Can you help with blood tests results please AND JUST A GENERAL ADVICE.
I SUFFER from ME FIBRo, Depression, can't lose weight, coarse hair, dry skin, pains, brain fog, anxiety, easy irritable, each scalp, I slept 10-12 h/day.
April
TSH 2.25 (0.35-5)
T3 -3.44 (3.8-6.7)
T4 13,99 (12-22)
I was given trial of nature thyroid FOR 6 WEEKS, FELT AMAZING!! I haven't felt so good in 8 YEARS!!! I was calm, happy, full of energy, my skin was great, didn't need naps (Napped for yearssss, ). Seriously, felt like brand new person.
Sadly, Nature thyroid were recalled. Tried ERFA AND FELT REALLY BAD, TRIED ARMOUR AND FEELING NOT GREAT PLUS MY RESULTS CHANGED SIGNIFICANTLY. My Neutrophils are constantly low, end was concerned about it. All other tests were negative when it comes to autoimmune conditions.
June BEFORE NATURE THYROID TRIAL.
Neutrophils 1.6 (2-7)
TSH 2,73 (0.35-5)
T3 4,8 (3.8-6.7)
T4 11.9 (7-20)
OCTOBER - ARMOUR 1 GRAIN FEELING OKISH. LOW TSH IS WORRYING ?
Neutrophile 1.9 (2-7)
TSH 0.09 (0.35-5)
T3 -4.8 (3.8-6.7)
T4 -10.01 (7-20)
1. WHY did I feel so amazing on NATURE thyroid comparing to Era and Armour?
2. What is happening to my TSH?
3. Why Neutrophils are so low?
Many thanks guys.
Gosia
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oceanescape
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TSH is almost always suppressed when on any NDT or T3
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies
Do you have Hashimoto’s
Ask GP to test vitamin levels
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
If/when also on NDT make sure to take last third of daily dose 8-12 hours prior to test, even if this means adjusting time or splitting of dose day before test
Is this how you do your tests?
Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins
I'm reluctant to add T3 as the cheapest on is £2/day the pharmacist told me so it will be additional £60/month just to add it to already £75 medications. (NDT and supplements).
I completely understand and we used to get T3 prescribed until Big Pharma got greedy and the cost increased so much that prescribing was stopped - unless an endocrinologist prescribed (many still will not do so).
In the UK, as far as I'm aware doctors/endos have been told not to prescribe NDTs (which used to the only replacement from 1892 up until levo was introduced) - (I think around the 60's) and Big Pharma saw that they could improve their profits by introducing levothyroxine (T4 alone) - plus the extras needed to try to ease symptoms.
I am aware that many people do fine on levo but the majority on this forum (myself included) couldn't improve at all and symptoms even worse.
This is the method for tests:-
The earliest possible appointment (fasting - you can drink water).
Allow a gap of 24 hours between last dose and test and take it afterwards.
Also request vitamins/minerals to be tested:
B12, Vit D, iron, ferritin and folate as everything has to be optimal.
Ferritin is a protein which can bind and store iron.
Ferritin is made in your body. For a start, you need sufficient iron in order for your body to be in a position to build up adequate stores as ferritin.
Is the ferrous sulphate the same as ferrous fumerate?
I don't get that question, I'm afraid. Why would they be the same thing?
As your are taking adrenal cortex, have you done a 24 hour salive adrenal test to include cortisol and DHEA? If so are you regularly testing to make sure that your supplement dose is appropriate?
I asked my endo about saliva, she said that the blood one is sufficient enough.
I said also that Im taking the adrenal cortex, she said that id doesn't do anything anyway. What?
9.07 Hrs.Mins
Result 346 nmol/L
Normal Range
140 - 700
That's the thing, I' not sure what to invest money in, I need some guidance. Taking supplements for a sake of it and doing random blood test won't solve my problem. My endocrinologist is very vague about recommending any test even if I'm willing to do them privately.
Shall I check Cortisol, saliva? Shall I check DHEA ?
Should I stop adrenal cortex, I carried on with it as I'm seeing improvement when taken.
I'm afraid I have no idea about serum cortisol tests, Hidden knows a lot so if she's around hopefully she'll comment.
My understanding is that the serum and saliva test are testing different things. I only have exprience of the saliva tests and when doing that both cortisol and DHEA should be tested because the DHEA helps in determining stages of adrenal fatigue.
Without knowing the exact situation, adrenal supplementation isn't a good idea because there are supplements to raise cortisol and supplements to lower cortisol so you'd need to know exactly what you're dealing with.
If you want to do the saliva test then Regenerus or Genova Diagnostics both do cortisol plus DHEA, details of how to order are on ThyroidUK's main website:
I use Regenerus because they contact you directly when results are ready, with Genova they send results to ThyroidUK who send them on to you once they've received your "results request form".
Just to add, no thyroid hormone replacement works well if ferritin, folate, B12 and vitamin D are not maintained at optimal levels - so this might be something to look at as from my own experience I know now that my ferritin has to be around 100 for optimal conversion of the T4 in my NDT.
I'm presuming the breakdown of T3 and T4 are the same in both these brands :
As I understand things your TSH will be low/suppressed when on NDT - it's not important :
Your T3 maybe higher in its range and your T4 lower in its range : obviously timings of dose and blood draw need to be considered but I believe with NDT we tend to " run " on a higher T3 and a lower T4 than those patients taking synthetic thyroid hormone replacement:
NDT was successfully used to treat hypothyroidism for over 100 years prior to the introduction of the blood test and guidelines that were introduced to be used alongside the newer thyroid hormone replacement launched by Big Pharma - T4 - Levothyroxine :
Your result of 346nmol/ls for your cortisol is not too bad, the adrenal cortex may be causing it to be higher than it perhaps is. I think if you do any further testing for cortisol & DHEA then you probably should come off it for at least 6 weeks before you retest.
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