so really hypo. I’ve since supplemented with iron for 2 months. I think my hair has stopped falling out as I have stopped the armour 2 months ago which did not suit me at all. I just noticed how much had gone though in one month in June and it’s quite shocking. I do feel so depressed about it.

I hope that when I’m optimal on t3 only as I’m still raising but I’m absolutely certain it was something in the armour or t4 that made me lose as it did not make me more hypo I raised quite quickly and my bloods showed better levels

My supplements increase during this time as well as I started taking them.

To reiterate I had NO treatment with thyroid or supplements before taking armour and a thick head of hair !

Lora7again profile image
Lora7again in reply to Arabella33

Hair can fall out when thyroid levels are moving and once you are established on the right dose I think your hair will stop falling out. I have had 2 lots of extreme hair loss both lasting a couple of years and both times it has grown back and I am 61 now. My hair has been growing back for over a year now and it looks ok but isn't as thick as it once was but I did have extremely thick curly hair before I became ill with thyroid disease. My family says it looks normal now but I know it isn't the same as it was. I think I took my hair for granted because I never expected it to fall out. I even had a receding hairline at one time and the dermatologist who I saw over10 years ago said I had female pattern balding because she didn't realise I had thyroid disease. I feel like going back and asking for my £150 back because she even told me to use Regaine and I purchased that as well and never used it because a hair loss site pointed out I had a suppressed TSH of 0.002. Over the last 10 years I have read a lot about this disease and have been a member of different sites here and in the US and I have gained a lot of knowledge about hair loss and this horrible disease.

Arabella33 profile image
Arabella33 in reply to Lora7again

Thank you, I do hope my hair will regrow. It’s gone like straw and really dry which I know is down to the ndt. I was checking it and it looks like this is more of an issue than actual hair loss - it’s just snapped off!

I hope when I am optimal on t3 this will reverse.

I’m glad your hair has grown back somewhat and that you feel better.

Zazbag profile image
Zazbag

I had hair loss since February on levo only. I added T3 in September. It took three months of combined levo and T3 for my hair to stop falling out. Hair grows in cycles so I think you need to be patient and consistent with your medication. Hopefully your hair will stop falling out soon!

Arabella33 profile image
Arabella33

Thank you, it has stopped falling out I think since I went to t3 only. The hair I have it really straw like and it wasn’t like it before.

Hopefully it will regrow in a couple of months thank you for sharing your experience

destal7 profile image
destal7 in reply to Arabella33

Any luck/updates Arabella? I realize this thread is old, but I'm in the exact same position.

I've been on Armour for almost 3 years, some adjustments during this time, but thyroid numbers stable and good.

Hair falling out continuously; lost half the hair on my head.

I take every nutritional supplement, vitamins & minerals (for years) for hair/skin/nails but it does not help. It is because of the Armour, not low iron or nutritional deficiencies, or Hashimoto's or any other autoimmune disorder for hair, etc.

Unfortunately this is much more common than others on here realize, since they obviously aren't experiencing it, or they's see it first hand, without any doubts.

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